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PKD Transplants: Did you remove your second kidney?

Posted by stephanierp @stephanierp, Feb 8, 2022

I am two years post kidney transplant and about to schedule the removal of my second polycystic kidney. I currently experience flank pain (not intolerable) but no other symptoms (no High BP or infection). Do any of my PKD transplant peeps have any experience with this - both keeping the kidney or removing it - that might be helpful in the decision-making process?

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | Mar 26, 2022

Here is a discussion that I want to share with you from the Just Want to Talk Group.
Who will you honor on National Doctors’ Day?
https://connect.mayoclinic.org/discussion/who-will-you-honor-on-national-doctors-day/
@jennifer0726, @stephanierp - I can see in your posts that you might have someone worthy of mentioning.

REPLY
ladydidehart | @ladydidehart | Mar 27, 2022
In reply to @jennifer0726 "Congratulations! Dr Prieto removed both of my PKD kidneys at transplant. He is the best! It..." + (show)
@jennifer0726

Congratulations! Dr Prieto removed both of my PKD kidneys at transplant. He is the best! It all was done laparoscopically with the larger incision down low so he is used to doing them from that area. So wonderful to breathe easier afterwards. I am happy for you!

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He removed both of mine at transplant as well. I’m so happy to have them gone! Dr Prieto and the entire Mayo staff are amazing.

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1 reply
aba | @aba | Mar 28, 2022

Can kidneys problem cause diabetes?

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Mar 28, 2022
In reply to @aba "Can kidneys problem cause diabetes?" + (show)
@aba

Can kidneys problem cause diabetes?

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@aba, I want to share information from the National Kidney Foundation.. Here are links about the concerns that you mentioned.

More than 34 million Americans have diabetes, the leading cause of kidney disease. Learn more about diabetes and your kidneys.
https://www.kidney.org/atoz/atozTopic_Diabetes
Causes of Kidney Disease:
https://www.kidney.org/atoz/content/kidneydiscauses
Aba, are you or a loved one experiencing kidney problems related to diabetes?

REPLY
kayb | @kayb | Apr 13, 2022
In reply to @stephanierp "I wanted to report that I had my second kidney removed a few weeks ago at..." + (show)
@stephanierp

I wanted to report that I had my second kidney removed a few weeks ago at Mayo with Dr Prieto. I was amazed by how quickly I recovered! Dr. Prieto used an existing c-section scar, as his point of entry, not particularly handy for him, I'm sure, but so much better for my recovery. I had minimal pain for 4 days and was managing pain with a few Tylenol within 3 days of surgery. I feel so much better not having any diseased kidneys in my body. I can breathe again. (PKD often feels like being pregnant, where you can breathe but everything feels squished). Thank you all, for helping me gain the courage to go through with something that was nowhere near as difficult in reality, as my mind had built it up to be:)

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So glad you went through with removal and also had a good experience!!!. Feels good not having everything squished! I have less pain 🥳

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kidneybean1 | @kidneybean1 | Sep 15 4:40pm
In reply to @ladydidehart "He removed both of mine at transplant as well. I’m so happy to have them gone!..." + (show)
@ladydidehart

He removed both of mine at transplant as well. I’m so happy to have them gone! Dr Prieto and the entire Mayo staff are amazing.

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Do you live in Minnesota?
I live in NYS.

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