Essential Thrombocytosis symptoms

I decided to go naturally. I’m not saying that it will work for everyone- seems to be working for me.
I had an allergic reaction to Hydroxyurea. Chemo pill specifically required for ET (Essential Thrombocytosis)
I found a natural supplement compared to Hydroxyurea, Resveratrol. 1500 mg a pill. I take 2.
My Dr than suggested Anagrealide.
Which will cause fainting, and dizziness. I already at some points experience these symptoms. I’m told is a blood pressure thing.
So!?- if I’m already lightheaded/dizzy. Why would I take a pill that will increase this, and might/could possibly faint.

I searched things to do naturally. I’m found Resveratrol.
Along with Vitamin E- which is a natural blood thinner- and an anti-coagulant.
Both taken together works good for me.

Your blood is a protein. Meat (red) steaks, hamburger, etc are also a protein.
The Mediterranean diet is recommended for people with ET. You want to do anything and everything to get that platelet number down.
You don’t want to increase it.
Leafy greens and vegetables are great source to aide in bringing that number down.
Water! I drink a gallon a day. Not saying you have too.
But water isn’t a great source to flush everything out of your system. Plus, it’s great for your kidneys.
Also- Cranberry juice. Drink regularly.
Salmon, shrimp. Etc. won’t increase your plates counts.

Hi! Are you still taking Arnica? And how are you doing?

Hi. Please tell me in what form are you using Arnica and how is it being helpful.
A few years ago I had some pain cream with Arnica and it work well on a knee injury. Thanks

Hi Claire, I’m taking a homeopathic arnica 6c, four drops 4x a day in place of baby aspirin….
I won’t be able to do a blood test till February.
Wanted a more holistic blood thinner than aspirin
and arnica is good for blood circulation and also helps heal emotional trauma. Please consult a homeopathic specialist for the correct dosage as there are different ways to approach it. My platelets are over 1,000,000 so this is me doing what I can in a natural way!

Hello Lynn, I was diagnosed during a spine surgery with platelets in the mid 700s in 2018. I went through all chemos available resulting in most major side effects, skin cancers, nausea, itching, etc. I totally quit all chemo for 3 months to give my system a break from chemicals. I then had a hematologist recommend mini dose of Jakafi, 5 mil twice a day, beginning January 2022. Side effects dwindled to slight anemia and fatigue, although maintaining 10% weight gain, but blood platelets have dropped to within normal range at 415. I'm 84, with metal throughout my body from injuries including a broken spine with rods. I now feel great and plan on going to the century mark.
Run this by your physician and the best of luck in your prognoses.

I am dealing with my feet. They feel tingly and numb. I am so afraid it is neuropathy caused by ET.. I have had ET since 2022. My hematologist put me on a daily baby aspirin and two 500 mg hydroxyurea. My platelets stay around 400 to 500. One concern I have is my red blood cells are very low. I am extremely tired and weak. Looking at my CBC seems to indicate that I am anemic but the doctors don’t seem to be concerned. Yes, I am lightheaded and have some dizziness also.

Hello Lynn, I was diagnosed during a spine surgery with platelets in the mid 700s in 2018. I went through all chemos available resulting in most major side effects, skin cancers, nausea, itching, etc. I totally quit all chemo for 3 months to give my system a break from chemicals. I then had a hematologist recommend mini dose of Jakafi, 5 mil twice a day, beginning January 2022. Side effects dwindled to slight anemia and fatigue, although maintaining 10% weight gain, but blood platelets have dropped to within normal range at 415. I'm 84, with metal throughout my body from injuries including a broken spine with rods. I now feel great and plan on going to the century mark.
Run this by your physician and the best of luck in your prognoses.