Reclast Infusions: Side-effects & Recovery time

@windyshores Do you know anything more about being able to wait 2-3 months after Evenity? Is that the length of time before one would start losing bone again after Evenity? I had just assumed you needed to start the next med one month after the last Evenity shot. I mean it would be great to know that you have a bit of time afterwards before plunging into the next med. Logically you wouldn't get a DXA scan to see your Evenity results until a month after your last shot. So already a month would have past and depending on the results of the DXA you might want some time to think and research your next step.

Hi. I had Gastric Bypass and I have Gerd. I had 1 Prolia shot but NO MORE. Too many side effects. I will be seeing a Rheumatologist to take me off Prolia.( Next shot due in Aug) I need a relay med and Reclast IV is 1 of them. But I’m afraid of that too. I’m going to ask if I can get mine in smaller doses. I didn’t know you can. TY!

@awfultruth I read that Evenity lasts in the body (or its action) for 65 days. I was surprised when my doc said "there is no hurry in doing Reclast after Evenity because the mineralization from Evenity takes time." I asked about 3 months and he said that would be okay but my CTX is very low so that might be a factor too. I really need a break after 5 years cancer meds, 2 years Tymlos and now Evenity and feel like I need to heal a little! I definitely had heard, previously- and read in "Great Nones"- that Reclast should be done one month after the last Evenity. I honestly feel they don't know or else the info is changing with more use of this med.

@windyshores I get needing a break after all that. I hope you can feel safe taking one. It is frustrating that there are so few definite answers in all this bone business. But, I am impressed with how hard you work to help yourself through all this. May your health continue to improve.

Great Bones not Nones! Tried to edit...

I am have seen rheumatology, neurology and see orthopedist (non-surgeon) this week to week out symptoms that are not from Evenity and those that are, so I can on whether to continue!

awfultruth,
At my recent appointment with rheumatologist, he said,
“Evenity injections #12 in May. Reclast in June.”
It’s scheduled and that’s the plan.

I recently had a Reclast infusion and had the expected reactionfor about 4 days. Feeling better, I did a 30 minute walk and a light workout. The next day I had extreme all over my body, tightness in my head, and my feet were very swollen and sore. At this point, I don’t want to due another infusion due my reaction and some of the bizarre reactions I am seeing on this thread. Sure there is a better treatment.

@bently2013 that sounds awful! Hope you feel better.

I had my first Reclast infusion today as a follow up to 2 years of Tymlos and 4 months Evenity. I had a 20% dose (1 mg). I had IV hydration w/saline for one hour (300mlg, originally 500ml ordered) then slow infusion of Reclast for one hour. I drank water all morning, not to excess though. Ate salty potato chips (nephrologist wanted salt) and too two doses of 325mg tylenol 3 hours apart before and after the infusion.

I'll post what happens. Fluish reaction, if it happens, supposedly starts 6 hours after the infusion and lasts 3-4 days. Fun! My main concerns are kidneys, afib, lupus.

Thanks @windyshores. I sure hope this works for you. Please keep us posted.

After about 5-6 days after my Reclast, with the help of rest and Tylenol or Advil, I was fine and had no more side effects of which I was aware. They do say that each time the side effects are less. It was also recommended to slow the infusion to 30 minutes instead of 15 (since it was my first time, and to take 1000 mgs of Tylenol. They gave me Benadryl beforehand to forestall any possible allergic reaction. Best of luck and hope your side effects have abated. .