Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I have chronic pain related to Spinal Stenosis, Osteoarthritis and joint inflammation due to Sarcoidosis. This most recent and new presentation of Sarcoidosis is effecting my joints and may be due to extensive dental issues. Currently, I am working on getting implants since my whole upper row of teeth had to be extracted in November 2023. My current treatment is Remicade infusion to get the joint inflammation under control. So far it has been moderately effective. I am on 10 mllg Methotrexate once per week, Prednisolone 5 - 10 mllg daily as needed, and recently was prescribed Tramadol 50 mllg @ no more than 3 pills a day.
I also take Lexapro 20 mllg, and Lyrica 2 - 3, 25 mllg capsules daily. Most of the time I am tired and sore in multiple joints. All this is new to me beginning in approximately February 2024. I am glad to join this group for support, and to gain more knowledge on pain and it's management.
Thanks,
Deborah

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Hey all, I'm Cynthia (clcone), email to long. Anyway I have Fibromyalgia, osteoarthritis along with nodules in lungs, thyroid and tumor on adrenal gland oh yeah and chronic IBS. I fight everyday to get up and function. No one seems to really care about the fibro or the arthritis. They treat them like ghosts. It's arthritis and nothing you can do. And mention fibro they barely acknowledge. I look forward to hearing your experiences and advice sharing .

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Hello, my name is KK. About 2.5 yrs ago my back pain went from only happening when I over did it to constant, everyday pain, so I began my journey to get relief. It took over 6 months to get any kind of treatment (injections in my knees, back and neck) that was not helpful. My greatest pain was in my lower back and my back specialist 5

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Good Morning, Sandi here,
I am a colon cancer survivor with surgery and 6 months of chemo. Of course this changed my life. That was in 2000. 2010 I was diagnosed with Anklyosing Spondylitis. Now, it depends on the doctors education to whether they agree with the diagnosis (I don't swell like they want me to). I've also been diagnosed with "severe Fibromyalgia", osteoarthritis, and Degenerative Disc Disease. I can't take many meds due to severe reactions, sensitivities, or allergies. Biologics are off the table, I live on Tramadol. I have pain every day. Some days are better and I have a productive day. This usually ends with the next day being horrible. I've been fighting to be better but, something drastic happens and sets me back EVERY time. So the depressions set in. I live in my arts and crafts room if I'm not doing errands or am too sore. My memory is crazy short and I don't know how to cope with it. I hope I remember to come back here.

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Have you tried opioids?
Your script sounds like mine until a brave doctor suggested Methadone. Of course there are some significant downsides but it gave me my life back. If you haven't tried it I urge you to see an MD pain specialist.

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I have been dealing with with crps for about 30 years, and I feel like it's getting worse . My question is what do I have to look forward to in the future with this condition?

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Profile picture for clcone @clcone

Hey all, I'm Cynthia (clcone), email to long. Anyway I have Fibromyalgia, osteoarthritis along with nodules in lungs, thyroid and tumor on adrenal gland oh yeah and chronic IBS. I fight everyday to get up and function. No one seems to really care about the fibro or the arthritis. They treat them like ghosts. It's arthritis and nothing you can do. And mention fibro they barely acknowledge. I look forward to hearing your experiences and advice sharing .

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Hang in there and seek support from others

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My name is Lise.I have affects from ECT treatments for depression. I have constant pain in my feet,sharp pains in my toes, Its basically body myalgia.Ive spent 17,00 at the GOOD FEET STORE. Im not sure it was worth it. The only thing that i get some releif from is hemp extract. I have had Gabapentin with no releif.and havent heard anything good about it anyway.

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Profile picture for lisebeau @lisebeau

My name is Lise.I have affects from ECT treatments for depression. I have constant pain in my feet,sharp pains in my toes, Its basically body myalgia.Ive spent 17,00 at the GOOD FEET STORE. Im not sure it was worth it. The only thing that i get some releif from is hemp extract. I have had Gabapentin with no releif.and havent heard anything good about it anyway.

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I went to the Good Feet Store a couple of years ago. I was not that impressed. Young girl with no credentials was trying to help me. They supposedly prepare shoes tailored especially for you. However, when they were measuring me, the girl went into the back room and came out with stock orthotics and put them in their shoes and told me to walk. Not very comfortable. I was not going to pay $3000+ for a pair of sneakers.

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Hello I answer to PJ. I’ve had chronic pain since age 19 now 61. I’ve tried nearly every arthritis drug available. Diagnosed with RA 1982. Severe spinal problems (spondylosis sciatica bulging disc and RA) I’m taking Rinvoq and meloxicam. I manage pain with exercise swimming and medical marijuana.

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