Existing kidney denied because it wasn't Mayo transplant

@dhozarksmo, I hope your appointment went well.

Mayo is the best hospital anywhere (and I have been in several.) We have been here in Rochester since Sept. 3. Numerous tests were done and it was decided that the old kidney transplant had to come out.
The surgery was the 12th and I was discharged today the 15th.
We have to stay for a few more days and have followup appointments.
Surgery was done by Dr. Mikel Prieto and team. Dr. Mireille El Ter and Dr. Andrew Bentall were transplant doctors.
Everything went so well which is not the norm for me. So blessed to be here. Words can't express how we went from months of medical incompetence and frustration to MAYO excellence.

@dhozarksmo Congratulations on your successful 2nd kidney transplant or was it just the removal of the 1st old one? I too, had Dr Mikel Prieto for bilateral simultaneous nephrectomy and living donor transplant, and Dr El Ters, and Dr Bentall. I saw many other team members during 1st month follow up. Mayo transplant team is the best IMHO. If you need treatment or surgery in the future for another condition and have it at Mayo, the transplant team follows you as well. They are invested in keeping your new kidney functioning and keeping you well. 🙂

@jennifer0726 Hi Jennifer, I'm coming to Rochester in mid-November for my kidney transplant evaluation. It looks like I'll have the same team as you - if accepted. You mentioned your one-month follow-up. Do you know what to expect in terms of subsequent follow-up visits? Frequency? Duration? I live in Dallas and it's a long walk. Thanks!

@dhozarksmo. I'm happy your surgery went well.

@davem Hi Dave, my kidney tx included a bi-lateral nephrectomy at the same time which is a much bigger surgery, so I had to stay in Rochester for about a month. Some stay a shorter time. I was going into see the team almost daily during that month, but not usually on weekends. After I went home, I had frequent labs at home and results or test kits would be sent to Rochester. I had to return to Mayo at 4 months which included a kidney biopsy, and yearly after that. Kidney biopsies on years 1.2.4, and I think year 10. Not sure if I will need more biopsies after that, but annual visits for sure. The local labs eventually went to every three months. I will be at Mayo in mid Nov. as well for my 4 year check and biopsy. I usually travel on Sunday, tests Mon & Tues, go home Wed. Congratulations on getting your tx evaluation at Mayo! Who is your coordinator? I had Shannon and she was wonderful! Do you have a living donor?
Jennifer

I had nephrectomy of first kidney transplanted in 2001. I got a rather rare infection in it and it had to go.
So glad I came here as numerous other specialists either. Said there was no problem or that they couldn't do anything for me. 2019 transplant is doing well! Hopefully I'll have some smooth sailing for a while.

@dhozarksmo I am so happy Mayo was able to help you!

Jennifer, Your response was so helpful. I'm happy to see that it is/can be pretty manageable. Thank you! I'm not sure who my coordinator is yet. Dr. Bentall sent the referrals for my 21 appointments. I have had three offers from living donors. While I don't know how I feel about the whole gestalt - emotion, guilt, selfishness, impact on someone else's life for my benefit - I know I am incredibly lucky to have that support, however it plays out.
-- Dave