Severe Tortuous & Redundant Colon

Posted by julsnealey @julsnealey, Apr 10 11:41am

I had a colonoscopy for symptoms of unexpected weight loss, severe pain, bloating, early satiety and chronic vomiting with bowel movements. I have had these symptoms for years (15), but they have increased in frequency and severity. The doctor discovered severe tortuosity and redundant colon. He said he had to get help in moving the scope through manually the very tight turns and twists. My question is: What medications have proven successful to management? Best diet? Doctor said it was so bad that surgery may be the best course of action, but they try and avoid that for obvious reasons. Anyone have a success story?

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If this group has an administrator or a moderator I would like him or her to intervene in this thread and make the point that prosletizing one's religion is not appropriate for this discussion. It is one thing to send a prayful hug or ask "God" to watch over a fellow sufferer but quite a different to post a six inch document of proseltyzing one's religous point of view. I, as an atheist, am offended with such behavior. I do not push my beliefs on others here or anywhere else. Let's stick to recitations of our physical situations and asking for help. That is far more help I believe than the bible thumping.

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@mharrison01

Yes, I have suffered w horrible redundant colon symptoms all my life. I in no way was trying to say you suffer because you are a sinner and don’t go to church. We are all sinners and need to believe Christ died for our sins but that has nothing to w going to church. Going to church doesn’t save anyone. I am sorry you suffer so bad and will continue to pray for you.

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mharrison01,
Thank you for taking your precious time to clarify your feelings. I try to send good thoughts through finding the brightest 🌟🌟in the night sky and thinking of wellness to you and others. I live out of a small town, so there's little bright lights ruining the beautiful stars. I wish you well. ShelleyW

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@carolmaeray

If this group has an administrator or a moderator I would like him or her to intervene in this thread and make the point that prosletizing one's religion is not appropriate for this discussion. It is one thing to send a prayful hug or ask "God" to watch over a fellow sufferer but quite a different to post a six inch document of proseltyzing one's religous point of view. I, as an atheist, am offended with such behavior. I do not push my beliefs on others here or anywhere else. Let's stick to recitations of our physical situations and asking for help. That is far more help I believe than the bible thumping.

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carolmaeray,
I took issue with this one too. I am not an atheist but I don't think God hears anything from me...maybe that's why I seem to get more anger and frustration out of my body when I go outside to yell at the universe 💥☄️💥 thank goodness I live out on acreage, so no one has to hear me rant.😡🤯
But it makes me forget, for a moment, that I hate my body.
LOL... I found that throwing coffee mugs at an old steel post, sticking out of the ground away from the house, is quite a good release also.
I hope you have an enjoyable weekend. ShelleyW

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@shelleyw

mharrison01,
Thank you for taking your precious time to clarify your feelings. I try to send good thoughts through finding the brightest 🌟🌟in the night sky and thinking of wellness to you and others. I live out of a small town, so there's little bright lights ruining the beautiful stars. I wish you well. ShelleyW

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I wish you well too. Hang in there!

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@shelleyw

carolmaeray,
I took issue with this one too. I am not an atheist but I don't think God hears anything from me...maybe that's why I seem to get more anger and frustration out of my body when I go outside to yell at the universe 💥☄️💥 thank goodness I live out on acreage, so no one has to hear me rant.😡🤯
But it makes me forget, for a moment, that I hate my body.
LOL... I found that throwing coffee mugs at an old steel post, sticking out of the ground away from the house, is quite a good release also.
I hope you have an enjoyable weekend. ShelleyW

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I too struggle with suicidal thoughts...and I hate the condition my body is in now.. no one around here seems to understand the frustration of going from a healthy person to ..not..I also live out in the country..and (we don't even have but on good ambulance here.. I called for one and they came and couldn't even administer Zofran..had a "barf bag".. I said can I administer myself one..anyway..Gods hears you ..He does..and it's ok to be frustrated.. and yell.. He's a god God and He understands..I hope this helps you to find peace..peace is so hard to come by when you hate your own body..prayers for you

