Oral lichen Planus: What home remedies or medications help you?

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

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Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children, full hysterectomy at 32 from endometriosis. A biopsy has ruled out auto immune causes.
I've been my husband's primary carer for 43 years due to his hereditary motor and sensory peripheral neuropathy, and autonomic neuropathies.
My oral pathologist has mentioned STRESS as a possible cause of my OLP. Wonder where he got that idea???
Although, autoimmune diseases are rife in my family eg Coeliac, lupus, and diabetics 1.
However, he did say that OLP is more common is women over years, and more than men a likely to get lupus.
Is the OLP, etc, possibly related to women being post-menopausal and lacking in oestrogen?
Should women with OLP be considered for HRT - Would this help?
Talking through my hat? any ideas or experience?
Any help welcome as the 3 years of both types of OLP in my mouth has not been funny.

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@sillyduffer

Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children, full hysterectomy at 32 from endometriosis. A biopsy has ruled out auto immune causes.
I've been my husband's primary carer for 43 years due to his hereditary motor and sensory peripheral neuropathy, and autonomic neuropathies.
My oral pathologist has mentioned STRESS as a possible cause of my OLP. Wonder where he got that idea???
Although, autoimmune diseases are rife in my family eg Coeliac, lupus, and diabetics 1.
However, he did say that OLP is more common is women over years, and more than men a likely to get lupus.
Is the OLP, etc, possibly related to women being post-menopausal and lacking in oestrogen?
Should women with OLP be considered for HRT - Would this help?
Talking through my hat? any ideas or experience?
Any help welcome as the 3 years of both types of OLP in my mouth has not been funny.

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@sillyduffer Welcome to Mayo Clinic Connect! You’ve asked a very interesting question!
OLP is considered to be an autoimmune disease but, as this article points out, stress can play a big role. You have a family history of autoimmune disease and you’ve had a lot of stress.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4147812/#:~:text=The%20major%20findings%20of%20this,of%20management%20protocol%20of%20OLP.
This article comes from the National Institutes of Health.
Has anyone else in your family developed OLP?

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@becsbuddy

@sillyduffer Welcome to Mayo Clinic Connect! You’ve asked a very interesting question!
OLP is considered to be an autoimmune disease but, as this article points out, stress can play a big role. You have a family history of autoimmune disease and you’ve had a lot of stress.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4147812/#:~:text=The%20major%20findings%20of%20this,of%20management%20protocol%20of%20OLP.
This article comes from the National Institutes of Health.
Has anyone else in your family developed OLP?

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Hello Becy
spot on - lots of both.
I'm seeing my GP next week and I'll be posing the HRT question to him.
The problem is that most GP's dont' see a lot of OLP here - Queensland.
So we'll see what transpires - I'll post the reaction.

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@sillyduffer

Hello Becy
spot on - lots of both.
I'm seeing my GP next week and I'll be posing the HRT question to him.
The problem is that most GP's dont' see a lot of OLP here - Queensland.
So we'll see what transpires - I'll post the reaction.

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Hi again Becky
No one in my family has OLP - just lucky me.

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I developed OLP at age 71, two years ago. I have reason to believe that it was caused by a double whammy: the Covid vaccine (since vaccines trigger an immune response, they can also trigger an autoimmune response) and the fact that I take a beta blocker (they've been implicated in OLP). When I get sick, and my body triggers an immune response, the OLP worsens. This is a chronic condition which we can just try to manage.

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@sillyduffer

Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children, full hysterectomy at 32 from endometriosis. A biopsy has ruled out auto immune causes.
I've been my husband's primary carer for 43 years due to his hereditary motor and sensory peripheral neuropathy, and autonomic neuropathies.
My oral pathologist has mentioned STRESS as a possible cause of my OLP. Wonder where he got that idea???
Although, autoimmune diseases are rife in my family eg Coeliac, lupus, and diabetics 1.
However, he did say that OLP is more common is women over years, and more than men a likely to get lupus.
Is the OLP, etc, possibly related to women being post-menopausal and lacking in oestrogen?
Should women with OLP be considered for HRT - Would this help?
Talking through my hat? any ideas or experience?
Any help welcome as the 3 years of both types of OLP in my mouth has not been funny.

Jump to this post

@sillyduffer your oral pathologist may be right. My OLP is triggered by stress too. And I suspect menopausal women are more likely to develop this condition - mine started when I went into menopause, and it was a good ten years later that it was actually diagnosed - by an oral pathologist. Till then I went from dentists to dermatologists and they just shrugged that they couldn’t help me!

I’ve been reluctant to go the HRT route because there is a history of breast cancer - among a list of other cancers - in my family, both on my mother’s and father’s side.

