Anyone had cancer return while taking hormone therapy meds?

I also had lobular and double mastectomy stage 1b. Wish i could feel better.

If you have dense breasts I would recommend asking for MRI 6 months after the mammo and especially if you had lobular cancer! Best of luck!

The radiation while yes clearly helpful can't take out every cancerous cell - please keep us updated on how you're feeling and can you share how you found the reoccurrence? Thanks so much xoxo

I had double mastectomy too. I just wish the sadness and anxiety would go away. I’m In remission I want to feel better not anxiety most of the time.

I’m sorry to hear that the blood work didn’t tip you off! Maybe not a match with original tumor dna? Will be thinking of you and good luck with PET—xoxo

@kathy88 don't know if this helps but my doctor explained that chemo works best with more fast growing tumors. My low Oncotype didn't just show that I didn't need chemo but that it would not work because of the characteristics of my tumor.

Also after 5 years of letrozole I had a Breast Cancer Index that said I was high risk but also said that there was no benefit from further aromatase inhibitor treatment. Would you feel better knowing that the AI was no longer helping, as the doctor said? The lab still has your specimens and the doctor could order the Breast Cancer Index-?

Did you have radiation early on or after 4 years>

Any chance the thyroid meds are contributing to anxiety? Or maybe a different med than Luvox? Klonopin is my friend too but I don't tolerate much and take 1/4 and only late at night, maybe a few times a month. I get it! Tai chi helps me a lot. And walking.

Sorry you are going through this. I am approaching my 10th anniversary of diagnosis and am feeling it too. Just because the anniversary is bringing cancer to my thoughts.

I was told no since I had double mastectomy

Thanks so much for sharing and sending hugs that you can heal and get PT for range of motion issues. How will they continue surveillance for you? PET, MRI - good luck! I'm in MA and am seen at Dana Farber - with lobular I didn't get great margins, 58 yrs old and almost 2 years out hoping to continue with alternating MRI's , Mammos for surveillance. I am hopeful that liquid biopsies can be used to match our blood draws to tumor markers to pick up any reoccurrences sooner that scans! xoxoxo

May I ask how long after your mastectomy that your reoccurance was discovered? Did you have lobular or ductal. Please keep us posted as you embark on your plan and good luck with PET. xooxoxo

GREAT NEWS!

PET was absolutely clean including nodes. Got results in a record 6 hours.

It’s 2.5 years since single mastectomy for IDC ER/PR+, HER2-, on Anastrozole basically since then.

This 4mm showed up 8 days ago , observed by me. A biopsy reveals ER + PR- ( HER2 not in yet) presumed to be - as KI is 3% ) which would support a negative but no guarantee).

It’s in the location of the original tumor so presumably a rogue cell that got away and just under the skin.

Plan presuming HER2- : I guess it’s a lumpectomy on a mastectomy? Switch AI to Examestane and radiation under consideration.

I’m so relieved that this is a local recurrence.

This was not picked up on MRI in February.

Please SELF EXAM!