Newest and best long covid recovery treatments?

Posted by lorivwebb @lorivwebb, Sep 10 3:21pm

Has anyone had any substantial or helpful treatment for severe long covid?
Interested to hear any novel therapies being explored. At this point, I am so tired and now have pots and ME with significant symptoms for 2 years.

Looking for some hopeful ideas.

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@margaretamada

I’ve been on Nattokinase Streptokinase combination for several months. Right at about 6 weeks noticed a big improvement in breathing !

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Not heard of this combo…an overcounter supplement? After so many years of LC I think my breathlessness is not respiratory based but as a result of the postural hypotension, high HR etc combo just telling my body ‘ you need more oxygen’ !

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@wilsonanderson

Not heard of this combo…an overcounter supplement? After so many years of LC I think my breathlessness is not respiratory based but as a result of the postural hypotension, high HR etc combo just telling my body ‘ you need more oxygen’ !

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Yes, over-the-counter supplement of the two enzymes. I get it on Amazon and it’s not too expensive.

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@wilsonanderson

Tell us how you get on if you rent one…I could not find anything more powerful than 2.4 atmos to hire / buy in Uk for domestic use, and although there is anecdotal evidence that the home ones even at 1.5 atmos create some relief the real evidence of benefit for LC seeme to be 4+ atmos like the Israeli one and even they then have extra oxygen variation…far to pricey for many of us sadly!

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AVIV clinic was doing 2 ATA. AVIV clinic in Florida is based in Israel. I am going to rent 1.5 ATA with dual oxygen concentrators. See how that works for 3 months.

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@jviper36

AVIV clinic was doing 2 ATA. AVIV clinic in Florida is based in Israel. I am going to rent 1.5 ATA with dual oxygen concentrators. See how that works for 3 months.

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Good luck, hope you get some permanent improvement….please keep us informed how you go on the 1.5 atmos.at home, and your protocol, presumably intending to do it daily, and building up time? Be interested to know how you find it re .claustrophobia etc…that combined with balancing the cost of hire etc has made me reluctant to give it a go! Xx

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I would love to know if anyone has found any relief for dizziness and improved walking? I have been dealing with these problems for over 4 years and am really ready for a change.

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I live in Florida, and was excited to see the post on here about AVIV. I had read about the Israel study awhile ago and the benefits they found with HBOT. Of course AVIV program for some $55,000 is way out of my financial range, plus having to find accommodations for 3 months. I live in Sarasota and started doing local research finding a HBOT center in town. They have plans for different treatments with 30 day plan for $7400. Way cheaper than AVIV, but still a significant expense for someone who is disabled with LC. My LC symptoms are all neurological. I also got fibromyalgia from LC and read that HBOT helps with that as well. Based on the information out there, I’ve made the decision to give it a shot. Once I get a chest X-ray, which they require, I’m hoping to start later this week. After trying just about everything, I’m very hopeful about this. Wish me luck! 🤞🏼

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@lynnryan

I live in Florida, and was excited to see the post on here about AVIV. I had read about the Israel study awhile ago and the benefits they found with HBOT. Of course AVIV program for some $55,000 is way out of my financial range, plus having to find accommodations for 3 months. I live in Sarasota and started doing local research finding a HBOT center in town. They have plans for different treatments with 30 day plan for $7400. Way cheaper than AVIV, but still a significant expense for someone who is disabled with LC. My LC symptoms are all neurological. I also got fibromyalgia from LC and read that HBOT helps with that as well. Based on the information out there, I’ve made the decision to give it a shot. Once I get a chest X-ray, which they require, I’m hoping to start later this week. After trying just about everything, I’m very hopeful about this. Wish me luck! 🤞🏼

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Plz let us know how you do.

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@lorivwebb

I’ve had pots for a very long time. Fludrocortisone helps push my pressure quickly but I need a beta blocker for my heart rate. Unfortunately, after covid my beta blocker stopped working effectively and I’ve yet to find a med that helps the extreme Brady/tachy. I’m very well researched in pots though if you need any advice. I’m happy to help. Not everyone is as hard as me with stubborn symptom mgmt.

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I use Metropol. I take a 50 mg time released tab and have 25 mg one as well I use if it start to act up prior to retaking my 50 mg again. That is daily. I have SVT. (Super ventricular technic Cardia). Not sure if that was spelled correctly. I have had this since 2008. Been by ambulance to ER about 6 to 8 times. They have to restart my heart with an injection or paddles to get it back to its normal rhythm. That’s always fun. The Metropolol helps but I still get quick spells daily. I can typically stop them myself. Have they told you about holding your breath and pushing down??

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@wilsonanderson

Not heard of this combo…an overcounter supplement? After so many years of LC I think my breathlessness is not respiratory based but as a result of the postural hypotension, high HR etc combo just telling my body ‘ you need more oxygen’ !

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I think my breathing is too. Hi, I am Kelly. I’ve been suffering since 2020 but more early 2021. Two bad cases of Covid. Diagnosed Long Covid 2021. My breathing mainly gets bad with short bits of movement which makes my heart rate increase.

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@lynnryan

I live in Florida, and was excited to see the post on here about AVIV. I had read about the Israel study awhile ago and the benefits they found with HBOT. Of course AVIV program for some $55,000 is way out of my financial range, plus having to find accommodations for 3 months. I live in Sarasota and started doing local research finding a HBOT center in town. They have plans for different treatments with 30 day plan for $7400. Way cheaper than AVIV, but still a significant expense for someone who is disabled with LC. My LC symptoms are all neurological. I also got fibromyalgia from LC and read that HBOT helps with that as well. Based on the information out there, I’ve made the decision to give it a shot. Once I get a chest X-ray, which they require, I’m hoping to start later this week. After trying just about everything, I’m very hopeful about this. Wish me luck! 🤞🏼

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Best of luck. Would love to know how it goes. I too have terrible fibromyalgia.
(ME). I also have fatigue that unbelievably. I have to use a walking device and can only go 30 feet or so and have to sit. My heart rate goes high and I can’t breathe but my oxygen doesn’t drop much. I stay about 95-96. The following day I am in bed all day. Sometimes 2 or 2 days depending on how long I stay out. I also have two knees that need to be replaced, spine damages that need surgery and two hips with bursitis. I swell now into my neck. They won’t operate until I loose weight. I have gained 140 lbs from LC damages. I hate this mess.

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