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Research on COVID 19 vax causing Essential Thrombocythemia?

Posted by dressler02 @dressler02, Jul 2, 2022

I’ve seen very little about what causes a genetic corruption that leads to iessential Thrombocythemia. However i’ve been going back and acquiring past blood tests to try and pinpoint a timeline. One thing that seems to keep constant is that my changes in blood measurements did not seem to happen until after my first J&J shot for Covid 19 vaccination. I know the J&J shot had some bad press about causing a rare blood clot in mostly females. That does seem to have some minor relevancy. However, When i ask my Cancer clinic they seem to disregard it as just bad luck and say there are no known studies on it. However something had to cause the gene to corrupt. I cannot find any research on it. Does anyone know any studies in correlation to blood disorders and say the J&J shot? Or any other vaccinations causing this corruption of genetics or any other identified causes?

Thank you,

DJ

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nohrt4me | @nohrt4me | Aug 15 7:53am
In reply to @kayabbott "Here is one research paper on increased platelets with mild covid, but decreased platelets with severe..." + (show)
@kayabbott

Here is one research paper on increased platelets with mild covid, but decreased platelets with severe covid infection. There are other paper in ResearchGate and links in this paper. https://pubmed.ncbi.nlm.nih.gov/34695854/

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Thanks! This study looks at platelets and clots in "normal" people. It's not clear whether platelets in those of us with ET or other MPNs will respond the same way.

Confusing the matter is that a few people are running to ET groups claiming that covid (or the vaccine) gave them cancer/ET when, in fact, their platelet rise is temporary.

That can happen when the doc isn't clear and/or a patient runs to Dr Google for info.

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1 reply
lila1 | @lila1 | Aug 15 7:58am

I took two Moderna and a Pfizer booster. Subsequently, lymphocytes and platelets dropped below normal range and never recovered. I then got Covid and they dropped even lower. Doctors monitored until May 2024 gave official diagnosis of Splenic Marginal Zone Lymphoma. Before vaccines my labs were normal. I was health conscious 56 year old fit woman. Now on “watch & wait”. My best friend got four shots, she now how APS. Maybe coincidence.

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kayabbott | @kayabbott | Aug 15 8:14am
In reply to @nohrt4me "Thanks! This study looks at platelets and clots in "normal" people. It's not clear whether platelets..." + (show)
@nohrt4me

Thanks! This study looks at platelets and clots in "normal" people. It's not clear whether platelets in those of us with ET or other MPNs will respond the same way.

Confusing the matter is that a few people are running to ET groups claiming that covid (or the vaccine) gave them cancer/ET when, in fact, their platelet rise is temporary.

That can happen when the doc isn't clear and/or a patient runs to Dr Google for info.

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Getting covid and LC last year, and associated vaccines didn't influence my platelet (or other CBC) levels, but my having MGUS (8 years) does decrease them. Covid sickens people, and for some can trigger autoimmune and other diseases/symptoms. What came first? Covid, and/or did it reveal other problems? I have celiac disease because I caught H1N1 flu almost 15 years ago which triggered my HLA-DQ8 haplotype and tied autoimmune response. ResearchGate is a one source for research publications. I'm a retired research scientist (not medicine), but even I get Dr. Google responses from doctors. Under Obama, a law was passed such that all federal govt funded research has to be made available to the public. If one knows what to search for, a lot is being published on covid and other diseases.

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1 reply
1995victoria | @1995victoria | Aug 15 8:34am

I had ET 3 years before covid.....I've had 6 shots/boosters and my platelet count has remained steady over last 3 years
In fact a week after my second shingles shot, my platelets went down dramatically, causing concern with Dr......so then had to have more frequent blood tests and slowly platelets returned to pre-shingles shot levels....There is a research paper that talks about shingles shot and effect on platelets.....

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nohrt4me | @nohrt4me | Aug 15 4:50pm
In reply to @kayabbott "Getting covid and LC last year, and associated vaccines didn't influence my platelet (or other CBC)..." + (show)
@kayabbott

Getting covid and LC last year, and associated vaccines didn't influence my platelet (or other CBC) levels, but my having MGUS (8 years) does decrease them. Covid sickens people, and for some can trigger autoimmune and other diseases/symptoms. What came first? Covid, and/or did it reveal other problems? I have celiac disease because I caught H1N1 flu almost 15 years ago which triggered my HLA-DQ8 haplotype and tied autoimmune response. ResearchGate is a one source for research publications. I'm a retired research scientist (not medicine), but even I get Dr. Google responses from doctors. Under Obama, a law was passed such that all federal govt funded research has to be made available to the public. If one knows what to search for, a lot is being published on covid and other diseases.

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I have used that and the NIH portal. had to look up a lot of terms, but my hours in the tutoring center overlapped with the prof who did biology tutoring, so I could ask him questions when we weren't helping students. There is a lot of good info out there if people browse reputable sites.

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claire39 | @claire39 | Aug 16 7:23am
In reply to @christinele "I agree. I was diagnosed with ET in January 2023. I never had an issue with..." + (show)
@christinele

I agree. I was diagnosed with ET in January 2023. I never had an issue with high platelets until I had 2 Covid vaccines.
I never had Covid that I am aware of. What groups do you belong to?

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Good morning Christinele…I was diagnosed with ET in Feb.2018, just before Covid, so I can’t connect my ET with Covid. My Hemo doctor said I probably had for a while before it was found.
I take Hydroxyea 5 days a week and have a few issues like fatigue, headaches and itchiness, but the alternative is worse than taking the drug……..good luck…….Claire

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Jennifer | @williamsjen | Dec 6 7:01pm
In reply to @loribmt "Hi @kbc. It’s understandable how some events can feel more than coincidental. From my research over..." + (show)
@loribmt

Hi @kbc. It’s understandable how some events can feel more than coincidental. From my research over the years, in the case of Covid vaccinations, there a few documented cases of people who developed thrombocytopenia, a decrease in platelet production. This can also happen with the measles, mumps and rubella vaccination.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8400504/
The Covid vaccination hasn’t been shown to cause any genetic mutations such JAK2 or CALR which can lead to changes in blood production with disorder of the bone marrow called Myeloproliferative disorders or Myeloproliferative neoplasms.
https://www.healthline.com/health/cancer/myeloproliferative-disorders
Clearly your numbers after the vaccination are higher. Do you have a baseline of your platelet count prior to vaccinations?

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My platelets were always lower than 300 until the year after covid shot went to 600 and the following year 900

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Jennifer | @williamsjen | Dec 6 7:09pm
In reply to @mdterp76 "Research is needed on platelet increases with Covid Shots and ET. I am in several support..." + (show)
@mdterp76

Research is needed on platelet increases with Covid Shots and ET. I am in several support groups online and it's a real concern and it's not being addressed.

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I agree this should be addressed amber on a talk show but need to be put out to america people. I never had bad blood test. 1st year after covid shot 600 platelets. Dr said don't worry see how it look the next year
This year 900 platelets and since 1000 took for ever to get blood work, then had to get another test low dose asprin now wanted to start on hydrea! I just need more information
Jennifer

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