Pain in the butt - Can't sit down

Posted by ecalderman @ecalderman, Nov 21, 2012

I have had very intense pain at my sitz bones for over 7 months and am unable to sit down. when I sit, it feels like I am sitting on two hot pokers or rocks and it is really unbearable. So, I have been standing for seven months. I've been to a couple of spine and pain management doctors, an orthopedist, a chiropractor, a neurologist, an acupuncturist, and a massage therapist. The original diagnosis was ischial bursitis but that ha not appeared on any images. I don't have any issues with any of my lumbar disks. I'm in constant pain even when standing or lying down though those activities do not hurt as much as sitting. Has anyone heard of anything like this before?

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Plumber, the ischial tuberosity pain can be from bursitis even though nothing shows up on imaging. Have you had any steroid injections in the bursae? This is a specific painful condition not caused by spinal problems. It’s local and responds well to steroids injected into the bursae. I would ask for that if you have not had any. They should last 6-8 weeks and can be repeated. A gel cushion like those used in wheelchairs gives the most cushioning for sitting.

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You could be me. I fell 8 years ago very hard on my butt and lower back. Ever since, even after many docs of various persuasion, many treatments, injections, spinal cord stimulator, pain pump, etc, the pain or sensation of sitting on what I describe as two hockey pucks, has never gone away. Like you MRIs have not shown anything. But, as a retired science teacher, I knor that for every effect there is a cause. I just can't seem to get any doc to look further into this. I had to take charge of my medical journey years ago due to the apathy og most of the doctors I encountered. So, here I am with a totally non effective pain pump, an old spinal cord stimulatoer which was just removed, and waiting for an MRI to hopefully show something.
May we all find the help we need. Perhaps an empathetic doctor somewhere along the line.

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@heisenberg34

You could be me. I fell 8 years ago very hard on my butt and lower back. Ever since, even after many docs of various persuasion, many treatments, injections, spinal cord stimulator, pain pump, etc, the pain or sensation of sitting on what I describe as two hockey pucks, has never gone away. Like you MRIs have not shown anything. But, as a retired science teacher, I knor that for every effect there is a cause. I just can't seem to get any doc to look further into this. I had to take charge of my medical journey years ago due to the apathy og most of the doctors I encountered. So, here I am with a totally non effective pain pump, an old spinal cord stimulatoer which was just removed, and waiting for an MRI to hopefully show something.
May we all find the help we need. Perhaps an empathetic doctor somewhere along the line.

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I saw a vascular doc for testing. He asked me about pain. I told him I had left butt pain. He poked me with a finger and almost sent me across the room. That's the SI joint he told me. Sitting and lying down were most painful. Walking helped it feel some better. I just had pain management do a SI joint injection and the results have been wonderful. Sleeping on that side does not cause pain! Will have the right side done!

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@barbbielor

I saw a vascular doc for testing. He asked me about pain. I told him I had left butt pain. He poked me with a finger and almost sent me across the room. That's the SI joint he told me. Sitting and lying down were most painful. Walking helped it feel some better. I just had pain management do a SI joint injection and the results have been wonderful. Sleeping on that side does not cause pain! Will have the right side done!

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They have poked and prodded my butt to no end. Nothing. I’ve had si injections. Nothing. Seems like I’m a mystery with no explanation. Glad you found some relief.

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I am blessed with an incredibly knowledgeable and talented doctor who is on top of everything. Before he asked me to be is patient 12 years ago I saw three others. The last one I saw was so frustrated dealing with my allergies he called my current doctor and begged him to take me off his hands. When I asked why he took me on he said everyone deserves the best care and he likes a challenge!

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@heyjoe415

Oh man I'm so sorry Plumber. I wish I could suggest something but you've been through it all.

I agree about the pain meds and gabapentin. I end up felling messed up and sleepy. I had both knees replaced in 2022 and just used the diluted nerve block they gave me for three days, then Celebrex for a week and Tylenol. But nothing at all like what you are going through.

This is what scares me about lumbar fusion, or any spinal fusion. It's a last resort. For joint replacements most stories are good. I had three laminotomies on S1, L5, and L4 and all good.

I do wish you the best friend. Stay strong. Joe

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Hello, I had a failed laminectomy 2008, THAT SO CALLED SURGEON TOOK OUT
S-1 L-2 L-3. L-4. L-5 NO FUSION, Pain was and still bad. Fusion 2016 failed!! 2008 was the last time I drove. I have always been an independent person but now I have to depend on my husband for bending, getting dressed waist down, Chronic lumbar pain. I have been using a pain pump for years.Now I have Small Fiber Neuropathy, Sojgren's. Pain Management dr. will be doing a procedure wed. 19th to remove scar tissue. hope that doesn't fail either! Enough already!

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@barbbielor

I am blessed with an incredibly knowledgeable and talented doctor who is on top of everything. Before he asked me to be is patient 12 years ago I saw three others. The last one I saw was so frustrated dealing with my allergies he called my current doctor and begged him to take me off his hands. When I asked why he took me on he said everyone deserves the best care and he likes a challenge!

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I would love to be able to find a doctor like the one you describe. Prior to moving to a new state last year, I had a pain pump implanted because no other therapies were touching my severe, chronic pain that raised its ugly head again in 2021. My new pain management doc here refills and adjusts (too many times to keep count) it upwards. I have never had any relief from this thing...none. I keep asking him to try another option or reach out to his colleagues for some answers. Oh, no. he is wise and knowledgeable and will come up with something. Ha! After nine months, I am in much worse pain than I was when I first saw him. I have taken my medical care into my own hands. Got my PCP to schedule an MRI to see what's going on in the back. Scheduled appointment with neurologist, perhaps get an EMG. I just know that I am sick and tired of this doctor doing nothing that helps me. So glad that you found someone who actually listens to you. I wish you well.

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