Grover's Disease: What works to help find relief?

I never heard of the treatments you are using, but thanks for sharing your treatments because so few of us get relief from prescription meds for GD. If I become symptomatic again I will look up the products you mention to learn more about them. Thanks.

Acitretin is an oral retinoid (vitamin A derivative). A brand name is Soriatane. It is used for treating severe skin conditions like psoriasis but is not gentle and definitely not something to be taken lightly as it has side effects and interactions that need to be monitored.

I have had GD for over a year now. Oral steroids did work for me, but not something you should take for any length of time. I've been drinking the Cilantro smoothies for about a year. They seem to limit my outbreaks. The itching and rashes are not nearly as bad as they were before I started to drink them regularly. I drink them every day. I buy several bunches of Cilantro, cut off the very bottoms as they are generally dirty, wash them thoroughly, split each bunch in half, put them in plastic bags and freeze them. I generally blend them with some juice, yogurt, honey and some fruit. I blend them really well, and the cilantro flavor really disappears. I also put in two crushed tablets of Lysine, for the itching, as well. The colder, the better. Experimentation will eventually lead you to a palatable drink. I hope this is of value to you. I read this site every day as the information here is better than any than what you'll hear from most doctors. Good luck.

Thanks for the explanation. When symptomatic I used the prescription Calcipotriene Cream. It's a synthetic vitamin D3 used for psoriasis which slows the growth of cells down. Thank goodness I had insurance; it was expensive. I used it out of desperation even though I don't think it made any difference. I thought if my rash is this bad using it maybe it would be worse if I quit using it.

Tastes Good Now. I take it STRAIGHT!
Now that I have Blender and Juicer, I drink Broccoli; for Colon Health, Carrots ;A for my skin. So much easier than cooking. and more uniform quantity.
A new note about my neuropathy. I visited dermatologist (after original blister breakout) and used Triamcinolone cream 0.1% for 2-1/2 weeks. It cleared blisters and stopped itching. I went for a followup visit with 2 comlaints; Pins and needles here and there (reminded me of back injury I had years ago), and Red Itchy hands. The Derm said i have Neuropathy (from vertebra ?)
I asked why did this happen right now (after 2-1/2 weeks steroid) He said it was my age. Sounded fishy to me. Too coincidental with steroid use. So, what do you guys know about getting Neuropathy?

I know little about neuropathy except from family members and a friend who tell of lack of feeling, numbness, tingling and in one case horrible sores which won't heal. These persons are diabetic.
You are correct in assuming you may be having a reaction after stopping steroids' which is well documented. Yet in most cases I read about the use of steroids was for a longer period of time than 2 1/2 weeks to get RSS.
I can't remember if you mentioned if you considered Allergic Contact Dermatitis, ACD, which unless you have Dysidrotic Eczema, ACD is the most common reason for hand eczema. I have several forms of eczema GD and ACD. This is not unusual for those of us with eczema. Did you get the 5 Day Extended Patch Test for ACD to determine if you have ACD. Steroids' helped put my ACD hand eczema in remission only to return because I was still exposing myself to allergens. Steroids are only a treatment and once discontinued and you are still in contact with allergens the symptom's will reappear.

@grovercleveland, you may be interested in joining the discussions in the Neuropathy group here: https://connect.mayoclinic.org/group/neuropathy/

Thanks., My spontaneous short lived "itch" more like a fly landing on me jumping from one place to another. Nothing terrible. Gabapenten was prescribed. 300 mg day. My A1C was 5.6 and sugar this AM was 113, probably less if I stopped eating late night.

Hi , I first learned of Cilantro therapy from you on this page. I began about three weeks ago and am seeing very good results and wanted to thank you. I believe mine is a relatively light case (Chest and stomach ) with no itching. What was a mean red rash is now flesh tone and almost gone. The odd thing is I do better covering it with Zinc Oxide than the steroid gel prescribed by the Doctor. Can you tell me if adding spinach (For general health) to my Smoothie would affect the effectiveness of the Cilantro ?

Thanks !