Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

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Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@bonitagriffith

In my late teens, I was diagnosed with paroxysmal tachycardia and was able to stop it by holding my breath and bearing down. I had no symptoms for many years. Now that I am 84 it has started up again, I wore a heart monitor for two weeks and was diagnosed with SVT and started a calcium channel blocker, which has calmed it down but I'm not happy with the side effect of constipation and just the fact I am taking a drug. I'm wondering if I should just try living with it as I was told to do 10 years ago since a beta blocker might be more objectionable to me .
ideas?

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I am only 75 next to your 84, but you think like I do. I would do without. If you are drinking or eating ANYTHING that contains caffeine in it, such as coffee, chocolate, colas, mountain dew, eliminate completely and let me know what happens.

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I haven't seen any convincing evidence that caffeine is going to be a trigger for people. In fact, the evidence is that caffeine enhances heart function, although not six cups of it a day, or a single Mountain Dew. It wasn't caffeine that set me off...if was being in the middle of a mid-morning run. I still have a light-caffeine pot of tea each morning to start hydrating, and then have a pretty decent sized coffee, full test, mid-afternoon with the missus. My heart rate does increase, but it doesn't come close to setting off PACs or AF.

With that comment aside, I do support a methodical exploration of what could be one's triggers, and that would clearly have to include trials of caffeine-free and caffeine-loading days, probably two or three days apart as a minimum to clear out all residues and to let the heart stabilize. Also would be tests for magnesium supplementation, calcium, and potassium supplementation, exercise, the kinds of foods that reliably disagree with the person, etc. If the AF seems to be only loosely associated, or not at all, then it's something other than what you're trialing.

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I haven't had any caffeine in 40 years so it is not a trigger for my afib, as I wrote before. It seems to be a standard recommendation by doctors to avoid caffeine so thank you lindy9 for adding to the discussion.

I do magnesium at night, calcium twice a day, and drink low sodium V-8 for potassium. I avoid lying on my right side, don't eat after 5 or 6, and don't recline after eating. I have spinal fractures which have rearranged my insides and things like lifting (moving diaphragm up), eating a big meal and stress (one time an alarm in the middle of the night) seem to be my triggers.

We are all different. It is, I think, important to at least try to identify triggers though our hearts aren't always easy to control. Overall I think things are more complex than doing or avoiding just one thing for most of us.

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Since paroxysmal tachycardia started in my late teens and at that time, I had never touched caffeine not even cokes. I don’t consider that much of a trigger. The two major episodes I had recently started while I was bending over such as putting on shoes or picking up sticks. The heart got a little too squeezed, I’m not about to give up my one cup of coffee in the morning. I am wondering if there could be deep seated unknown concerns in my subconscious regarding the Concerns about my beloved, who is dealing with a rare blood cancer.
Yes we are very complicated beings,- mind, body, spirit, and our whole being needs to be attended to holistically.
I’m trying my best. thank you all for sharing.

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My conclusion is: it is simply an 85-year-old heart that is wearing out and giving me clues to my “end times“

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When I was somewhat heavy, with a BMI of about 28, I could bring on AF when bending over to tie my shoes or when putting on socks, even. I attributed the response to tonal change in the Vagus nerve (you should research this issue), but I think that change was due to visceral fat encroaching on internal organs. Bending over to tie shoes does put a heckuva strain on one's innards if it is replete with visceral fat.

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@gloaming

It depends on: frequency, duration, and the actual rate. Oh, and how much it impacts your well-being as well.

a. If you are frequently experiencing SVT, it can seriously impact your sense of ease and well-being. It can interfere with proper rest, or even cause you to want to stop going for walks or cycling or hiking...which is never ideal, particularly as you get north of 75. If it's once a day, no problem. Three times a day, not really a problem....unless..

b. ..it's lasting for an hour or three each time, or you begin to fear it wants to persist and to continue in perpetuity;

c. if the rate is above 100 BPM, you don't really want that, not for long. Again, an hour once a day...a pain in the patoot, and it bears watching....but you won't die from that. Once your rate soars above 100 BPM and stays there for a total of two, three, six hours each day, or never seems to want to quit and to return to NSR, you should start thinking about getting an intervention from an electrophysiologist. In fact, once you have an arrhythmia, you should shake hands with a really good, highly sought, EP and get in line for a remedy that she/he can offer.

