I am looking for a support group for Septis as I was recently released from the hospital after pneumonia and Septis. Would really like to hear other post hospital experiences while recovering from the continued effects of Septis.
If you would like to visit about recovery, I would be happy to help. I am a survivor of Sepsis as well. We could brainstorm as to how we could carry this out.
Hello. For starters my name is Doug and I'm a young 69 LOL. I have been very active my whole life until this bout with septis. I am however happy to say things are slowly turning around. The major issue is fatigue as I walk across the house and literally have to sit down to catch my breath. Shortness of breath has been a real issue along with the fatigue. This is by far the sickest I have ever been in my life. A few of the other issues that I have dealt with were, waking up every morning soaked in sweat. My taste was completely different and it may seem nuts but mildly spicy food was extremely hot and I couldn't eat it along with my relatively sweet mouthwash, things like that. Also terrible leg cramps in the middle of the night, bowel issues which I won't go into. And other issues that I'm probably forgetting. Anyway things are slowly improving but not fast enough for me. I hope your recovery went smoothly.
Have you checked out Sepsis Alliance? They have a lot of good information about Sepsis and recovery. I had sepsis in 2022 which came from a perforated bowel during a hernia surgery. I became very ill and was in the hospital for 33 days, two weeks of it in the ICU. During my time in the ICU I also had pneumonia due to aspiration from being intubated. I was a mess. Recovery is a slow process, so give yourself time and grace. I feel like I am still in recovery as I fight fatigue and confusion from time to time.
If you have any questions, please feel free to reach out!
Wow, you are definitely a fighter and I'm happy you made it through your terrible ordeal. It really makes what I went thru seem small in comparison. If I may ask how long did you fight any shortness of breath, and fatigue. It seems I can't walk across the yard without needing to sit down, and I have always been so active.
I am looking for a support group for Septis as I was recently released from the hospital after pneumonia and Septis. Would really like to hear other post hospital experiences while recovering from the continued effects of Septis.
Dear Snapper, I had it and can only wish you a recovery from a time spent in hell. I had chronic UTIs and this time had no symptoms so just gradually got tired more and more along with diminished brain cognition. So crazy I figured if I didn't know what I had, no doctors could figure it out. My partner finally called my MD who said get to ER, and the ER would not let me leave, kept me for 10 days. They got the CDC involved, infectious disease also here in town, and finally found an IV antibiotic which would work. Meanwhile I got very delirious, had delusions, illusions, nurses turned into ninjas at night, no sleep, terror grabbed be as I lay there barely able to think. I was released with IV Rx for another six days at home. I didn't feel stronger for another month and then it took an additional four months to say I feel back to normal, but at 78, that's like a real setback to muscle tone and I had to do my own PT to catch up with where I am now, 9 months after the sepsis hit me. There's a thing called prolonged sepsis and I may have had it. Your have some advice here in other posts, and I concur with not pushing yourself the first couple months, depending on your age. You are sick and you have permission to act like it, just sleep when you can and watch tv, read, crosswords, fiddle around as you can. If you need to get back to a job, that will be tough. Ask for help. This takes patience, from you and from others. Hope those around you accept this is a slow process for most, and have patience with your changed life for a few months. Blessings and good luck to you, hang tough. Vicki
Wow, you are definitely a fighter and I'm happy you made it through your terrible ordeal. It really makes what I went thru seem small in comparison. If I may ask how long did you fight any shortness of breath, and fatigue. It seems I can't walk across the yard without needing to sit down, and I have always been so active.
Hello Snapper,
I think my shortness of breath lasted about 6 months to a year. My stamina has increased and I am able to walk 3-4 miles now without feeling winded. I have accepted the fact I will always fight fatigue. I can sleep until the "cows come home" at times. During the early stages of my recovery, I fatigued quite often and rested a lot. Like yourself, I like to be active so it was difficult to have to put on the brakes. It is also necessary to not only address physical fatigue but also mental fatigue. I returned to work to quickly and found myself slowly imploding. I am now retired and feel it has been a life saver for me. I am 62 years old so it's been frustrating at times when I want to keep going but cannot. I have learned to listen to my body and give it rest and have enlisted boundaries to keep my from doing too much. I urge you to give yourself time and allow your body to rest when it is feeling tired or short of breath. Just remember it is ok to sit down to catch your breath, it is ok to put your feet up and relax. It is truly the best thing for your body and brain. I also urge you to place value on time, feeling like "you should" be feeling better, etc... recovery has its own time table. I hope this helps a little? Please reach out if you would like to converse some more, Elise
Hello Snapper,
I think my shortness of breath lasted about 6 months to a year. My stamina has increased and I am able to walk 3-4 miles now without feeling winded. I have accepted the fact I will always fight fatigue. I can sleep until the "cows come home" at times. During the early stages of my recovery, I fatigued quite often and rested a lot. Like yourself, I like to be active so it was difficult to have to put on the brakes. It is also necessary to not only address physical fatigue but also mental fatigue. I returned to work to quickly and found myself slowly imploding. I am now retired and feel it has been a life saver for me. I am 62 years old so it's been frustrating at times when I want to keep going but cannot. I have learned to listen to my body and give it rest and have enlisted boundaries to keep my from doing too much. I urge you to give yourself time and allow your body to rest when it is feeling tired or short of breath. Just remember it is ok to sit down to catch your breath, it is ok to put your feet up and relax. It is truly the best thing for your body and brain. I also urge you to place value on time, feeling like "you should" be feeling better, etc... recovery has its own time table. I hope this helps a little? Please reach out if you would like to converse some more, Elise
Thank you so much for your input and great advice. With each passing day I'm feeling better. I am almost pressed to say I'm back to 95 per cent. If going through all this wasn't enough I had an appointment in Rochester yesterday with Dr Alder a neurosurgeon and was told I need a 3 level lumbar fusion revision on an already monstrous fusion from a few years back, so this is scheduled for November. While doing some x-rays they spotted some nodules on my lungs which they assume are from the pneumonia I had but a chest scan and blood tests are scheduled for today back at the Barron clinic. This has me worried now. Boy oh boy when will it end. Anyway best of luck to you and again thank you. Doug
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If you would like to visit about recovery, I would be happy to help. I am a survivor of Sepsis as well. We could brainstorm as to how we could carry this out.
