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Libtayo (cemiplimab) treatment for SCC...any comments?

Posted by Sue, Volunteer Mentor @sepdvm, Dec 16, 2020

I am looking at Cimiplimab, an immunotherapy for metastatic SCC skin cancer and wondering if any others are undergoing this treatment, side effects, success, etc.

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kathyheidt | @kathyheidt | Sep 29 1:08pm
In reply to @anonymous624 "Unfortunately, after three treatments of Libtayo, my tumor on my parotid gland grew. My oncologist wants..." + (show)
@anonymous624

Unfortunately, after three treatments of Libtayo, my tumor on my parotid gland grew. My oncologist wants me to start on Cetuximab (Erbitux) and radiation. I was scheduled for surgery on October 3rd but after reviewing my recent scans the Tumor Board recommended no surgery due to perineural spread along the facial nerve branches. I am very disappointed and considering second opinions from other surgeons. Anyone have this situation?

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My understanding is that cet works I was on cet, cem and chemo prior to surgery the cet they feel helped though I had a lot of skin side effects but worth it if it stops the spread
I am at Sloane so I did not get second opinion but more information imo always helpful

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anonymous624 | @anonymous624 | Sep 29 1:50pm
In reply to @kathyheidt "My understanding is that cet works I was on cet, cem and chemo prior to surgery..." + (show)
@kathyheidt

My understanding is that cet works I was on cet, cem and chemo prior to surgery the cet they feel helped though I had a lot of skin side effects but worth it if it stops the spread
I am at Sloane so I did not get second opinion but more information imo always helpful

Jump to this post

Thank you! What type of cancer do you have?

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kathyheidt | @kathyheidt | Sep 29 2:22pm

I have squamous cell carcinoma in my maxillary left sinus which spread to my hard palate stage 3/4 I had a maxillectomy but had neoadjuvant therapy before surgery in May then immunotherapy after but had to stop treatments bc it caused pneumonia and inflamed bad neck arthritis

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louisejewell | @louisejewell | Nov 20 11:59am

Checking in after my 8th Libtayo infusion. Wondering when I'll see some good results. I'm still showing some area of concern on my lymph node by my ear where my surgery was. Just had 2 biopsies along my cheek and my ctDNA first test result came in as positive, meaning I have cancer in cells somewhere. My PET scan last week showed no activity other than my head/neck area but I understand that the Signatera test shows cancer way before PET scans. Has anyone had anything similar to this? Would love to hear others Libtayo results.

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