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@rashida

@sillyduffer your oral pathologist may be right. My OLP is triggered by stress too. And I suspect menopausal women are more likely to develop this condition - mine started when I went into menopause, and it was a good ten years later that it was actually diagnosed - by an oral pathologist. Till then I went from dentists to dermatologists and they just shrugged that they couldn’t help me!

I’ve been reluctant to go the HRT route because there is a history of breast cancer - among a list of other cancers - in my family, both on my mother’s and father’s side.

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Hello Rashida
Congrats on your diagnosis. At last!
As I don't have cancers in my families, i am still going to ask about low level hormones.
Stress - what else does it activate as responses in the body.
I've cut out citrus, nightshade veg and fruits, curries, all chillis, anything spicy.
Added aqua aerobics, and 2 gym sessions weekly. I think that having these activities which are all and only for me is helping with stress.
good luck to you.
Silly duffer

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@lichenplanussufferer

I have had Lichen Planus for over 2 years on my gums with extreme bleeding. A few months ago I developed a sore on the side of my tongue. Hurt to eat talk..ect. My sister who is an RN suggested I take Valtrex. After taking 2 tablets a day for 4 days all Lichen Planus vanished. This leads me to believe it is viral. 2 months later and very little symptoms of LP.

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Hello and yes! I am a 64 year old woman who has suffered terribly from Oral Lichen Planus for the past 2 1/2 years. The doctors have tried Prednisone (intermittently since diagnosis and constantly for the last 8 months), Hydroxychloroquine for 2 years and most recently, Cellcept, but none of these were enough to keep me in remission. Ten days ago, while on Acyclovir for the Herpes virus, I noticed that my tongue felt better while on this anti-viral medication. After researching Acyclovir and OLP on the internet, I found a number of studies that linked these two to a better outcome. I asked my primary doctor if I could stay on Acyclovir indefinitely because it made my OLP improved and for the first time, was prescribed Valtrex (a long term version of Acyclovir). I started it immediately. My OLP symptoms improved and now have gone into a complete remission. Not even my treating dermatologist knew about the connection between Acyclovir and OLP! To be fair, there is also research out there which links Acyclovir to a poorer outcome for OLP. But fortunately for me, and perhaps others out there like me, Valtrex was exactly the piece of the puzzle that was missing from 2 1/2 years of misery.

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@lyndabusd

Hello and yes! I am a 64 year old woman who has suffered terribly from Oral Lichen Planus for the past 2 1/2 years. The doctors have tried Prednisone (intermittently since diagnosis and constantly for the last 8 months), Hydroxychloroquine for 2 years and most recently, Cellcept, but none of these were enough to keep me in remission. Ten days ago, while on Acyclovir for the Herpes virus, I noticed that my tongue felt better while on this anti-viral medication. After researching Acyclovir and OLP on the internet, I found a number of studies that linked these two to a better outcome. I asked my primary doctor if I could stay on Acyclovir indefinitely because it made my OLP improved and for the first time, was prescribed Valtrex (a long term version of Acyclovir). I started it immediately. My OLP symptoms improved and now have gone into a complete remission. Not even my treating dermatologist knew about the connection between Acyclovir and OLP! To be fair, there is also research out there which links Acyclovir to a poorer outcome for OLP. But fortunately for me, and perhaps others out there like me, Valtrex was exactly the piece of the puzzle that was missing from 2 1/2 years of misery.

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@lyndabusd That is so excellent! People take acyclovir for all sorts os things these days but yours is the 1st real success story. And welcome to Mayo Clinic Connect! I’m glad you found this site and had such an important tip to share.
Thank you, thank you!

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@sillyduffer

Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children, full hysterectomy at 32 from endometriosis. A biopsy has ruled out auto immune causes.
I've been my husband's primary carer for 43 years due to his hereditary motor and sensory peripheral neuropathy, and autonomic neuropathies.
My oral pathologist has mentioned STRESS as a possible cause of my OLP. Wonder where he got that idea???
Although, autoimmune diseases are rife in my family eg Coeliac, lupus, and diabetics 1.
However, he did say that OLP is more common is women over years, and more than men a likely to get lupus.
Is the OLP, etc, possibly related to women being post-menopausal and lacking in oestrogen?
Should women with OLP be considered for HRT - Would this help?
Talking through my hat? any ideas or experience?
Any help welcome as the 3 years of both types of OLP in my mouth has not been funny.

Jump to this post

I read this article:
https://www.medicalnewstoday.com/articles/184866#causes
It mentions as a possible cause, some drugs, which lists antimalarials as one. I take hydroxychloroquine for mild lupus.
and the article also lists gold.
I got to wondering if anyone has gold fillings? perhaps this might be causing your OLP.?? just throwing it out there.
I will talk with my GP about Acyclovir. Take care. Jamieson makes a spray B12, nice raspberry flavor...it is supposed to help OLP. Who knows, I'll try anything.

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