Tymlos causing belly fat?

Posted by kaa1 @kaa1, Jun 3 6:23pm

I’m on Tymlos for about 2 1/2 months now. I’m not usually concerned about my weight. I stay pretty stable. I’ve noticed that my belly seems to be getting fatter. Has anyone experienced this belly fat situation from Tymlos? Is there anything I can do about it? Why is it happening? Thanks for any input.

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Unfortunately I can’t tell if I got something out of Tymlos (except a jelly roll, lol) because after 8-1/2 months of full doses, I switched to Evenity. So, after Tymlos and an additional 5 doses of Evenity, I had great T-score improvement; mostly in my spine. The answer, my friends, is blowin’ in the wind . . .

If my belly issue means I have stronger bones, I guess that’s a trade off I should just accept, or perhaps it will subside on its own. Hopefully I’ll be able to stand up straighter, which should make my belly look flatter. Silver lining? I think so! :).

Cheers y’all!

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I am definitely noticing more belly fat since starting Forteo. My clothes are too tight. At first I thought it might be the dairy I’ve added to my diet, but now I’m wondering if it is a combination?

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I am 79-yr old on Tymlos for 20+ months and have noticed upper belly fat roll and belly fat on the lower belly. Hope that after treatment ends I could reduce some fat perticularly the fat roll.

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@rajmayo22

I am 79-yr old on Tymlos for 20+ months and have noticed upper belly fat roll and belly fat on the lower belly. Hope that after treatment ends I could reduce some fat perticularly the fat roll.

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I am 72 and about to finish 2 years on Tymlos. I’ve always had a bit of a belly, especially after the birth of our twins in 1985, but the belly fat these last 6 months of treatment has really increased and I’m hoping I’ll see a decrease when I’ve completed treatment this month. It’s frustrating to also have weight gain which has been difficult to take off even thought it’s always been pretty easy for me.

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Yes indeed I am expereincing belly fat - I have been slender and firm all my life ( 69yrs) but the tymlos has defiently added a belly flab roll; I laugh becasue I almost cant see my navel! I have servere osteo so it is a small price to pay - meanwhile health is dependent on some fat so in all honestly I probablly needed some. In general very thin people ( below127) after menopause, tend to have weaker bone. Many reasons.... I feel in some part it may have to do with estrogen - after menopause some of this important hormone is made in the adipose tissue. Not enough adipose tissue , not enough support for the Estrogen loss , which is a regualtor of bone health.
Meanwhile, I would feel better if the doctors admitted the belly flab issue....rather than dismiss our expereinces.
Sending healing and hope

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Increased belly fat is most definitely a side effect of Tymlos--although the drug company does not list it as so. From what I understand, if it wasn't prevalent in the clinical trials, then they didn't have to show it as a side effect. I have been naturally thin my whole life, and even after each of my children were born, I would go right back down to my regular size 4. But within 3 months of starting Tymlos, I began to slowly gain belly fat and actually had to go up a size in my clothing just to be comfortable. But as others have said, it will be worth it if the trade off is stronger bones. Hoping the belly fat will disappear when I finish the drug. On a positive note, I had one DEXA after 18 months on Tymlos and my spine improved by 12%, from -3.5 to -2.8 so it's working for me. I am almost finished now and need to make a decision on what drug to go on next, to keep these gains. I cannot tolerate bisphosphonates and cannot take prolia due to some dental issues. My doctor wants me to try Evista so I am now trying to find as much information as I can find before I take it.

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I have been using Tymlos for six months. So upset about the roll around my middle….stomach always flat as I’ve been a Pilates teacher and thin (5’2 115 lbs for years). All my paints tighter at waist. Has anyone been able to reverse this when done with Tymlos? Thank you!

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@cyntorello

I have been using Tymlos for six months. So upset about the roll around my middle….stomach always flat as I’ve been a Pilates teacher and thin (5’2 115 lbs for years). All my paints tighter at waist. Has anyone been able to reverse this when done with Tymlos? Thank you!

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I sure hope so! I’m experiencing the same thing with teraparatide (a Forteo bio similar drug). I’m also 5’2” and my ideal weight is 115 lbs. I’ve gained quite the little gut.

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@jomck

Increased belly fat is most definitely a side effect of Tymlos--although the drug company does not list it as so. From what I understand, if it wasn't prevalent in the clinical trials, then they didn't have to show it as a side effect. I have been naturally thin my whole life, and even after each of my children were born, I would go right back down to my regular size 4. But within 3 months of starting Tymlos, I began to slowly gain belly fat and actually had to go up a size in my clothing just to be comfortable. But as others have said, it will be worth it if the trade off is stronger bones. Hoping the belly fat will disappear when I finish the drug. On a positive note, I had one DEXA after 18 months on Tymlos and my spine improved by 12%, from -3.5 to -2.8 so it's working for me. I am almost finished now and need to make a decision on what drug to go on next, to keep these gains. I cannot tolerate bisphosphonates and cannot take prolia due to some dental issues. My doctor wants me to try Evista so I am now trying to find as much information as I can find before I take it.

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Hello! I was wondering if you might elaborate on the dental? I have horrible dental pain which I have tied to the Tymlos. But I am in the beginning stages of the meds. I seem to be adjusting now but everytime I start the meds (2 times) and then everytime I up the dose 2 clicks, 4, 6, and then to 8 clicks I got HORRIBLE pain on my right dental side from below my sinus to my teeth. It was kinda like having a migraine along my nerve route. It was unbelievably painful a couple times. This last time I predicted it would come and adjusted a bit. Seems to last several days and then subsides. I can't figure it out, but know it aligns with the medication. There is a condition Trigeminal Neuralgia - that is what i get. The nerves just create so much havoc in my jaw along the 3 nerve routes. I paid to go to the dentist in the beginning of the meds and they found nothing. At that time I didn't have a clue it could be the medication! Anyone else?

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@loriesco

Hello! I was wondering if you might elaborate on the dental? I have horrible dental pain which I have tied to the Tymlos. But I am in the beginning stages of the meds. I seem to be adjusting now but everytime I start the meds (2 times) and then everytime I up the dose 2 clicks, 4, 6, and then to 8 clicks I got HORRIBLE pain on my right dental side from below my sinus to my teeth. It was kinda like having a migraine along my nerve route. It was unbelievably painful a couple times. This last time I predicted it would come and adjusted a bit. Seems to last several days and then subsides. I can't figure it out, but know it aligns with the medication. There is a condition Trigeminal Neuralgia - that is what i get. The nerves just create so much havoc in my jaw along the 3 nerve routes. I paid to go to the dentist in the beginning of the meds and they found nothing. At that time I didn't have a clue it could be the medication! Anyone else?

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@loriesco I have trigeminal neuralgia and see a neurologist, which might be helpful for you, especially if there are no actual dental issues (which Tymlos reputedly does not cause). Also, many of us had good gains with doses of Tymlos that were 4, 6 or 7 clicks. Maybe you could try going down to 6 for awhile?

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