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Pudendal Nerve Entrapment/Neuropathy/Damage

Posted by mandiPNE @mandee, Oct 5, 2018

Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I'm very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want - for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.

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FloridaSwimmer | @vickyvanvliet | Oct 14 5:51pm
In reply to @tcsnydes3 "My son is dealing with a damaged nerve from surgery 15 years ago. Has been through..." + (show)
@tcsnydes3

My son is dealing with a damaged nerve from surgery 15 years ago. Has been through all of the things and his last appointment at the Mayo did not leave him with a very positive outcome. He saw the best dr. that Mayo has. I will forward this info to him and see if he can convey it to his doctor. I pray it works as he is so frustrated. Thank you for this little bit of hope!

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It can be a miraculous treatment. I don’t know why they don’t do it. I only wonder if it’s because it’s so inexpensive? I’m in Florida and we have a doctor here in Sarasota. Good luck.

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johnhenry56 | @johnhenry56 | Oct 29 9:41am

Anyone had L5, S1 degenerative disc disease that pinched pudendal nerve. Doing Pelvic floor Therapy. Seems to be back. CT scan showed the DDD. Person I know had this pain just show up awful 4 months ago. Had DDD at same spot. Surgeon fixed Disc issue, pain went away.

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