Liver transplant side affects in young adults

@yiyii9191, I am so sorry that I sent an incomplete link. Here it the correct link to Mayo Clinic Liver Transplant Department.
https://www.mayoclinic.org/departments-centers/liver-transplant/home/orc-20211818

I hope that you will contact Mayo in Rochester MN and explain your situation to them.

I will! Thank you so much

I did not get diabetes or cataracts from my transplants. I had two livers over the past 24 years.

I ended up with pheriferial Neuropothy in my feet and lower legs. My glucose has been around 100 since my transplants.

@bobweller, did you experience numbness and tingling in your legs and feet?

Yes, saw a Neurologist and they did a series of blood tests and a electrical test on my feet. They are numb. I used to have hot and cold feelings. Most of these have passed. Now it's just pain. I take pregabalin for it but it dose not seem to help. I had one goofy doctor from 2018 until 2 years ago. He left the hospital system I belong to so I found #2 in 2022. He did some more blood work that the previous doc did. Still no definitive answer as to why I have this issue. I ran into an former Transplant Coordinator and told her. She said to me, ya this can happen. So far all I know is it's possible the Tacrolimus immune surpressant I have taken since 2000 with my 1st transplant is a probable cause. It's makes me mad at times. I ask my current Transplant doctor if we can reduce the immune surpressants and he said it below the normal range already.

Thaniks for your response, Bob. As for myself. I have not had the numbness and tingling. In fact, I was unaware of this potential issue, and don't recall seeing it mentioned in another discussion. I guess I should have said that I was asking for a friend! ( @jackie421blfdgurl )

Bob, I want to introduce you to @jackie421blfdgurl and @edwardlwallace who mentioned tingling and numbness in the support discussion: Liver transplant - Let's support each other
Here is the link
https://connect.mayoclinic.org/discussion/liver-support-group/?pg=158#comment-1081624

Jackie, Ed - I hope you will read Bob's experience.

I was transplanted on 2017 and shortly thereafter started experiencing numbness and tingling side effects and assumed I they would go away like other issues.
2023 I still have the experience and try n stay active irregardless of the sensations. I found exercise helps to curb it but doesn’t cure it.
My Hepatologist said “ not much of an option so I just look at it as better than not taking the meds.
I researched more and learned it is called Neuropathy and a lot of nontransplanted folk have it and can be caused by diabetes. I see ads on TV for breakthroughs in treatment but am a bit hesitant on their science and if it really worked I doubt if they would need those ads. Hopefully they will find a correlation or new med to help in the future until then we do what we can to make it better right ?
Hang on there
Prayers and Blessings Ed

Rosewood u should b in congress

Organ transplants can cause a condition known as post-transplant diabetes mellitus (PTDM). Here are the key points about PTDM:

PTDM occurs in 10-40% of solid organ transplant recipients, depending on the type of transplant.

It is caused by a combination of factors, including the immunosuppressive medications (especially corticosteroids and calcineurin inhibitors) required to prevent organ rejection, as these drugs can increase insulin resistance and impair insulin production.

Other risk factors include obesity, family history of diabetes, older age, certain ethnic backgrounds, hepatitis C infection, and cytomegalovirus infection.

PTDM increases the risk of graft failure and patient mortality compared to transplant recipients without diabetes.

Diagnostic criteria are the same as for type 2 diabetes, based on fasting glucose, oral glucose tolerance test, HbA1c, or random glucose with symptoms.

Management involves lifestyle modifications (diet, exercise), glucose monitoring, anti-hyperglycemic medications (insulin, oral agents), and screening for diabetes complications, similar to type 2 diabetes care.

So in summary, the immunosuppressive drugs required after transplantation, combined with other risk factors, can lead to the development of PTDM in a significant proportion of organ transplant recipients, necessitating close monitoring and management.