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T cell large granulocytic leukemia

Blood Cancers & Disorders | Last Active: Aug 2 8:13pm | Replies (18)

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@jumper123

I have Large granular lymphocyte Leukemia, and was told by my oncologist that I would get a new medication since methotrexate shows no improvement. Have not received a new prescription in a week and will call his office today. Usually a person is prescribed cyclosporine, and he wanted to consult his group to see what they recommend. I am in the LGL registry with Dr. Loughran, at the university of Virginia, the researcher that discovered Lgl. He said the oncologist can consult him if needed and he has not done that yet. Dr. Loughran is also on My Chart, reviewing my test results and treatment. I am part of the study group at UV. Hope I get a new prescription today and will call there this morning.

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Replies to "I have Large granular lymphocyte Leukemia, and was told by my oncologist that I would get..."

@jumper123
Don’t be afraid to be that squeaky wheel and call to nag about that prescription. People get busy and important things fall between the cracks. We trust our physicians but we must verify that our care is correct and timely.
I’m glad you have Dr Loughran on your team. If you don’t believe you are getting what you need from your hematologist there is nothing wrong with asking for a second opinion.