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feeling tired?
What is everyone’s most nagging symptom with HCM? Mine is i am sooooo tired all the time. No energy!
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What is everyone’s most nagging symptom with HCM? Mine is i am sooooo tired all the time. No energy!
Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
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Agree me too. However, now on my 4th month in Camzyos my energy is getting back and my face is getting back the normal color.
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2 ReactionsHi @hpboss84. Since going on Camzyos (Sept 2023) ALL of my HCM symptoms have completely vanished. But before that? I wasn't tired in the "sleepy" sense. More like "I've just done a hard, 3 hour workout" sense. I was unable to climb a flight of stairs without 1 or 2 rest stops to let the dizziness, shortness of breath, chest pain, and palpitations pass. Couldn't bend over to tie my shoes without the same. Ditto going for a walk - on completely flat ground I might get a block away before I's have to stop. On a super-gentle incline, it was just like stairs. ANY kind of exertion just had me exhausted. I'm one of the lucky ones who was eligible for Camzyos and also one of the lucky ones for whom Camzyos work hard and fast. Less than 2 weeks in, I felt NOTHING of my 17 years of progressively worse symptoms. I feel your pain. I hope you can get relief.
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1 ReactionI agree I am chronically exhausted, when I do have a bit of energy, I will do some work such as mowing the lawn and when I stop I crash.