1. < MAC & Bronchiectasis

Natural remedies for MAC

Posted by med08 @med08, Sep 30, 2022

Some have posted they use Chinese herbs and acupuncture to help with MAC. Which herbs and what part of body do you get acupuncture and for what specifically?

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sweethighland | @sweethighland | Jun 18 3:56pm
In reply to @silverlinda "I got Paracleanse OTC at Walmart which also has wormwood, clove with Neem Extract and the..." + (show)
@silverlinda

I got Paracleanse OTC at Walmart which also has wormwood, clove with Neem Extract and the other bottle is Fulvic Acid I mix in my water once daily. Ashwadandha capsules in vitamins at Walmart also. I just read where wormwood was good with MAC bacterial infections. So far I feel okay I will say when I took 2 of the big three I had such a migraine I couldn't get up or function to do anything and was so nauseated. I'm still taking the one antibiotic Azithromycin.Also drinking an Ensure daily. Drinking Ginger tea also and taking ginger root capsule too. Still do my breathing treatments and I'm on oxygen at night.

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Thank you for the information.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 19 3:28pm

When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. Keep in mind that natural substances can also have toxicities, adverse side effects and treatment interactions. Supplements are not regulated and can be marketed without rigorous clinical testing.

It's so important to do your research, check for FDA warnings, etc. as you all have done. All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

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1fancydancer | @1fancydancer | Jun 19 3:47pm
In reply to @sadies1mom "How do you who have MAC lung disease deal with the FATIGUE? My Dr. says, "Use..." + (show)
@sadies1mom

How do you who have MAC lung disease deal with the FATIGUE?
My Dr. says, "Use your lungs or lose your lungs!"
I am a former runner
& athlete. The MAC fatigue makes cardio exercise such a challenge.

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You better move anyway! If you can't run, WALK! Your Dr. is correct. When you just can't move your body any more practice deep breathing exercises. Rest for a day then hit it again. I don't care how tired you are , get up and move. Even if a little bit. My experience is you will have more energy after a little bit of moving.You probably know this from experience. Just when you are getting ready to cross that finish line you get renewed energy. Use your mind to overcome the fatigue. Wash a load of clothes, do the dishes, weed the garden . . . . just move. Anything will help. You can do this especially if you are a former runner! Now you are a regular walker! It can be just as good and won't ruin your joints as you grow older. Don't give in. It will never get easier but learn to enjoy every minute. I am 68 and have dealt with this crap for the last 12 years. I still love my life and refuse to let it win. So I move.

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sadies1mom | @sadies1mom | Jun 20 11:44am

Thank you so much for the encouragement!!
So nice to talk to someone who knows!
I am 68 also and was diagnosed two years ago, although I have had it longer.
I was an athlete before and this diagnosis/disease has been quite a challenge for me!

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sadies1mom | @sadies1mom | Jun 20 9:12pm
In reply to @sueinmn "I understand unpleasant reactions to the Big 3 antibiotics - I had all of them, but..." + (show)
@sueinmn

I understand unpleasant reactions to the Big 3 antibiotics - I had all of them, but with help from my doc & his nurse, I persevered, and was able to take them long enough to knock down (but probably not knock out) the MAC infection over 4 years ago.

I am curious as to whether you shared the list of all the supplements you are taking with your doctors and pharmacist before you started the antibiotics? Each of these, whether "natural" or not, is another drug/chemical which may interact with you antibiotics or any other meds you use.

None of the listed supplements licensed or regulated, nor subject to USDA or FDA inspection and testing to be sure it is pure, and contains exactly what the label says.

Ashwaganda, which is widely accepted as safe, has the potential for nausea as a side effect. But we do not know how it interacts with antibiotics.
https://health.clevelandclinic.org/what-is-ashwagandha
Can you tell us what led you to take ParaCleanse, which is intended to remove parasites from your digestive system?
https://www.nebraskamed.com/gastrointestinal-care/gut-parasite-cleanses-like-paraguard-the-good-the-bad-and-the-ugly
And why did you add fulvic acid, which I know is popular right now, but lacks basic scientific research into its long term safety and effectiveness?
https://health.clevelandclinic.org/fulvic-acid
I did a lot of reading today, and I haven't seen good evidence that the supplements you list are going to help your body fight MAC. And I am concerned that you may be having reactions or interactions from the supplements as well as the medications - it will be a puzzle to sort it all out.
Sue

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Congratulations!
Do you feel better?
I would think so.
I have great fatigue -
Nodular MAC/Bronchiectasis

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