Anyone waiting for liver transplant and diagnosed with liver cancer?

Great news. Once he starts the test it will be like super fast paced and very thorough. Everything from mindset, mental, and physical condition. I mean everything. Is checked and checked again.
I had more test added before approval. Good luck and mostly God bless you and your family.

Thank you for for words of encouragement. Life has been an emotional journey since diagnosis til now. I’m praying Mayo Clinic will be the answer.

I believe you will hit the jackpot at Mayo. We believe we have.

Im glad for you. This has been a rough 18 months with back surgery that failed to cancer diagnosis followed by medical retirement from a career he loved. He deserves the best and I hope Mayo is it because so far civilian and VA doctors have not helped. His civilian doctor got mad when I asked questions and when I wanted to know why certain things were being done. We will be there next week for testing, hoping for good things to hapoen.

I am in the same situation. Had y90 TARE treatment that killed the 3.5 cm single tumor. Just received exception points. All blood work is good. Doctor said I could get call within 8 to 16 months.

My husband has been diagnosed with hepatocellular cancer. What are our treatment options?

Im in the same boat. Waited 2 1/2 years for the tumor to grow to 2CM and had the ablation done back on May 9th, first follow up MRI looks good although they now see some abnormality in my Pancreas. Going in for a biopsy on the 19th of this month. Oncologist said it could be nothing and a possible result of the Portal Hypertension.
Im still working full time despite some common Cirrhosis related issues and the beta blocker fatigue. I want to stay in denial about it all and just continue on as normal. This past year has been a real slap in the face. I was thinking id coast into retirement and see how things go and if necessary get my TX at some point closer to 70 or not at all. Im 63M now. I think we are both fortunate as others have said, that we have some time to plan and accept. My current meld is 13, im told at the end of the 6 months that goes up to approximately 28-30 if nothing changes.
As an old friend told me we are in the bonus round. Ive lived with this hanging over my head since i was 26 when i first discovered i had HEP-C. Lots of living has been done in the past 37 years. My hope is ill do well with the transplant and feel fortunate that i have that option. Not the retirement gift i was thinking about but it truly is a gift right?

Thank you for sharing. I am hoping your biopsy goes well. Yes, just to be here at our age makes us fortunate although you are younger than me. I am with you on the Beta blocker fatigue.
That projected MELD score will definitely put you on that transplant list. I am confident you will do well when you get your transplant.
I am fortunate enough to avoid one for now anyway.
Best of luck to you.

@phillydawg, It's good to hear that treatment has gained you some exception points and that things are looking hopeful for you getting your liver transplant! I guess that you know that the waiting time is anyone's guess and that it could happen sooner - or - later that the doctor suggested time.
I found a discussion that I want to be sure that you see because it contains some very helpful information from other members about how they prepared in advance for the transplant. Your comments, questions, and your own helpful tips are always welcome:
- Waiting for the Call: What needs to get done at home before you go?
https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/
Phillydawg, Where will you go for your transplant? Does it involve travel and lodging?

Welcome @melborn09. See this article from Mayo Clinic listing the various treatment options for:
- Hepatocellular carcinoma https://www.mayoclinic.org/diseases-conditions/hepatocellular-carcinoma/cdc-20354552

What treatment plan is being suggested for your husband? How are you doing?