Newest and best long covid recovery treatments?
Has anyone had any substantial or helpful treatment for severe long covid?
Interested to hear any novel therapies being explored. At this point, I am so tired and now have pots and ME with significant symptoms for 2 years.
Looking for some hopeful ideas.
Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.
I cannot find one in NC. They only have them here for people that have had burns. I’ve tried.
I relate. Continuously getting worse over 2 years.
Looks like I may get in to this study!
I would give fludro a good 2-4 weeks to really get In your system and drink a lot of lmnt or salt with it.
Tell us how you get on if you rent one…I could not find anything more powerful than 2.4 atmos to hire / buy in Uk for domestic use, and although there is anecdotal evidence that the home ones even at 1.5 atmos create some relief the real evidence of benefit for LC seeme to be 4+ atmos like the Israeli one and even they then have extra oxygen variation…far to pricey for many of us sadly!
My BP problem is the combined hyper/ hypo tension within any 24 hours: high BP at rest during day
but hypo on standing, so giving a specific drug that raises the low BP would then make the hyper tension even higher… Over night my BP seems ok, and what I don’t know is whether my HR suddenly rises during the day, for eg putting my coat on, indicates my BP has plummeted too, as this has only been captured on the tilt table test. I assume when I feel suddenly drained, have to sit/ lie down, that it does but I try as much as possible to make sure I catch it before I actually faint…horrid ( and embarrassing!). Luckily I have a very understanding husband by my side…
Sorry I only part replied to yours…I was doing well with the extra pint of water just before I started the day, or went out, but then my Gp reinstated ( the Falls consultant who diagnosed the PH had removed) a diuretic for the hypertension…so I’m just confused by medical interference.
How often do you go?
This is a very common symptom, from what I’ve seen in the Facebook support groups and it’s what happens to me too although I don’t go too high. But my heart does this, resting it is like 45-48 then I stand and it’s 95. It’s awful. We are stuck between a rock and hard place. I believe these wild swings are what give my body this severe fatigue I experience.
I think even with your 40 point HR swing , 45-95 bpm,
it would be classed as ‘normal’ ie under 100, in the UK, though might be causing your fatigue, it wouldn’t be treated. Though you might find self treatment for PoTS might help you. Unfortunately my Bp is ‘normal’ at rest but can easily be in 70-99 range, yet shoots up to 135 with minor ‘exercise’ eg putting coat on, a brief trip upstairs to toilet…. I haven’t found anybody on various LC forums who have, or solved, the problem of hypertensive BP at rest, but hypotension on standing, which is what seems to drive my high HR.