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@mrd

SOB is the clinical term for shortness of breath. A swallow test revealed that I have limited gastroparesis…. The motility of my GI is affected and the X-ray showed how a small amount of liquid has a difficult time getting through the esophagus because my stomach is pushed up into my chest wall. I have asthma and the Giant size hiatal hernia is pressing on my lungs and I’m experiencing SOB. I was belching in my 20s and the mention of a hiatal hernia wasn’t addressed which I only recently learned from the one surgeon is a symptom of the hiatal hernia. So now I’m 70 and will be going for abdominal surgery next month to somehow alter the size of my hiatal hernia. I was symptomatic when I was awakened in the middle of the night with wretched vomiting. “Oh it’s something that you ate”…. An ordinary meal which wasn’t seasoned is something that I ate ??? Been ignored through the years and I’m not getting any younger now. Had a bout of elevated blood pressure over the weekend 187/115 and I’m already on 2 BP medications. Had to go to the ER by ambulance because I’m widowed (tragically) and spent 12 hours back and forth in the waiting room until a bed became available for me. The sign of the times is that the ER is used as a walk in clinic and it’s only going to get worse

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Prayers for you!! I have asthma and the hiatal hernia and I'm widowed (twice) and am 70 just finally diagnosed with tortuous colon after having been to several not so goods doctors and hospitals (I live rural) ..the breakdown of our medical system seems to be horrible.. and you have been thru soo much!! I had to go to ER 14 time in one year.. I had a strange bout of high BP 185/103 2 summers ago.. out of nowhere.. and thought it was a reaction to a flu shot.. and now am on one BP med.. the bed in the hallway is terrible.. I am lifting you up to the Lord in prayer!!

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@shelleyw

standinginfaith, I appreciate your input. On torturous/redundant flexures... I have come to believe that the idiots we were all raised to "trust, because they are so smart ", actually have a class in med school titled DO NOT EVER, EVER TELL PATIENTS ABOUT TORTUOUS/REDUNDANT FLEXURES, YOU ALWAYS WAIT UNTIL THE PATIENT ASKS WHAT IS THIS ON MY CT SCAN?
I have learned that 99.9% of redundant flexures(extra long, loopy large colon) we are born with. The twists may not always be congenital, but definitely can be. This one singular issue has GIGANTIC PROBLEMS in the movement of our 💩💩💩.
Regarding the biblical part, I have no problem with those who get relief from prayer, that God/Jesus loves us all, but we must repent and strive to not be sinners. I was raised in a very loving religious family, it was great for me then. God never gives us more than we can handle....what doesn't kill us, makes us stronger (there are songs about this). Well, I don't feel that way. 17 years ago I was in 2 recreational accidents; ocean and snow. Between the injuries not being taken seriously enough by many drs., because the damage is not easily seen or fixed. This under treatment, for years, has triggered avalanches of problems, the kind you don't connect with injuries. I don't really believe this, but I constantly feel like God must be punishing me for not being good enough for anyone's help.
I have to lie on the dam PHQ-9 form that lots of non mental health professionals insist upon using the form. A GI dr does not need to know that I think of suicide every single day, because of the pain, the pain, and more pain. He doesn't need to know that my cognitive impairment, that I try to hide, got so bad that I had my employee tell my hubby that I was making more and more mistakes than I did after the accidents. That it was getting harder to keep my clients from knowing that I was making mistakes and my employees were fixing them for me and them. I owed an accounting and tax firm, that we had to sell, because I was too stupid to do it correctly anymore. No amount of believing in God is going to give me my smart brain back. I am of no use in anything and reading that I need to repent....for what?? I still appreciate your kindness in trying to help me understand the prior comment. The big hugs are nice too. ShelleyW

