Grover's Disease: What works to help find relief?

My Grover’s is from scalp (skipping my face) down to my upper knees, breasts included. The most inflamed is my chest and back. I keep aloe gel in the fridge and when applied it’s sooo cold it too scares the itch for abt 20-30 minutes which feels like heaven. I’m drinking the cilantro smoothies daily and taking 24hr Claritin and melatonin to help me sleep. I’ve upped all my vitamins that affect skin and immunity. Wearing a bra is killing me and I need one as I’m heavy breasted but also without it when I sweat under my breasts the rash goes crazy there. I had a three day break this past week from spreading rash so of course I thought it was going away but woke up this morning w my chest and back raging. But so thankful for a little break!! I had tried 3other antihistamine products to no avail but the Claritin seems to help me tolerate. Amazing how we Groverers have such differences in what helps. I appreciate your insight and pray you’re right abt the first episode being the worst. Oh, abt heat…I played golf for the first time in weeks yesterday so I’m thinking that’s why I’m suffering again today.

Hello! I have been reading these post for almost one full year. THANK YOU!! They have been so very helpful...more than any doctor. I too have been battling ONE full year of hell with grovers disease. I really wish this website was more user friendly!!

I’ve learned so much so from this group and the Facebook group. I’ll post my experience from start to finish on a new post so it’s not embedded in this thread only.

Take aways, I also have allergies. Only had seasonal allergies before now. After the extended allergy test I learned. I’m allergic to:
1. Carba Mix - pesticides, fungicides, latex, parabens (preservative) plastic...all things containing “emollients” which are typically in topical steroids
2 textile dyes - yes, you read this correct. Clothes are dyed in artificial dyes and then treated with formaldehyde!! So not only is texture important so is the chemicals that are on the clothes. Textile dyes take 6 months to get out of your system FYI. Super fun on top of GD 😂
3. Lidocaine- very interesting as in many lotions

I was so just diagnosed with Grover’s from a biopsy, I had it all over my back to start with and now I also have it on my stomach, legs, arms and top of neck near scalp. The itching is driving me crazy. I have had a cortisone shot, taken steroids,am putting clobetasol cream on it, have used hydrocortisone lotion and Triamcinolone cream and am on an antibiotic. Nothing helps with the itching except taking 2 benedryl pills which makes me sleep. Not an option when I working. They also gave me pills for itching but they don’t not work. I have had this for about 2 months now with no relief. I have scratched so much my stomach burns. It is hard to get to sleep unless I take Benedryl but then u can’t get up the next day until 1:00. I am at a loss because I know I cannot handle 6 to 12 months or possibly years with this insane itching.

I'm excited to learn it helped your husband. Truly his improvement after a week is remarkable, it took me at least 3 weeks to notice improvement and as I've mentioned it took about 3 months to be sure I was dormant. I stayed on the blended cilantro for almost 6 months and am still clear now 5 years later- but I do buy a bunch to make 2 blended tonics once a month.
For me cilantro capsules didn't help. Yet perhaps his product is more effective. Could you share the name of the tincture and what site he purchased it on.
For those disgusted with the taste and refusing to try it I figure they weren't in as much pain or had as severe a case as I did. I've learned that PAIN is a serious motivator!!!

Hi Gardenjunkie
It’s BioKrauter Cilantro
He got a 4 oz bottle with dropper
(Lasts about 2 mts). About $18
What works for one doesn’t necessarily work for others. Worth a try, though. (I tried it…it’s quite palatable)
BEST of luck!

I've been following this forum lately, reading back as far as four years. My dermatologist Deborah told me I have Grover's on my body (inc. arms and legs), i just thought it was atopic eczema (which I also have) or heat lumps. Anyway to cut a long story short, I bought some Cilantro / Corriander (UK) after seeing the recommendaion on this forum. I was eating a cup full a day for four days and my skin showed some signs of healing, BUT on the fifth day I doubled it up to two cups and boy did my skin react badly! My entire body and face went into a weepy itchy rashy mess. I will now avoid this in the future, alongside Celery and Fennel (the same family) and hope this is what has been causing my skin to be bad. I eat Celery in salads quite a bit. I have also stopped drinking milk eight days ago, in case it is dairy.

I googled it and 33% of adults are allergic to Corriander / Cilantro, so be careful!

I think it might have been the steroid cream healing the skin, and the hot water from the shower drying it up, rather than the Corriander.

My dermatologist (a different one, not Deborah) laughed when I told him about this forum, he said you can't get Grover's on your arms and legs, he has it and you can only get it on your back and chest. Wtf! It just shows you that these health proffesionals don't know everything!