Along the same lines of COPD. Has anyone heard of the newly FDA approved drug Ensefentrine for COPD by Verona Pharm? It is in nebulized form to help decrease secretions associated with COPD. Launch date was reportedly to be in September however their Web-site states that it is now available. Would like to hear or see some feed-back on possible users and their experiences.
Along the same lines of COPD. Has anyone heard of the newly FDA approved drug Ensefentrine for COPD by Verona Pharm? It is in nebulized form to help decrease secretions associated with COPD. Launch date was reportedly to be in September however their Web-site states that it is now available. Would like to hear or see some feed-back on possible users and their experiences.
In discussing it several days ago with my awesome pulmonologist I decided not to use Ensifentrine. She went over all the info from the drug company and it can’t be used with antibiotics so if you have an exacerbation you must stop using it. As with all drugs there are other side effects. As well as other drug interactions. And having your liver evaluated every few months. So I’ll stick with the Roflumilast & albuterol & Breztri.
In discussing it several days ago with my awesome pulmonologist I decided not to use Ensifentrine. She went over all the info from the drug company and it can’t be used with antibiotics so if you have an exacerbation you must stop using it. As with all drugs there are other side effects. As well as other drug interactions. And having your liver evaluated every few months. So I’ll stick with the Roflumilast & albuterol & Breztri.
You do have an awesome Pulmonologist! Is she taking new patients? :)? I have been rocking along with Dupixent when gradually over the past several months my secretions have significantly increased. Not sure what flipped the switch on that! I, also am on Albuterol and Breztri, and Dupixent since 11/23 after valve placement. To my understanding, ensifentrine is an enzymatic like Daliresp but just administered via nebulizer. Not crazy about taking new drugs until they get some post market reviews so thought why not try Daliresp. I am waiting for a CT chest for follow-up to see if that reveals anything. More than likely will decide to return to Duke and the Interventional Pulmonolgy group for guidance. Thank you so much for sharing your information. I don't come across too many that actually have a feel for the medical side of the disease.
You do have an awesome Pulmonologist! Is she taking new patients? :)? I have been rocking along with Dupixent when gradually over the past several months my secretions have significantly increased. Not sure what flipped the switch on that! I, also am on Albuterol and Breztri, and Dupixent since 11/23 after valve placement. To my understanding, ensifentrine is an enzymatic like Daliresp but just administered via nebulizer. Not crazy about taking new drugs until they get some post market reviews so thought why not try Daliresp. I am waiting for a CT chest for follow-up to see if that reveals anything. More than likely will decide to return to Duke and the Interventional Pulmonolgy group for guidance. Thank you so much for sharing your information. I don't come across too many that actually have a feel for the medical side of the disease.
Do you have chronic bronchitis? I did% I only ask because when discussing clinical trial with her, she advised me to go to Temple in Philly to see if I qualified for RheOx using thermal wand or the RejuvanAir using liquid nitrogen to “zap” the mucous plugs, I qualified
for RheOx and had it done in June last year. It’s a blind test but my pulmonologist is pretty sure I got the real one because my lungs sound great. It’s a year trial and I’ll know in June. Since you go to Duke they have clinical trial for COPD , too. Btw both of the procedures are available in Europe already.
Do you have chronic bronchitis? I did% I only ask because when discussing clinical trial with her, she advised me to go to Temple in Philly to see if I qualified for RheOx using thermal wand or the RejuvanAir using liquid nitrogen to “zap” the mucous plugs, I qualified
for RheOx and had it done in June last year. It’s a blind test but my pulmonologist is pretty sure I got the real one because my lungs sound great. It’s a year trial and I’ll know in June. Since you go to Duke they have clinical trial for COPD , too. Btw both of the procedures are available in Europe already.
Actually they are doing clinical trials for that where I live...my pulmonologist is involved. Unfortunately I did not meet the criteria because I had the valves inserted. Yes! I do have Bronchitis as well with the COPD...that's whats killing me! On top of all that about 10 days post valve placement I developed unexplained vertigo and have been playing patty-cake with ENT and Neuro (if you can get an appt) for 8 months now. Unfortunately, I am a well-seasoned Nurse who has been a Director of Nurses for over 20 years and so very frustrated at the lack of access to good quality care. I know I must sound crazy but I'm not. You can see why I am seeking medical attention elsewhere! You are too kind to listen. Thank you!
