Parkinsonism

Posted by mvanstem @mvanstem, Feb 6 9:31pm

Anyone else diagnosed with Parkinsonism (advanced testing) but no diagnosis of Parkinson’s, nor MSA, nor PSP nor Lewy Bodies. Like to talk? Curious about other routes Parkinsonism can take

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anitaxblack339 | @anitaxblack339 | Aug 6 6:12pm

They always put in something about neuropathy in all the Parkinson’s things that I’ve been reading. I wonder why is David any better?

anitaxblack339 | @anitaxblack339 | Aug 6 6:16pm

In reply to @hopeful33250 "I'm sorry to hear of your mother's passing, @anitaxblack339. Losing a mother is difficult for sure...." + (show)

I need to start to bead again

anitaxblack339 | @anitaxblack339 | Aug 6 6:17pm

Don’t know what to do about parkindond

anitaxblack339 | @anitaxblack339 | Aug 6 6:18pm

Parkindons

Teresa, Volunteer Mentor | @hopeful33250 | Aug 6 6:20pm

In reply to @anitaxblack339 "Don’t know what to do about parkindond" + (show)

When you see the specialist, you may find some help.

anitaxblack339 | @anitaxblack339 | Aug 6 6:27pm

In reply to @hopeful33250 "I appreciate the information you provided about your Cerebellar Ataxia and Parkinson's diagnoses, @foundryrat743. As you..." + (show)

Yes. Big tome

mvanstem | @mvanstem | Aug 6 8:31pm

That describes me. I ‘failed’ the DAT Scan (dopamine transporter scan) and was then tested at Mayo for MSA. Don’t have it. I already have cerebellar ataxia which gives me numerous symptoms some of which are also part of Parkinsonism. I have read of the other Parkinson’s Plus dire medical conditions none of which match up well for me. Don’t know what’s next….

Teresa, Volunteer Mentor | @hopeful33250 | Aug 7 7:00am

In reply to @mvanstem "That describes me. I ‘failed’ the DAT Scan (dopamine transporter scan) and was then tested at..." + (show)

I am sorry that you are having such a difficult time finding a correct diagnosis, @mvanstem. It is hard to live with symptoms without a clear-cut understanding of what is causing the problem. Neurological problems can be very difficult to diagnose as so many neurological disorders have symptoms that overlap.

What are your most troublesome symptoms right now? Have there been any therapies and/or medications that have offered you any relief?

mvanstem | @mvanstem | Aug 7 11:01am

In reply to @hopeful33250 "I am sorry that you are having such a difficult time finding a correct diagnosis, @mvanstem...." + (show)

My most noticeable symptom is my imbalance and drunk like walking but what bothers me the most is how my vision has been affected: nystagmus, oscillopsia and double vision.