question re: vaccine and treatments for debilitating fatigue

My daughter had CFS. It lasted 18 years. I know that is not what you wanted to hear. The good news is it did go away. She needs to be very careful to not overdo, but she has done things like backpack the Pacific Crest Trail, 286 miles from the Columbia River almost to Canada.
What treatments have been helpful? She takes modafinil or brand name Provigil. She takes a smaller dose than offered. Smallest tablet offered is 100 mg. 70 mg/day is what she finds helps her greatly. If you try modafinil, I'd suggest you start with something as small as 12.5 mg/day (use a pill splitter) or 25 mg/day and stay on whatever dose you are trying for a couple of weeks before making any changes, unless even that amount is too much. But I'm not a doctor, so don't go by my suggestion w/o seeking medical input. Good luck to you.

Hi. I have LC fatigue. Nothing helps it. It is now proven that exercise can make it worse.
Take a look at these.
https://www.npr.org/sections/health-shots/2024/01/09/1223077307/long-covid-exercise-post-exertional-malaise-mitochondria

Thank you, @joanland.

@kellysmail2016 Yes, thank you. We definitely need more research and funding for Long COVID.

Amen to that!!! I think if you can prove you have it, disability should be approved as well. This is not self inflicted. I worked since I was 13. Now it’s been 12 months with no pay (8 since I applied). Went from 12 hours a day to 5 hours a day to 15 hours a week to 0. I tried. Over 3 1/2 years. Still waiting on answer.

We, I assisted my daughter and used our family attorney, had to file suit against the government because they denied her SSI benefits for CFS. The benefits were awarded the day before we were to go to trial, and the trial was to be held in Federal court, in a city which was 120 miles away. They didn´t make it easy to get benefits.

Oh God, that’s terrible and with a lawyer. Plus she’s a baby. I’m 38 years her senior so she at that young age should not have had those issues. I throw every medical receipt, message, scheduling of an appointment at my attorney to add to their file. Plus all the new Docs I find from well known medical universities stating what long Covid does. That it has been now proven it’s a disability. Plus I have 5 other issues that say disabled. Crossing fingers there. I need it now!!

On the well-established theory that micro clots in the blood are the primary source of covid-related fatigue, I took the blood thinner Plavix (75 mg. daily) and the supplement Nattokinase (4000 units daily). My fatigue all but disappeared, but then returned after several months. You might try the same protocol and see if you have luck.

Hi Joanland,
I just wanted to let you know I just received 5 envelopes from SSDI. They are requesting more info on previous employment and medical and requesting that I meet with one of their psychologist, not sure why, but could be due to brain fog. I have to contact my lawyer tomorrow and see what I need to do. Just thought I would let you know they have replied after 7 months. Thanks, Kelly

The best to you as you jump through their hoops. I hope all goes well. Taking 7 months seems extremely long, but not, unfortunately, unheard of.