Bummer that it stopped working for you. I think they are still learning more about when and why Dupixent works or doesn’t for different individuals. Maybe Regeneron or the dispensing pharmacy may have suggestions. Perhaps after you stop taking it for a while, you can restart? Anyway, please post whatever you learn, as others may be in the same boat.
Dupixent did wonders for me until about 3 months ago. Don't know what happened, neither do the pulmonologist.....perhaps I developed antibodies. Have not bee able to speak to anyone from Regeneron or the dispensing Pharmacy re their thoughts about the change in effectiveness. I hope it works well for you!
Thank you for your thoughts. Waiting on my authorization but have decided to give it a try. I'm not on O2 and still pretty active but things are becoming more difficult. Please keep me posted on what you find out if you do speak to someone.
Thank you for your thoughts. Waiting on my authorization but have decided to give it a try. I'm not on O2 and still pretty active but things are becoming more difficult. Please keep me posted on what you find out if you do speak to someone.
I'm so glad you are willing to try Dupixent! Expect some ocular changes.... ie blurred vision, dry eyes....but at the most that was it. I did get an ophthalmology examine just to establish a baseline as that was the side-effect that was most mention with users of Dupixent regardless of the condition it was used for. Good luck and I am excited for you! I still am not on 02 even though at a stage IV as a just manage by slowing down and if I can bounce my level back to the mid-nineties within 40-50 minutes I don't want to start to become dependent on it.
Keep us posted!
I have a medicare advantage plan. My doctor said that medicare does cover it but you have to meet certain criteria (health/disease related) to be approved. They have started that process for me. All I can do at this point is wait and hope I get approved. Not sure what the co-pay will be if any.
Well, since Dupixent was approved for asthma and COPD and high eosinophils, I gave all three. I am waiting for CVS specialty pharmacy to finish processing my pre-authorization and then waiting for an appointment with my lung doc’s office so I can get my 1st doses there and be sure I get everything right.
I don’t understand why it’s not the default when we get a new Rx with new mode of administration that we should have it demonstrated before we are on our own.
Patients would likely be better able to correctly take their medications if it was always 1st administered in the MD’s office.
I have Medicare A & B plus local BCBC plan that my spouse had when he retired from the federal government. I was told by insurer my copay will be < $100/month. With the Dupixent discount card it may be $0.
In response to all; the longer you can keep from being oxygen dependent the better. I can't do anything without it now and I'm pretty sure that if I was a little less fearful and more eager to learn about COPD in the beginning I might had held off for a while longer. I am now tethered in my apartment and do have a portable for outside activities
My doctor has never suggested Dupixent; sounds very promising.
Perhaps a fresh pair of eyes (new Pulmonologist) might help. You can in certain circumstances wean yourself off the 02 with supervision. The 1st pumonologist of five years ago wanted to put me on 02.....sought another physician and still am not on the 02. He may not have mentioned Dupixent as it has only been approved since 2018...now there is a newer drug called Ohtuvayre that has just come on the market and is already being prescribed. It works differently that Dupixent so it would be possible to be on both, but that is a patient/physician discussion. I would go to a top notch Pulmonologist that is well versed in COPD. There are also valves that can be placed in your lungs to help......but only if you meet medical criteria. Please seek these options out for an improved quality of life.
Connect
Connect
Like
Helpful
Hug
Bummer that it stopped working for you. I think they are still learning more about when and why Dupixent works or doesn’t for different individuals. Maybe Regeneron or the dispensing pharmacy may have suggestions. Perhaps after you stop taking it for a while, you can restart? Anyway, please post whatever you learn, as others may be in the same boat.
-
Like -
Helpful -
Hug
1 ReactionThank you for your thoughts. Waiting on my authorization but have decided to give it a try. I'm not on O2 and still pretty active but things are becoming more difficult. Please keep me posted on what you find out if you do speak to someone.
I'm so glad you are willing to try Dupixent! Expect some ocular changes.... ie blurred vision, dry eyes....but at the most that was it. I did get an ophthalmology examine just to establish a baseline as that was the side-effect that was most mention with users of Dupixent regardless of the condition it was used for. Good luck and I am excited for you! I still am not on 02 even though at a stage IV as a just manage by slowing down and if I can bounce my level back to the mid-nineties within 40-50 minutes I don't want to start to become dependent on it.
Keep us posted!
-
Like -
Helpful -
Hug
1 ReactionLook it up!
What insurance do you have & does it cover the Dupixent?
I have a medicare advantage plan. My doctor said that medicare does cover it but you have to meet certain criteria (health/disease related) to be approved. They have started that process for me. All I can do at this point is wait and hope I get approved. Not sure what the co-pay will be if any.
Well, since Dupixent was approved for asthma and COPD and high eosinophils, I gave all three. I am waiting for CVS specialty pharmacy to finish processing my pre-authorization and then waiting for an appointment with my lung doc’s office so I can get my 1st doses there and be sure I get everything right.
I don’t understand why it’s not the default when we get a new Rx with new mode of administration that we should have it demonstrated before we are on our own.
Patients would likely be better able to correctly take their medications if it was always 1st administered in the MD’s office.
-
Like -
Helpful -
Hug
1 ReactionI have Medicare A & B plus local BCBC plan that my spouse had when he retired from the federal government. I was told by insurer my copay will be < $100/month. With the Dupixent discount card it may be $0.
-
Like -
Helpful -
Hug
1 ReactionIn response to all; the longer you can keep from being oxygen dependent the better. I can't do anything without it now and I'm pretty sure that if I was a little less fearful and more eager to learn about COPD in the beginning I might had held off for a while longer. I am now tethered in my apartment and do have a portable for outside activities
My doctor has never suggested Dupixent; sounds very promising.
Perhaps a fresh pair of eyes (new Pulmonologist) might help. You can in certain circumstances wean yourself off the 02 with supervision. The 1st pumonologist of five years ago wanted to put me on 02.....sought another physician and still am not on the 02. He may not have mentioned Dupixent as it has only been approved since 2018...now there is a newer drug called Ohtuvayre that has just come on the market and is already being prescribed. It works differently that Dupixent so it would be possible to be on both, but that is a patient/physician discussion. I would go to a top notch Pulmonologist that is well versed in COPD. There are also valves that can be placed in your lungs to help......but only if you meet medical criteria. Please seek these options out for an improved quality of life.