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Does anyone suffer from CIRS (Chronic Inflammatory Response Syndrome)?

Posted by sunnyred2247 @sunnyred2247, Oct 26, 2022

I have CIRS, and looking for others who r, as well. So few Drs who even know what it is!!

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willwingert | @willwingert | Apr 23 11:49pm
In reply to @bayhorse "Could you please tell me what type of physician diagnosed you? I go to an integrative..." + (show)
@bayhorse

Could you please tell me what type of physician diagnosed you? I go to an integrative pcp who does lots of testing for mold-born, tick-related and other illnesses that traditional doctors don't know about or bother with, but still have never heard of CIRS.

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Go to a Shoemaker certifed practitioner. Go to survivingmold.com You can find one in your area. Note: they are ALL out of network

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boonay | @boonay | Apr 25 2:20pm

I already tried that. Reached out several times to two different Shoemaker dr’s and my PCP reached out to one. No one ever replied. This was about three years ago.

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lymecirsmcsarereal | @lymecirsmcsarereal | Jul 7 8:44am

CIRS, like countless other very real and treatable conditions such as chronic lyme disease and confections, heavy metal poisoning, Multiple Chemical Sensitivity just to mention a few) are ignored by Mayo Clinic (or considered psychosomatic, it s such a joke).
Your guides to healing: 1) book by Dr Neil Nathan Toxic, lists exams and protocols, he considers both reactivity (CIRS) after mold exposure AND colonisation 2) Shoemaker protocol: it has its limits, but it's still a valid approach to detox from mycotoxins, also invaluable the notion of mold avoidance 3) if your symptoms are very serious, consider a more radical approach, Erik Johnson's Guide to Mold Avoidance will show you how to reduce the sensitivity with long-term avoidance (I confirm first hand it works) 4) There have been several online conferences modelled after the Lyme Summits by Dr Jay Davidosn, and a couple are called Mold Summits, with many presentations outlining different approaches. After the event you can access the talks by paying, but if you are lucky there might be a new summit coming up, and that is free to watch during the event days. That's all I know, I hope this helps someone. I sincerely hope that mold illness and CIRS, like other environmental illness become recognised by Mayo clinic, so much suffering that could be completely avoidable.

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lymecirsmcsarereal | @lymecirsmcsarereal | Jul 7 8:46am

Jay Davidson, not Davidosn

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bluejayga | @bluejayga | Oct 20 9:38pm
In reply to @bfreeece "Hi there, thanks for checking in. I'm still healing, however have come a long way in..." + (show)
@bfreeece

Hi there, thanks for checking in. I'm still healing, however have come a long way in 8 months and I want you to know that hope is possible. I'm sorry to hear you think CIRS may be your root cause, however knowledge is power and having a diagnosis is huge in healing. I hope you feel encouraged to keep seeking answers.

As a first step, I would recommend finding a naturopath/functional doctor that specializes in CIRS. Next, work with them on testing to find out what exactly is going on internally (and perhaps externally) if you're dealing with mold. It's possible you have the MTHFR gene that limits your detox capabilities. I grew terribly ill in an apartment with mold, however my partner was fine. Everyone is different. You can test your home using the ERMI swiffer sample.

If it's mold related, it's likely past infections may have reactived from your weakened immune system. I had lyme when I was 11 years old that was dormant until I became ill. Treatment will be specific to you. This includes getting out of exposure (if mold related) opening drainage pathways (dry brushing, saunas, detox baths, movement.) Then introducing binders, herbs, and in some cases a 3-6 month dose of an antifungal if there is mold colonies within the body. Your functional doctor can help test for these things. Sadly, most of this is not covered by insurance however you can request the initial labs be done through quest/labcorp to help with some of the costs. Not all labs will be able to be done this way.

I'm simply sharing my experience and journey, however yours may be different. If you want to chat further 1:1 feel free to message me and I would be happy to connect. CIRS can be so isolating and challenging for the person affected and family/friends. You aren't alone and like I said, there is hope.

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Hello, has the condition fully subsided since starting treatment over a year ago?

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