1. < Heart Rhythm Conditions

How do you determine PVC burden?

Posted by jprice713 @jprice713, Oct 11 7:23pm

Upon speaking to my electrophysiologist it was explained to that I would not be a candidate for an ablation unless the burden was 20%. Although I do experience that amount at times its only briefly. Most of the time it hovers around 6-8%. I would I determine the average if that is the case? Plus it seems like by the time I connect my loop recorder the onslaught has passed.
Currently taking 10mg of Bystolic and 100 mg of Fleccinide 3 times a day. Thanks for reading 🙏

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jprice713 | @jprice713 | Oct 14 7:56am
In reply to @denisern "My PVC burden is about 30% and scheduled for an ablation next month. I had a..." + (show)
@denisern

My PVC burden is about 30% and scheduled for an ablation next month. I had a monitor to determine the burden and was shown just where the pvc was happening in my heart. that means an ablation area is pinpointed to that area. There is testing to determine if your PVCs will be helped by ablation & if your are symptomatic. I am very fatigued and unable to do many things I once did so praying this will be the answer.

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I'm praying it goes well and they are able to pinpoint it. Also that your quality of life comes back 🙏

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1 reply
denisern | @denisern | Oct 14 9:13am
In reply to @jprice713 "I'm praying it goes well and they are able to pinpoint it. Also that your quality..." + (show)
@jprice713

I'm praying it goes well and they are able to pinpoint it. Also that your quality of life comes back 🙏

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Thank you!

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gloaming | @gloaming | Oct 14 12:35pm
In reply to @denisern "My PVC burden is about 30% and scheduled for an ablation next month. I had a..." + (show)
@denisern

My PVC burden is about 30% and scheduled for an ablation next month. I had a monitor to determine the burden and was shown just where the pvc was happening in my heart. that means an ablation area is pinpointed to that area. There is testing to determine if your PVCs will be helped by ablation & if your are symptomatic. I am very fatigued and unable to do many things I once did so praying this will be the answer.

Jump to this post

This is encouraging news, denisern. I hope it works out. If the source has already been determined, it should be a routine procedure and you should be fine afterwards.

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fanning | @fanning | Oct 14 8:06pm

I had an ablation in 2009 and have been offered another but right now it feels stable so I am waiting. I am on Diltiazem and a small amount of beta blocker. I also had a loop recorder placed a couple years ago and it help determine where my arrhythmias is coming from.

This past January my arrhythmia was quite active but an increase in Diltizem helped.
I used to pass out frequently with the PVC’s. We have talked about it being autonomic but found nothing to support the theory. But it feels like an adrenaline rush that ends in me passing out, again an increase in my Diltizem helped with this. Cardiologist does not feel it is related to my Mixed Connective Tissue Disease but I really think it does.

Since I live in a rural area, I don’t think my specialist are the best but it is a Mayo Clinic now. I am not sure I get the best care but doing the best I can. My specialists rotate out a lot so that is why I am not sure care is consistent or seamless.

Trying to live one day at a time. I do walk 3 to 5 miles per day with my dog, usually after I wake up and can move, it is now routine and if I don’t do it the rest of my day just does not go well and I struggle to get any energy. I will say it is the endorphins from the walking that helps with the rest of the day. The walking also helps me sleep at night without it I don’t sleep.

Anyway, enough about me! Thanks for the support.

REPLY
1 reply
jprice713 | @jprice713 | Oct 14 9:15pm
In reply to @fanning "I had an ablation in 2009 and have been offered another but right now it feels..." + (show)
@fanning

I had an ablation in 2009 and have been offered another but right now it feels stable so I am waiting. I am on Diltiazem and a small amount of beta blocker. I also had a loop recorder placed a couple years ago and it help determine where my arrhythmias is coming from.

This past January my arrhythmia was quite active but an increase in Diltizem helped.
I used to pass out frequently with the PVC’s. We have talked about it being autonomic but found nothing to support the theory. But it feels like an adrenaline rush that ends in me passing out, again an increase in my Diltizem helped with this. Cardiologist does not feel it is related to my Mixed Connective Tissue Disease but I really think it does.

Since I live in a rural area, I don’t think my specialist are the best but it is a Mayo Clinic now. I am not sure I get the best care but doing the best I can. My specialists rotate out a lot so that is why I am not sure care is consistent or seamless.

Trying to live one day at a time. I do walk 3 to 5 miles per day with my dog, usually after I wake up and can move, it is now routine and if I don’t do it the rest of my day just does not go well and I struggle to get any energy. I will say it is the endorphins from the walking that helps with the rest of the day. The walking also helps me sleep at night without it I don’t sleep.

Anyway, enough about me! Thanks for the support.

Jump to this post

Thank you for sharing. I'm praying that you don't experience any more episodes and that you receive the care you need

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