Anyone waiting for liver transplant and diagnosed with liver cancer?

Posted by parrot53 @parrot53, Nov 8, 2022

Good Day All,
I am wondering if anyone is in a similar situation. I have cirrhosis with good liver function. I was diagnosed with HCC and the tumor was treated with ablation. It has not recurred, at least not yet. It is my understanding that there is a 70% chance there will be more cancer due to a Cirrhotic liver. I am currently status 7 on the transplant list for a liver as I need to wait the required six months to gain MELD score exception points for the HCC. I feel very fortunate to have this time as this has been going on for the last three years now. However, I am worried about the cancer coming back and also unsure about a transplant if it does not come back. Just wondering if any of you are in or have been in a similar situation and have some encouragement. Thanks for listening.

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mbentley | @mbentley | Apr 8, 2023

Great news. Once he starts the test it will be like super fast paced and very thorough. Everything from mindset, mental, and physical condition. I mean everything. Is checked and checked again.
I had more test added before approval. Good luck and mostly God bless you and your family.

lindsay208 | @lindsay208 | Apr 8, 2023

In reply to @mbentley "Great news. Once he starts the test it will be like super fast paced and very..." + (show)

Thank you for for words of encouragement. Life has been an emotional journey since diagnosis til now. I’m praying Mayo Clinic will be the answer.

mbentley | @mbentley | Apr 16, 2023

In reply to @lindsay208 "Thank you for for words of encouragement. Life has been an emotional journey since diagnosis til..." + (show)

I believe you will hit the jackpot at Mayo. We believe we have.

lindsay208 | @lindsay208 | Apr 16, 2023

In reply to @mbentley "I believe you will hit the jackpot at Mayo. We believe we have." + (show)

Im glad for you. This has been a rough 18 months with back surgery that failed to cancer diagnosis followed by medical retirement from a career he loved. He deserves the best and I hope Mayo is it because so far civilian and VA doctors have not helped. His civilian doctor got mad when I asked questions and when I wanted to know why certain things were being done. We will be there next week for testing, hoping for good things to hapoen.

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