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2 ReactionsI apologize as I did not see your comment until now. How are you doing? I would like to connect and discuss recovery. I too am a sepsis survivor.
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1 ReactionHello. For starters my name is Doug and I'm a young 69 LOL. I have been very active my whole life until this bout with septis. I am however happy to say things are slowly turning around. The major issue is fatigue as I walk across the house and literally have to sit down to catch my breath. Shortness of breath has been a real issue along with the fatigue. This is by far the sickest I have ever been in my life. A few of the other issues that I have dealt with were, waking up every morning soaked in sweat. My taste was completely different and it may seem nuts but mildly spicy food was extremely hot and I couldn't eat it along with my relatively sweet mouthwash, things like that. Also terrible leg cramps in the middle of the night, bowel issues which I won't go into. And other issues that I'm probably forgetting. Anyway things are slowly improving but not fast enough for me. I hope your recovery went smoothly.
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Helpful -
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1 ReactionWow, you are definitely a fighter and I'm happy you made it through your terrible ordeal. It really makes what I went thru seem small in comparison. If I may ask how long did you fight any shortness of breath, and fatigue. It seems I can't walk across the yard without needing to sit down, and I have always been so active.
Dear Snapper, I had it and can only wish you a recovery from a time spent in hell. I had chronic UTIs and this time had no symptoms so just gradually got tired more and more along with diminished brain cognition. So crazy I figured if I didn't know what I had, no doctors could figure it out. My partner finally called my MD who said get to ER, and the ER would not let me leave, kept me for 10 days. They got the CDC involved, infectious disease also here in town, and finally found an IV antibiotic which would work. Meanwhile I got very delirious, had delusions, illusions, nurses turned into ninjas at night, no sleep, terror grabbed be as I lay there barely able to think. I was released with IV Rx for another six days at home. I didn't feel stronger for another month and then it took an additional four months to say I feel back to normal, but at 78, that's like a real setback to muscle tone and I had to do my own PT to catch up with where I am now, 9 months after the sepsis hit me. There's a thing called prolonged sepsis and I may have had it. Your have some advice here in other posts, and I concur with not pushing yourself the first couple months, depending on your age. You are sick and you have permission to act like it, just sleep when you can and watch tv, read, crosswords, fiddle around as you can. If you need to get back to a job, that will be tough. Ask for help. This takes patience, from you and from others. Hope those around you accept this is a slow process for most, and have patience with your changed life for a few months. Blessings and good luck to you, hang tough. Vicki
Hello Snapper,
I think my shortness of breath lasted about 6 months to a year. My stamina has increased and I am able to walk 3-4 miles now without feeling winded. I have accepted the fact I will always fight fatigue. I can sleep until the "cows come home" at times. During the early stages of my recovery, I fatigued quite often and rested a lot. Like yourself, I like to be active so it was difficult to have to put on the brakes. It is also necessary to not only address physical fatigue but also mental fatigue. I returned to work to quickly and found myself slowly imploding. I am now retired and feel it has been a life saver for me. I am 62 years old so it's been frustrating at times when I want to keep going but cannot. I have learned to listen to my body and give it rest and have enlisted boundaries to keep my from doing too much. I urge you to give yourself time and allow your body to rest when it is feeling tired or short of breath. Just remember it is ok to sit down to catch your breath, it is ok to put your feet up and relax. It is truly the best thing for your body and brain. I also urge you to place value on time, feeling like "you should" be feeling better, etc... recovery has its own time table. I hope this helps a little? Please reach out if you would like to converse some more, Elise
-
Like -
Helpful -
Hug
1 ReactionThank you so much for your input and great advice. With each passing day I'm feeling better. I am almost pressed to say I'm back to 95 per cent. If going through all this wasn't enough I had an appointment in Rochester yesterday with Dr Alder a neurosurgeon and was told I need a 3 level lumbar fusion revision on an already monstrous fusion from a few years back, so this is scheduled for November. While doing some x-rays they spotted some nodules on my lungs which they assume are from the pneumonia I had but a chest scan and blood tests are scheduled for today back at the Barron clinic. This has me worried now. Boy oh boy when will it end. Anyway best of luck to you and again thank you. Doug