NASH and cirrhosis of the liver.

I am not trying to use this as a "money-maker" I wish everyone wouldnt automatically assume that. That is just a place where my story is told from beginning of diagnosis to current and its easier than typing it all out again. Can you understand that? It just takes time to read my updates and story but its all there.

Hi Rosemary, I haven't talked with you for a while and I am not sure how to get to your page. I posted a while back that my doctor said I was stage 4 fibrosis, which is cirrhosis. However, she told me last month that I was stage 4 cirrhosis but my liver was compensated. I am scheduled for another EGD on March 16th. My tests are all running the same so what makes it change to stage 4 cirrhosis instead of, maybe, stage 1 cirrhosis. She said there were a number of factors such as portal hypertension and gastric varices. Does this make sense and am I understanding correctly. Thank you in advance for your help.

i would also like to know the answer to this @mollyb1968 . How old are you? What tests have they done? What caused your liver damage?
and where can we find Rosemary's responses to our questions?

Hello @mollyb1968 and @mariah1203,

You can find Rosemary's comments and answers by clicking on her @ name: @rosemarya.
You will be directed to her Connect page, and there, under 'Contact me' you can click on the following:

or you can follow me on the site to add me to your contact list.
Yes, I'll follow Rosemary, Mentor @rosemarya

You can also view her responses if you scroll up or down through this discussion.
I hope this helps.

Hello @mariah1203. I removed the link for your gofundme page according to our community guidelines. If you would like to share your story, might I suggest copying & pasting it in to this discussion? Or, if you have a blog, please feel free to share the link to that in the Connect community as well.

why do people automatically assume i joined just to make money? its simply a link that tells what's wrong with my health so i don't have to type it all out and explain it over again on here. does that not make sense to you ? follow your guidelines if you have to but from what i've experienced this group is was to under-knowledged for me to be able to communicate with. if you are an admin on a cirrhosis site you should know what bun and creatinine are . seriously. But thanks for letting me know you deleted it. its simple. people are so jealous. no want truly wants to see anyone else get money or do better. they're jealous. and no hard feelings but I'm 29 and dying of liver disease. what's wrong with trying to better myself and save my own life potentially? i have a 7 year old. Sleep well best of wishes. thanks!

how do you not know what those numbers are about? i dont understand what this site is actually for?

Hello mariah1203. I have had diabetes for almost 20 years which led to NASH which led to cirrhosis of the liver. I am 68 They found the liver disease due to liver enzymes being high for a long time. I had to have a colon resection in May of 2016 at which time they did a liver biopsy. I have had ultrasounds and ct which showed portal hypertension, gastric polyps and gastric varices. When I first posted, Maryann talked to me and gave me much comfort and information. I am going to follow the above link to reach her. Good luck in finding answers. mollyb1968.

Hi Mariah,
Mayo Clinic Connect is an online community where patients can share experiences and ask each other questions about any health issue. You can read more about Connect here https://connect.mayoclinic.org/about-this-community/ and about the role of moderators and patient volunteer mentors https://connect.mayoclinic.org/about-our-moderators-and-mentors/. We know that you did not join Connect to make money. We hope that you joined to ask questions of other patients, and to feel less alone. That's why we are here. You are on a hard journey and I'm glad that Rosemary and Molly have reached out. But it is beyond the capacity of a patient to patient community to provide a diagnosis.

Understanding your numbers is best discussed with health care professionals. It must be so frustrating not to get answers when you know something is wrong. You mention that your insurance doesn't cover care at Mayo Clinic. Have you investigated Mayo Clinic's Charitable Care and Financial Assistance? Here is more information http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

Hello, @mollyb1968 and @mariah1203, I usually try to post my reply right below your question. But I don't always succeed! Thank you, @kanaazpereira, for helping out on this.
Rosemary