Is it kidney or back pain?

Posted by maxxmaxx @maxxmaxx, May 23 5:27pm

i have had bladder infections recently and have ckd, plus spondylolisthesis. how can i find out which problem the pain is from?

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@gingerw

@maxxmaxx For many of us in more rural settings, changing to a new PCP is a challenge. I can relate, definitely. But we need to do our own advocacy to get the best healthcare we can. For me, I have found a good Nurse Practitioner here in rural Oregon. Almost an hour away, each way. And my two main specialists are two hours away, each way. [I campaign for appointments on the same day to minimize trips]

Please let us know what ends up happening, okay?
Ginger

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Thank you for your response. I appreciate it.

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@cehunt57

I’ve also heard cranberry juice can be helpful. I put myself through college & grad school as a CNA. We used to push cranberry juice in the nursing homes especially to the elderly who were catheterized. Also probiotics such as yogurt and Kefir are useful during & after a course of antibiotics to get back to normal. To put the good stuff back in since it might have been depleted by the antibiotics.

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My Nephrologist has me on cranberry extract capsules 500mg twice daily. I have an indwelling
catheter with a valve on the end. When it is open there is a direct line into my bladder, that said I use common sense in terms of hygiene and have not had a UTI for several years.

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I would see my primary physician for this.

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Do anyone eat legumes with CKD STAGE 3a?

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For the past several years I have had UTIs one after the other. Finally the urologist prescribed a drug called Methenamine HIPPURATE. It is a preventative and antibiotic. I’ve now been on it for about a year and a half without any infections. With my insurance it costs about $125 for a 90 day supply. But I shop around on the sites such as Good Rx (there are several) and ive gotten it for as low as $21 but usually closer to $50. Still a good price.

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@bjs040953

Do anyone eat legumes with CKD STAGE 3a?

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I hover between stage 2 and stage 3 and try not to eat legumes. I will if a friend serves them when I am a guest or to try a new dish. It was hard at first because it was a regular source of protein for me, but my doctor wants me to cut down on protein. I usually get a serving of eggs, non-fat Greek yogurt or cheese each day, occasionally chicken or another meat.

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6 months ago a cyst on my right kidney ruptured. Its been a slow healing process. My hemoglobin is back to the low end of normal and I'm gradually gaining my strength back. I've known for a long time that I have numerous kidney cysts and my PCP finally called it Polycystic kidney disease. I'm wondering about others experiences with this.

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@petr

6 months ago a cyst on my right kidney ruptured. Its been a slow healing process. My hemoglobin is back to the low end of normal and I'm gradually gaining my strength back. I've known for a long time that I have numerous kidney cysts and my PCP finally called it Polycystic kidney disease. I'm wondering about others experiences with this.

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@petr I can only relate to the right kidney cyst I had many years ago. My urologist sent me to an interventional radiologist, whom I would recommend at this point for you. The diagnosis of the small mass was cancerous and had it removed as outpatient at my local hospital through cryoabation, which freezes the mass and eventually disappears. Absolutely no pain and went home in less than 2 hours after the procedure.

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@petr

6 months ago a cyst on my right kidney ruptured. Its been a slow healing process. My hemoglobin is back to the low end of normal and I'm gradually gaining my strength back. I've known for a long time that I have numerous kidney cysts and my PCP finally called it Polycystic kidney disease. I'm wondering about others experiences with this.

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@petr If you go to the head of this support group, and type in "polycystic kidney disease" [without the quote marks] in the search box, you will find several discussions about this condition. I urge you to peruse those conversations and get a feel for what your doctor is telling you. Has he referred you to a nephrologist, yet? Now is the time!
Ginger

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@annefranklin

I hover between stage 2 and stage 3 and try not to eat legumes. I will if a friend serves them when I am a guest or to try a new dish. It was hard at first because it was a regular source of protein for me, but my doctor wants me to cut down on protein. I usually get a serving of eggs, non-fat Greek yogurt or cheese each day, occasionally chicken or another meat.

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I have read updated current information from reliable sources that legumes are fine in moderation and an excellent healthy protein for CKD stage 3a. The concern I believe is that they are quite high in potassium. if you’ve been told to limit potassium due to high levels showing in your labs you need to track your intake so you stay within your personal guidelines.

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