mitral valve regurgitation
I had an echo cardiogram Thursday 7/11 and don't have my appointment with the cardiologist until 7/24. This is the result on my mitral valve. It has been 2+ for a long time and suddenly changed. I am having symptoms including shortness of breath when laying down (it wakes me at night, swelling in my feet, slight chest pain, extreme tiredness and fatigue. I sent a Mychart message to my doctor and got an auto-reply that it could take up to 9 business days to get a response. Is this considered a medical emergency?
MITRAL VALVE
There is moderately severe (3+) mitral valve regurgitation due to an indeterminate
mechanism. There is no thickening. Regurgitant orifice area (PISA) is 0.38 cm².
The pressure half time is 49 msec. The peak mitral E/A ratio is 1.50. The average
mitral E/e' ratio is 7.0. The mitral flow deceleration time is 168 msec.
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You sure did dodge a bullet! So glad you made the call, you know your body best and glad you took swift action. Wishing you a speedy recovery!
2 yrs. ago a cardiologist I had never met arranged a meeting with me after a heart catheterization showed I had mod.-severe mitral valve regurgitation(an ongoing thing for 20+ yrs.). He seemed desperate to find symptoms but I had none so he said "these things are best done if you don't have symptoms." He never mentioned my health only the need to operate. I asked "what will happen if I don't have the op?" Dr. "You MIGHT have trouble breathing in the future." When he saw my relief and was doubtful I'd do the op he lied to me after I said I wanted to clear up an upcoming eye surgery. Dr. "No one will touch you until you do this first." I was skeptical but believed him and set an appt. after he continued the pressure. I went home and found that the Mayo Clinic site stated "Do not(!) do this surgery unless you are in the SEVERE category. I found that advice elsewhere also and talked to a couple of nurses who also felt this op was premature and then I found out this doctor needed to up his numbers in a competitive situation with other hospitals. He went so far as to call me at home on a weekend but I stuck to the Mayo Clinic advice and refused. I never heard from again. Has anyone else been in this type of situation? My primary care doctor said I should sue for attempted malpractice but I didn't think that would succeed. Thoughts are appreciated!
Call the American Medical Association and let them know. Also, check to see his credibility yourself online.
6 weeks post procedure. Ended up with double bypass, mitral valve repair and left atrial appendage clip. Spent five days in ICU due to Afib, twelve days total in hospital. If I don't do that again anytime soon it's OK with me. Started cardiac rehab about 1-1/2 weeks ago. It's going to be a slow recovery.
Hi @steve1077, that doctor does sound shady, a good one to avoid.
I'll share my experience with you as I elected to have a mitral valve repair before I had symptoms.
I had carpal tunnel syndrome and the examining physician heard a heart murmur so he scheduled an echocardiogram. It showed mitral valve prolapse with severe regurgitation. I never had any symptoms and would never have known anything was wrong.
My first cardiologist told me I needed to let him know when I became short of breath. A new one, whom I saw later, told me there were better outcomes when people had the surgery before they went into congestive heart failure. I had watched my mother die from congestive heart failure for mitral valve stenosis and it was heartbreaking. My husband also was diagnosed with Alzheimer's at the time my condition came to light.
I opted for the repair, while I could get it, vs. waiting until I needed a replacement. I got a ring and a clip. I was in the hospital for about two weeks with some complications, but I came out of it okay, five years ago. I'm glad I didn't put off the inevitable as now I'm fulltime caregiver to my husband and in 2020 I developed an autoimmune disorder, which would have complicated things had I not had the surgery when I did.
I just saw a new cardiologist for my annual checkup and he reiterated that outcomes are better with this procedure before people have symptoms.
You said your regurgitation is moderate. I can understand that you don't want unnecessary surgery, but it might be a good idea to monitor your condition so you know if you ever slide into "severe" regurgitation. Before I did have the surgery I think I had echocardiograms every six months.
All the Best!