What can be done to help with hyperacusis?

Posted by wayfarer @wayfarer, Mar 10, 2019

Hyperacusis is a rare hearing disorder. Normal sounds are amplified to the point of becoming painful. Have been to 2 ENTs, had a brain MRI, had 5 audiology tests, took prednisone meds, and tried a hearing aid. Nothing helped. Was told to learn to live with it. Does anyone have a helpful suggestion?

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I'm a speech-language pathologist. I recently read about a grade student being asked to maintain a level and type of sound that is not aversive while at home, and even overnight. Play soft music that you enjoy to get your ears used to sound. It's worth a try.

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@knitmom81

I'm a speech-language pathologist. I recently read about a grade student being asked to maintain a level and type of sound that is not aversive while at home, and even overnight. Play soft music that you enjoy to get your ears used to sound. It's worth a try.

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@kniwmom81 that is often the advice given- for tinnitus and hyperacusis. I bought a gizmo with 20 different ambient sounds and played it overnight. When I got up I had vertigo and no sense of balance. My ear also hurt. It is known that this ktusind of retraining harms some and helps some.

Last night I dozed for a few hours with a movie on my computer. That doesn't bother me, not sure why.

I generally try not to avoid sound/noise because I know that avoidance can make things worse. Leaf blowers are a definite exception! The sound that is tormenting me now is of the frequency and quality that really affects me and it is not within my control. I may sell my new condo to get away from it even though it will cost me a bundle.

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@dloos Klonopin is a lifesaver! I truly believe it helps me avoid afib as well as relaxes the muscle spasms from my spinal fractures. And helps with sleep. All purpose! I cannot tolerate most meds so am grateful for it.

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@windyshores

@dloos Klonopin is a lifesaver! I truly believe it helps me avoid afib as well as relaxes the muscle spasms from my spinal fractures. And helps with sleep. All purpose! I cannot tolerate most meds so am grateful for it.

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I’m the same. I have side effects from most drugs. It keeps me from totally losing it many days. It’s very calming and allows me to handle my debilitating symptoms better.

A lot of doctors don’t want to prescribe it, but especially at low doses I really don’t think it’s a problem.
Thank God my doctor agrees.

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@dloos

I’m the same. I have side effects from most drugs. It keeps me from totally losing it many days. It’s very calming and allows me to handle my debilitating symptoms better.

A lot of doctors don’t want to prescribe it, but especially at low doses I really don’t think it’s a problem.
Thank God my doctor agrees.

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I only take 1/4 of the lowest dose pill. But yes doctors don't prescribe many at a time. I show them my low usage and actually wish I could use it more often (but not at a rate that causes addiction).

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@windyshores

@kniwmom81 that is often the advice given- for tinnitus and hyperacusis. I bought a gizmo with 20 different ambient sounds and played it overnight. When I got up I had vertigo and no sense of balance. My ear also hurt. It is known that this ktusind of retraining harms some and helps some.

Last night I dozed for a few hours with a movie on my computer. That doesn't bother me, not sure why.

I generally try not to avoid sound/noise because I know that avoidance can make things worse. Leaf blowers are a definite exception! The sound that is tormenting me now is of the frequency and quality that really affects me and it is not within my control. I may sell my new condo to get away from it even though it will cost me a bundle.

Jump to this post

Perhaps movies in the background are a better option for you. Thanks for your input, I have a family member with this but I don't live with her.

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