COVID vaccines and neuropathy

Yes, I got PN shortly after my second Phizer Covid shot! We were all trying to be safe from Covid & look what happened……..

Unfortunately, more ugly stuff popping up all the time about those vaccines and boosters. You don’t hear about it, but ask your doctor and if he is forthcoming, he will share. Mine did!

Just to keep things balanced, I have chemo induced neuropathy. I found red yeast rice which has the same active ingredient as statins did almost immediately worsen my neuropathy. My neuropthy has been pretty stable for three years with that exception. I had the first Pfizer shot with all the boosters from May 2021 thru July 2022, and I had the newer shot last November. My intent is to get both the flu shot and newest covid shot in the next few weeks. None of the covid shots worsened my neuropathy.

The cardiac autonomic neuropathy called CAN started after my second Moderna. It’s getting worse. There is nothing that can be done about it. The electrophsiologist and cardiologist give you about 8-10 years left to live. Your blood pressure goes up and down along with your heart beat bradycardia/ tachycardia.
Makes you really dizzy and light headed.

@artemis1886
I’m sorry to hear that.
Do you have Diabetes?
Jake

Yes I was diagnosed when I started taking prednisone for the inflammation from the Lupus. I had the neuropathy before I became a diabetic. I have nerve damage from the Lupus my neurologists told me.

I'm so sorry to hear that. I never heard of cardiac autonomic neuropathy. What are the symptoms? Do they think it's from the vaccine and all the boosters?

I did have the new/latest COVID 19 vaccine from Moderna a month ago and so far, cannot pinpoint any issues from that!
BTW, I have long standing CPS & chronic pain and trying non-traditional treatments! Started taking ARA 290 Peptide shots, which has not been approved by FDA and is for research purposes only (has gone thru Phase 2 clinical trials), not recommended for Animal or Human consumption! Will be taking for 28 days once/day and have completed 3 days!
Following is my history :

A; Summary:

1. Diagnosed with Paroxysmal atrial fibrillation (AFIB) in May 2017
2. Incidence of an Ischemic CVA (Stroke) to left Thalamus region on July 19, 2019.
 Continue to have persistent / all day chronic numbness, burning, uncomfortable cold, prickling, tingling, pins-and-needles, stabbing, shooting, lancinating, tight, swollen, and squeezing sensations that are distressing.
 Often this condition makes it hard to bear severe pain and impacts my mobility and quality of life!
 Pain level on a scale of 1 (low) to 10 (high) is @ 7 constantly and goes up to between 8 & 9.
 Have been unable to diagnose, pinpoint the reason, a trigger or cause of the condition, despite consultations with numerous doctors, specialists, medications etc.

3. Performed TEE/Cardioversion on Nov 9th, 2022, for AFIB.

4. Diagnosed with High Grade B Cell Lymphoma during March 2023.
 2 Cycles of RCHOP Chemotherapy: April – May 2023.
 20 sessions of Radiation Oncology sessions (total of 36 GY): June – July 17, 2023
 Chemo induced Neuropathy (CIPN) exacerbating previous Neuropathy due to CVA.

5. PETSCANs, latest on July 5, 2024 - results NO Pathologic Activity within abdomen, pelvis, or the neck soft tissues. Clear & no Lymphoma starting PETSCANs of May 23, August 25, December 26, 2023

6. Current Prescription Medications.
• Dabigatran (Generic Pradaxa) 150 mg, twice a day
• Spironolactone 25 mg, twice a day
• Atorvastatin 10 mg, one a day

7. Other treatments tried to date,
for Neuropathy - Doctors, diagnostic tests, medications, and other treatments, etc.
 Over the last 4+ years (since my stroke), have seen several Neurologists (5), Pain Management doctors (6), Spine Neurosurgeon (1) and Chiropractors (2).
 Have also continued to consult with my PCP, Cardiologists (5), Nephrologist (1), Pulmonologist (1), Integrative / functional medicine doctor (1)
 Have also tried several Physical & Occupational therapists, Acupuncture (including Moxibustion), Yoga, Medical Massage etc.
 Several Diagnostic Tests: X-rays, CT scans, PET Scans, MRIs of Brain, Lumbar & Cervical spines, EMG/Electrodiagnostic studies – Sensory Nerve & Motor Nerve Conduction tests etc.
 Tried Several Medications: Gabapentin, Pregabalin, Naltrexone, BUTRONS (Opioid patch), Duloxetine, CBD oils & creams, medical marijuana etc.

8. Other treatments tried to date,
for Neuropathy - gadgets, creams, lotions, and home treatments, etc.
 Tens 7 Pro therapy electrical impulses to reduce the pain signals going to the spinal cord and brain, which may help relieve pain and relax muscles. Also stimulate the production of endorphins, which are the body's natural painkillers.
 Homedics Therapist Select Prime: High-intensity percussion massager to provide fast and effective self-myofascial release.
 Voltaren Arthritis Pain Gel, a topical nonsteroidal anti-inflammatory (NSAID) gel for my arthritis pain. Blue-Emu Maximum Pain Relief Cream for Arthritis, Muscles & Joints, for my arthritis, muscles, and joints.
 Ancient minerals magnesium lotion, which delivers magnesium, while encouraging healthy skin tissue and protecting the most sensitive of skin.
 Medical marijuana gummies, creams
 CBD Creams.
 Lion’s mane mushroom extract

No mine they believe is autoimmune

It's so easy to blame the vaccine when most of the time it is merely a coincidence. It was big news when during clinical trials for Moderna a small percentage of participants developed Bell's Palsy. People got all excited. But it turned out that percentage was the same percentage as the general population developing Bell's. In other words, they were going to develop it anyways. Sometimes it's impossible to determine what exactly is the cause, and I believe that while the vaccines can have adverse side effects they are getting blamed with medical issues that were going to develop regardless.