Bottom line with SVT, flutter, and atrial fibrillation, your heart can tolerate a lot of it for short periods...now and then. When the rate begins to soar reliably, and the frequency of events begins to climb, drugs are losing ground and your wonky heart's electrics are gaining it. IOW, these things tend to evolve, or to progress, to more intractable levels and persistence, and they get harder for the mid-level electrophysiologists to treat. Even the very top tier EPs will struggle to fix your rhythm if you go too long and your heart begins to develop other pathology as a result.

If your monitoring device ever says that you have ventricular tachycardia (and not just SVT), call an ambulance immediately, or get yourself driven to the nearest ER that has a great reputation for cardiac problems.

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Thankyou

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@gloaming

When I was somewhat heavy, with a BMI of about 28, I could bring on AF when bending over to tie my shoes or when putting on socks, even. I attributed the response to tonal change in the Vagus nerve (you should research this issue), but I think that change was due to visceral fat encroaching on internal organs. Bending over to tie shoes does put a heckuva strain on one's innards if it is replete with visceral fat.

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With several fractures in my spine I don't even have to bend over to press on my innards!

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@gloaming

I haven't seen any convincing evidence that caffeine is going to be a trigger for people. In fact, the evidence is that caffeine enhances heart function, although not six cups of it a day, or a single Mountain Dew. It wasn't caffeine that set me off...if was being in the middle of a mid-morning run. I still have a light-caffeine pot of tea each morning to start hydrating, and then have a pretty decent sized coffee, full test, mid-afternoon with the missus. My heart rate does increase, but it doesn't come close to setting off PACs or AF.

With that comment aside, I do support a methodical exploration of what could be one's triggers, and that would clearly have to include trials of caffeine-free and caffeine-loading days, probably two or three days apart as a minimum to clear out all residues and to let the heart stabilize. Also would be tests for magnesium supplementation, calcium, and potassium supplementation, exercise, the kinds of foods that reliably disagree with the person, etc. If the AF seems to be only loosely associated, or not at all, then it's something other than what you're trialing.

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I had severe episodes of AFIB for years. Then READ in a news column written to a DOCTOR, who had same symptoms as mine and HE said SOME people are EXTREMELY sensitive to caffeine and CAUSES heart rythm problems. in them. I had been drinking 4 cups a day, and I decreased to 1/2 cup and it caused problems with that amount. After ELIMINATING, I have no problems. I used to have episodes lasting for a few minutes to all night long. That was when I was 21. At age 75, I started to eat some coffee ice cream made in the US, and boom I had an episode. I mentioned Mountain Dew because some people do not know it contains more caffeine than colas. I don't care what the evidence says. I know what causes it in me and the DOCTOR said the same. Before quitting coffee, I tested it over and over because I did NOT want to give up my coffee or coffee ice cream. The night I had serious arrythmia, I had eaten only 1/4 cup of coffee ice cream and two small pieces of dark chocolate.

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@lindy9

I had severe episodes of AFIB for years. Then READ in a news column written to a DOCTOR, who had same symptoms as mine and HE said SOME people are EXTREMELY sensitive to caffeine and CAUSES heart rythm problems. in them. I had been drinking 4 cups a day, and I decreased to 1/2 cup and it caused problems with that amount. After ELIMINATING, I have no problems. I used to have episodes lasting for a few minutes to all night long. That was when I was 21. At age 75, I started to eat some coffee ice cream made in the US, and boom I had an episode. I mentioned Mountain Dew because some people do not know it contains more caffeine than colas. I don't care what the evidence says. I know what causes it in me and the DOCTOR said the same. Before quitting coffee, I tested it over and over because I did NOT want to give up my coffee or coffee ice cream. The night I had serious arrythmia, I had eaten only 1/4 cup of coffee ice cream and two small pieces of dark chocolate.

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@lindy9 have you considered that you might have an allergy or intolerance for caffeine? I gave it up when I had a chocolate bar while hiking, felt sick, and my heart rate got really fast. It was not enough to cause the usual kind of caffeine effect- very small amount of a Hershey's.

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