Sense of humor and flexibility have eluded me tonight. Wlit was bad enough when, a couple of hours ago, my husband didn't recognize our furniture, then recognized it and wondered how it got here. Now he knows this is our home and our things but is convinced I have moved everything just slightly with help from my "boyfriend ". Says our marriage is over and he doesn't want me near him.
I am so tired. Just when things are going smoothly it all falls apart again.
Where do you find help at times like this? If I call his doctor on Monday is there really anything he can do to help? I know you are all going through similar things so why do I feel so alone?
Thanks for prayers, good thoughts, virtual hugs...whatever you can offer.
Jeh
Progression of symptoms can be unpredictable and fluctuating. The feasibility of in home care by a family member varies. I know my parent’s situation is stressful. The physical and mental toll on 24/7 caregivers is not sustainable. It would be like hiring a caregiver to provide hands on care and expecting them to work 24/7 indefinitely. Getting outside help is crucial. It’s not that easy though. It’s expensive. I’m trying to arrange it now. It’s just heartbreaking for family members to live this way indefinitely. As someone stated upthread, they call it the long goodbye.
Thanks, Jeh. Your response means a lot to me. With the extra laundry
required from the UTI or whatever it is, my guy has decided to get dressed
up every day as if he were going to town. Instead of urinating in his
sweats, he is now urinating in his dress pants and shirts. There is a
mound on the dryer waiting for the old spot remover trick before washing
can happen. The only way you can survive this is to develop a sense of
humor. I guess it is better than him no longer caring how he looks. Right
now, my back is killing me, but at least it is for a good reason. I was
able to get some semblance of order around here. Whatever tomorrow brings,
I will be better prepared than I was today. Ah, small victories. Keep up
the good fight. GloRo
Could you slowly remove donate some of his clothes? I know change is bad but after a few days of moving something to a better location my husband finally accepts it.
Connect
Connect
Like
Helpful
Hug
@jehjeh
Nights are the worst time because we are both exhausted, and I have no coping skills. There are no distractions!
-
Like -
Helpful -
Hug
1 ReactionProgression of symptoms can be unpredictable and fluctuating. The feasibility of in home care by a family member varies. I know my parent’s situation is stressful. The physical and mental toll on 24/7 caregivers is not sustainable. It would be like hiring a caregiver to provide hands on care and expecting them to work 24/7 indefinitely. Getting outside help is crucial. It’s not that easy though. It’s expensive. I’m trying to arrange it now. It’s just heartbreaking for family members to live this way indefinitely. As someone stated upthread, they call it the long goodbye.
-
Like -
Helpful -
Hug
4 ReactionsCould you slowly remove donate some of his clothes? I know change is bad but after a few days of moving something to a better location my husband finally accepts it.