Actually they are doing clinical trials for that where I live...my pulmonologist is involved. Unfortunately I did not meet the criteria because I had the valves inserted. Yes! I do have Bronchitis as well with the COPD...that's whats killing me! On top of all that about 10 days post valve placement I developed unexplained vertigo and have been playing patty-cake with ENT and Neuro (if you can get an appt) for 8 months now. Unfortunately, I am a well-seasoned Nurse who has been a Director of Nurses for over 20 years and so very frustrated at the lack of access to good quality care. I know I must sound crazy but I'm not. You can see why I am seeking medical attention elsewhere! You are too kind to listen. Thank you!
I DON’T think you’re crazy. I live in the metro NYC area and my primary, pulmonologist, cardiologist & retina Dr are all independent Docs with a very high standard for seeing their patients asap. Only a day or 2 to get in to see them.
I’m moving in the new year to SC but have made plans to fly back every 3-6 months to see each of them.
God bless praying healing & hope for you
No I have not used the nebulizer as it doesn't allow to me to questimate exactly what and how much secretions are being produced. Sounds gross, I know but I'm very much a numbers/outcome person......guess it's the nurse in me. It's just a pain but not painful. It's strange though that my O2 sats can be in the 96-97's, which is great, but its very hard to inspire....I can feel the inflammation across the bronchial area of my chest.
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Along the same lines of COPD. Has anyone heard of the newly FDA approved drug Ensefentrine for COPD by Verona Pharm? It is in nebulized form to help decrease secretions associated with COPD. Launch date was reportedly to be in September however their Web-site states that it is now available. Would like to hear or see some feed-back on possible users and their experiences.
is anybody using homeopathy treatment ?
In discussing it several days ago with my awesome pulmonologist I decided not to use Ensifentrine. She went over all the info from the drug company and it can’t be used with antibiotics so if you have an exacerbation you must stop using it. As with all drugs there are other side effects. As well as other drug interactions. And having your liver evaluated every few months. So I’ll stick with the Roflumilast & albuterol & Breztri.
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1 ReactionYou do have an awesome Pulmonologist! Is she taking new patients? :)? I have been rocking along with Dupixent when gradually over the past several months my secretions have significantly increased. Not sure what flipped the switch on that! I, also am on Albuterol and Breztri, and Dupixent since 11/23 after valve placement. To my understanding, ensifentrine is an enzymatic like Daliresp but just administered via nebulizer. Not crazy about taking new drugs until they get some post market reviews so thought why not try Daliresp. I am waiting for a CT chest for follow-up to see if that reveals anything. More than likely will decide to return to Duke and the Interventional Pulmonolgy group for guidance. Thank you so much for sharing your information. I don't come across too many that actually have a feel for the medical side of the disease.
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Helpful -
Hug
1 ReactionDo you have chronic bronchitis? I did% I only ask because when discussing clinical trial with her, she advised me to go to Temple in Philly to see if I qualified for RheOx using thermal wand or the RejuvanAir using liquid nitrogen to “zap” the mucous plugs, I qualified
for RheOx and had it done in June last year. It’s a blind test but my pulmonologist is pretty sure I got the real one because my lungs sound great. It’s a year trial and I’ll know in June. Since you go to Duke they have clinical trial for COPD , too. Btw both of the procedures are available in Europe already.
Actually they are doing clinical trials for that where I live...my pulmonologist is involved. Unfortunately I did not meet the criteria because I had the valves inserted. Yes! I do have Bronchitis as well with the COPD...that's whats killing me! On top of all that about 10 days post valve placement I developed unexplained vertigo and have been playing patty-cake with ENT and Neuro (if you can get an appt) for 8 months now. Unfortunately, I am a well-seasoned Nurse who has been a Director of Nurses for over 20 years and so very frustrated at the lack of access to good quality care. I know I must sound crazy but I'm not. You can see why I am seeking medical attention elsewhere! You are too kind to listen. Thank you!
Do you use the nebulizer with saline for the bronchitis?
Yes I understand. When I went to qualify their first question was do you have any implants?
I DON’T think you’re crazy. I live in the metro NYC area and my primary, pulmonologist, cardiologist & retina Dr are all independent Docs with a very high standard for seeing their patients asap. Only a day or 2 to get in to see them.
I’m moving in the new year to SC but have made plans to fly back every 3-6 months to see each of them.
God bless praying healing & hope for you
No I have not used the nebulizer as it doesn't allow to me to questimate exactly what and how much secretions are being produced. Sounds gross, I know but I'm very much a numbers/outcome person......guess it's the nurse in me. It's just a pain but not painful. It's strange though that my O2 sats can be in the 96-97's, which is great, but its very hard to inspire....I can feel the inflammation across the bronchial area of my chest.