Is 2 months average to have your kidney removed from RCC?
I have hemorrhagic renal cell carcinoma that is 8 centimeters. I saw an urologist yesterday for surgery. She told me that she is scheduling 2 months out because they are backed up. Am I the only one who thinks this is too long to wait. I have pain in my lower back that shoots down to my leg from it rubbing on my spine. I also have terrible exhaustion. My aunt and I think that it should only take one, maybe two weeks. How long have some of you folks had to wait. It could spread and I am suffering. I cannot imagine doing this for 2 months waiting.
Interested in more discussions like this? Go to the Kidney Cancer Support Group.
Kidney removal surgery was rather smooth. My incisions were sore and it took about 2 weeks to sit/stand up completely but not a lot of pain or discomfort. Within a month I felt great!
Yes, I changed my diet intentionally (since I want to keep my one kidney healthy) and unintentional. Lighter smaller portions are better. I don’t eat any heavy foods. I eat rather bland and healthy. It’s easier to digest.
Overall, removal and food changes were very easy to adapt.
Anyone know if a renal cyst to be cancerous I'm awaiting mri to find out for sure the ultra sound said it was a simple cyst it's 4.5cm and the cat scan said it was a renal cyst but they ordered a mri because increased values on cat scan just wanting to get some thoughts about this
Every body one here that's posted I have really took everything in and I can relate and it has made me feel a lot better hearing everyone's story I hope all of you are doing well and my prayers go out thanks again for sharing your journey
@richardgriffin Welcome to Mayo Clinic Connect.
It will be in your best interest to wait and see what the MRI has to reveal to you. Cysts can be funny creatures, acting up then going away. Your doctor will be able to put all the results together and figure out, with your input, what the next steps may be.
When is your MRI appointment?
Ginger
On the 22nd of this month is my mri have you had kidney cancer
@richardgriffin I have had numerous cysts on my kidneys. One was thought to be cancerous, and was followed for more than a year. The plan was to remove the kidney once I started on dialysis. The urologist eventually concluded it was not "acting like a tumor" and could not concretely diagnose it as RCC. So, we have chosen to monitor from time to time, now.
I will most anxious to hear what the results of your MRI are.
Ginger
Hi @richardgriffin, how did the MRI go? When will you discuss the results with your doctor?
I will begin with an apology because I just joined the website. Please forgive me if I am not posting correctly.
I am in the same boat in terms of a potential long wait for surgery.
My first urology visit was with a NP because the urologist was booked into August and his surgery schedule is booked into December! I may lose my mind by that time! My oncologist plans to coordinate with him but I am afraid of the implications of a prolonged wait.
I am at the beginning of my journey. Maybe Stage 1B, which is great but there was something weird in my lungs on abdominal CT. Chest CT in days.
I see the NP and will hopefully meet the urologist in a few days (same day as the chest CT). I just don't know what is reasonable in terms of a surgery wait.
I would appreciate anyone's encouragement.
I waited three weeks for the results of the CT scan that found the tumor on my right kidney. The urologist scheduled me for a biopsy, which was just to check to see if the kidney alone was affected. He placed a stent and I had surgery again two weeks later to remove the stent, which widened the ureter enough to get the device for the laparoscopy device to reach the kidney. Having determined the kidney was fine, the tumor was on the outside and nothing else was affected he determined to remove the kidney. I was scheduled for the nephrectomy two and a half months later. I think the timing mainly depends on the individual urologist's workload and how serious he/she considers the situation. If you're oncologist is coordinating with the urologist, you seem to be in good hands. God be with you.
Hi @patrice411, I hope you saw the helpful post from @lonia.
Waiting is hard. Any update from the chest CT scan and consult with the urologist? How are you doing?