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Oh my goodness!! You have been thru soooo sooo much!!!Our medical system is messed up and we are the victims!! You especially seem to have been victimized.. that's what I call it.. my doctors have put me thru so much..finally found a good one..(or better) I am soo very sorry about your situation.. it is extremely disturbing to have one's life changes so drastically.. I was,managing my GI IBSC for years.. until an antibiotic blew a hemorrhage in my stomach..got that healed then more stuff keeps happening..it's so frustrating.. I have struggled with depression all my life.. and the psychiatrist worked me over good.. too many meds..I had to stop it.. I have a good one now..you know a good doctor is so important..I'm just going to lift you up to the Lord ..I can empathize with you even tho my problems seem soo small compared to yours..I agree about "the form".. please don't' feel like God is punishing you (i wrestled with that too) and you are good enough.. I can just tell you are a lovely person who is going thru ..hell on earth.. big warn loving hugs and prayers

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I have suffered with congenital severe constipation all my life. It has gotten worse with age, I’m 65. I have also developer a redundant/tortuous colon. I frequently switch off between taking the higher doses of Linzess, Trulance and Motegrity as they all quit working after I’ve taken one of them too long (1 week to 1 month). Along with these meds I also switch off or combine using lactulose, citrucel and miralax and resort to 8 senna a day when I need to. As I’m sure everyone can relate to, nobody really understands what we are going through and how bad it is. Everyone is convinced they have a solution, either dietary or some type of vitamin or etc. None of these suggestions have ever helped at all until one of my mom’s friends said she wanted me to try these capsules she takes (see the below text she initially sent me). She brought me over about 60 of them to try. I thanked her and skeptically thought to myself, yeah right this will work, ha ha. I’ve been taking them since 9/3/24. Imagine my total shock when they actually worked, I am so excited!!! They have been life changing and I sure hope they continue to work. I recently purchased more—see the below pictures. I take 2 with breakfast and 2 with dinner. My mom’s friend told me you can take however many you need to, her doctor suggested 3 a day but she only needs 2. Her problems aren’t anywhere as bad as mine. I still need to take one of the prescription drugs daily. I’ve been able to go to the bathroom daily or every other day, what a huge change and it’s wonderful to not stress about what I should do everyday. I wanted to share this find with everyone. If you decide to try it I hope it works🤞🏻, I know all our systems respond different. I just ordered some off of Amazon, but you can also order them direct. They’re not sold in stores.

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@standinginfaith

Oh my goodness!! You have been thru soooo sooo much!!!Our medical system is messed up and we are the victims!! You especially seem to have been victimized.. that's what I call it.. my doctors have put me thru so much..finally found a good one..(or better) I am soo very sorry about your situation.. it is extremely disturbing to have one's life changes so drastically.. I was,managing my GI IBSC for years.. until an antibiotic blew a hemorrhage in my stomach..got that healed then more stuff keeps happening..it's so frustrating.. I have struggled with depression all my life.. and the psychiatrist worked me over good.. too many meds..I had to stop it.. I have a good one now..you know a good doctor is so important..I'm just going to lift you up to the Lord ..I can empathize with you even tho my problems seem soo small compared to yours..I agree about "the form".. please don't' feel like God is punishing you (i wrestled with that too) and you are good enough.. I can just tell you are a lovely person who is going thru ..hell on earth.. big warn loving hugs and prayers

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standinginfaith,
Don't ever down play your health situation, it's just as important as any other person's health situation. Your feelings are as valid as anyone else's. 🫂🌟🫂 ShelleyW

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mharrison01,
I understand that for you, faith and God helps with the stress of the pains. For me, it just doesn't help at all. Thank you for your prayer, but we both know he is not going to heal anything in me, it only gets worse and even the doctors get worse, they don't care about my problems, because they can't throw a pill at me and declare me all good. If you really want to pray for me, pray that I will just get to die soon and end all this chaos.
ShelleyW

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