Thyroid and gout

I have the same issue still taking Camzyos and my right feet and leg is still moderately swelling. I control it this way: reduced all food not to add any salt or just very little salt. Reduced my protein (milk, meat, chicken, eggs... Why? all of that comes with lots of salt so they can preserve it and sell it at the stores). I take 2 to 3 miles walk every day that reduces the uric acid when I sweat from my body so the feet and leg will not swell that day. I lost total of 20 pounds in 3 months. I eat more fruit and fresh vegetables. I do NOT eat any processed food for it comes with tons of salt.
Talk to your doctor about it since I may be an isolated case that controls it that way. I know the frustration but I know the metoprolol 150 mg a day I take causes the gout to be worst. Not too much I can do about that. As long as I eat healthy and less food things get better on a day by day basis.
Good luck and please talk to your doctor.

Thank you, I appreciate your input. It’s always helpful to listen to someone else's story. I am glad you are doing better. We are all just trying different things. Camzyos does help, but some of the side effect can become serious.. Sometimes don’t know which is worst. I hear some people go off of Camzyos because to many side effects. We as a patient need more input and communication. An possibly help people work through it. Rather than saying it’s not a side effect and being sent to different doctors. With their specialty’s. And again they don’t know anything about obstructive hypertrophic cardiomyopathy .

I agree. Very little help with camzyos side effects or reporting of them. I was on camzyos for four months last year and had to stop due to debilitating headaches. After stopping, my hocm symptoms worsened to where I just had to be hospitalized for atrial fibrillation and my bnp level was over 16,000. After cardio version, heart shock, my heart stabilized but now I’m on forever blood thinner and anti arrthymic drug. They do say camzyos can cause heart failure and test for it while your on it, but what about when you stop. Is there any testing or follow up of people after they stop taking it?

Great, we are all talking. I wish you well and hope that people can respond to your question. We all need honest support. And the more people that respond and give their info. Will be helpful to the people that are going through it. The more information maybe can slow down the seriousness of side effects, knowing ahead of time. Also when going off of drug . We all want to feel better. A not worry about complications, which sometimes cannot be avoided.

There is a new HCOM medication with a lot LESS side effects called "Aficamten" which is an investigational product and is not approved by any regulatory agency for now but I know they were in the final stages of trial to hopefully have it FDA aprooved. Only the Cardiologists specialized in Obstructive Hypertrophic Cardiomyopathy (HCOM) now if the "Aficantem" is approved or not. I suggest to talk to your Cardiologist who is specialized in HCOM. Talk to them till you find out when "Aficamten" is approved or not. I hope this helps. I am still taking Camzyos for 6 months now with almost no side effects. Good luck to everyone.