Anybody developed high fever taking hydroxy? Treatment for ET

Posted by olgao @olgao, Jun 25 8:46am

Hi there, has anybody developed high fever taking hydroxy? Just started treatment for ET

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@jacklyn

Just started hydroxurea and I have a question. Is 500mg x4 with breakfast a high dose. I asked my hematologist if I could start on 1000mg. She said ok and then we could gradually raise it.

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Good for you, taking this question to your hematologist.

For me, starting HU at a low dose was really helpful. I feel it allowed my system to adjust, saving me from any side effects.

Especially in the first year, most of us have had our dosage adjusted. That's how we find what works.

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@jacklyn

Just started hydroxurea and I have a question. Is 500mg x4 with breakfast a high dose. I asked my hematologist if I could start on 1000mg. She said ok and then we could gradually raise it.

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Taking four 500 mg Hydroxyurea at breakfast seems like an extremely high dose. It seems a good percentage only take one,

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I would think your dosage is dependent on how high your platelet count is. Maybe Dr is worried and wants to get count down quickly, and then put you on maintenance dosage. I take my HU at night with a few spoonfuls of yogurt or cottage cheese. Dr said to take at same time every day, and since I never get up at the same time, I figured my night-times are more consistent.

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@appraiser1946

Since starting hydroxyurea approximately two years ago, I have experienced worse tinnitus. I have had tinnitus for a long time, but very mild. Has anyone else experienced bad tinnitus? I am wondering if it is the hydroxyurea that has caused this. Please respond if you’ve had this problem.

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I've had tinnitus for YEARS. I haven't notice change since ET or HU.

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@eileen11108

Taking four 500 mg Hydroxyurea at breakfast seems like an extremely high dose. It seems a good percentage only take one,

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I also feel that 500x4 is extremely high. What was your red blood platelet count. I too would question my hemo doctor. Good luck

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I have headaches, fatigue, and itchiness but no fever

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@claire39

I also feel that 500x4 is extremely high. What was your red blood platelet count. I too would question my hemo doctor. Good luck

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Tomo 500 x 3.
Sino efectos secundarios relevantes.
Sólo cansancio y caída del cabello pero no extrema y no se si puedo asociar a hidroxiurea.

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@vivoconte

Tomo 500 x 3.
Sino efectos secundarios relevantes.
Sólo cansancio y caída del cabello pero no extrema y no se si puedo asociar a hidroxiurea.

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My doctor told me that some people experience hair loss and some do not. I am lucky as I have not had that, only itchiness, headache, fatigue and very seldom nausea……. Claire
How high is your red platelets

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@claire39

My doctor told me that some people experience hair loss and some do not. I am lucky as I have not had that, only itchiness, headache, fatigue and very seldom nausea……. Claire
How high is your red platelets

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El último exámen me dio 700.000. Y por eso me aumentaron la dosis.
Hace tiempo que las mantenía entre 500 y 600.000 tomando 2 x 500 x 7 días a la semana.

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Oh dear that is high and taking the hydroxyuea, even with the side effects, in my opinion is better than what could happen without them. Keep in touch and I hope everything works out for you…….hugs

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