Migraine: Did botox work for you?

Posted by johnetteg @johnetteg, Nov 25, 2018

I had Botox injections for migraines 2 1/2 weeks ago and have been feeling sick. My vision is blurry, I have pressure in my head, I’m lightheaded, I’m having heart palpitations, high blood pressure and heart rate, my stomach has felt sick, I’m having trouble concentrating and focusing. Has anyone else experienced this? It’s really starting to scare me.

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@elmay

After endless tests including biopsies for temporal arteritis, I am having an occipital nerve block next week in hopes that it will help. Anyone else have a nerve block shot?

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@elmay. I had an occipital nerve block about 3 months ago after suffering from occipital neuralgia for 3 months. Unfortunately insurance didn’t cover it as it is considered “experimental”. My neuralgia hasn’t come back yet. I should add I also had a platelet rich plasma occipital injection 2-3 weeks before the nerve block so my symptoms had already lessened by the time I got the nerve block. I would do either again.

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@jeanette56

My Dr is suggesting that I try Botox for my chronic migraine headaches. I have them about 5times a week.

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Occipital nerve block works well for me. I have occipital neuralgia, the shots last me about 3 months then I need another. I’m anxious to see how long I can do these. I have a naturally high tolerance for anything used for pain and eventually they all stop working within a year. Then it’s try something else. When they work it’s geat.

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@migizii

@migizi….I have chronic migraines and have had Botox injections for many years with much success. It took about 3-4 rounds of injections before I had a positive reaction, but it was well worth the wait. I have gone from approximately 18 to 6 migraines a month now! I also follow a regular routine, take preventative and abortive medication, and am gluten free. There are factors I can’t control but I do the best I can….we live our best lives with what we have in front of us and try to keep our spirits positive. Most of the time I am fortunate to be able to do this.. good luck in each person’s migraine journey. It’s a challenging one

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may i ask if before the botox started working it took 3 tries u mean around the 9th month? The earlier months u had no effect what so ever? I had botox a month ago for the first time and still seeing no effect at all... Thank you

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@rwinney

Here's a video presentation on CSS by Dr. Sletten from the Mayo Clinic Pain Rehabilitation Center:


Perhaps what he explains will resonate as to why you have unexplainable pain from a very routine botox injection that typically does not cause pain as you describe.

Are you taking medications for the pain? Do you have pain anywhere else or is it isolated to your head?

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Excellent video. Very informative and I sure appreciate this!

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@benchi300

may i ask if before the botox started working it took 3 tries u mean around the 9th month? The earlier months u had no effect what so ever? I had botox a month ago for the first time and still seeing no effect at all... Thank you

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In reply to @benchi300 …. Yes, this was correct for me. I saw no results from Botox until about the 9th month, following the 3rd round of injections. My chronic migraines were at 15-20 a month and my neurologist had stated that sometimes people can get results after a few rounds. I was desperate and ready to endure all those shots in hope of something changing. I have tried so many things over my lifetime and was accustomed to giving my various attempts at least 6-9 months. That was why I kept trying. Good luck in your journey. It is a long and difficult road💕

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@sundance6

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.I won't do another treatment!Sundance

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I recently had Botox trigger point injections in my back for chronic pain. Two days later I started having a burning, stinging, cramping pain at the base of my neck and upper back on the right side which is not where the targeted pain is (my back pain is along the shoulder blades). I believe this new pain is being caused by the Botox migrating outside of the area where the injections took place. My doctor has instructed me to apply ice & heat and to do neck stretches. I'm also told to just wait for it to get better. I'm dreading the fact that Botox can last 4-6 months in your system. It's been 3 weeks now and the pain seems to be getting worse (more frequent).

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@sundance6

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.I won't do another treatment!Sundance

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I tried the Botox injections and all they did was cause more pain. I then started seeing a doctor at a pain clinic and he started me on aimovig. It worked for almost a year but then stopped working. I will be going back to the pain clinic to see if they can try something else. Use ice packs on the back of your neck and wherever your headache hits. This is the only thing that is helping a little to ease the pain. I hope you find something that helps. I have been having headaches for 54 years and have tried just about everything there is so I am hoping something new has come out. Good luck.

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@maeback

I recently had Botox trigger point injections in my back for chronic pain. Two days later I started having a burning, stinging, cramping pain at the base of my neck and upper back on the right side which is not where the targeted pain is (my back pain is along the shoulder blades). I believe this new pain is being caused by the Botox migrating outside of the area where the injections took place. My doctor has instructed me to apply ice & heat and to do neck stretches. I'm also told to just wait for it to get better. I'm dreading the fact that Botox can last 4-6 months in your system. It's been 3 weeks now and the pain seems to be getting worse (more frequent).

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Perhaps you could ask your doctor to try some of the cgrp antagonists (aimovig, emgality, ubrelvy, Vyepti, qulipta) that are on the market. If they work it is wonderful as they are not narcotics, but work by preventing the pain process from happening in the first place. I must say that none of them worked for me but one of them might for you. I hope you find relief. You are not alone. I have had migraines since the age of 8 and I’ m now 77. They aren’t killer migraines anymore -around a 5 or 6, but 24/7. Good luck to you with the new therapies out there!

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@ruislip0416

I tried the Botox injections and all they did was cause more pain. I then started seeing a doctor at a pain clinic and he started me on aimovig. It worked for almost a year but then stopped working. I will be going back to the pain clinic to see if they can try something else. Use ice packs on the back of your neck and wherever your headache hits. This is the only thing that is helping a little to ease the pain. I hope you find something that helps. I have been having headaches for 54 years and have tried just about everything there is so I am hoping something new has come out. Good luck.

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I too am using aimovig injection I started at a low dose and after a year it wasn't working for me so my GP increased my dosage to 140 mg/ML and Ubrelvy 100 mg as needed between monthly injections. It is working for me so far so maybe this may work for you. Wishing you the best.

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@richardfrancine

Perhaps you could ask your doctor to try some of the cgrp antagonists (aimovig, emgality, ubrelvy, Vyepti, qulipta) that are on the market. If they work it is wonderful as they are not narcotics, but work by preventing the pain process from happening in the first place. I must say that none of them worked for me but one of them might for you. I hope you find relief. You are not alone. I have had migraines since the age of 8 and I’ m now 77. They aren’t killer migraines anymore -around a 5 or 6, but 24/7. Good luck to you with the new therapies out there!

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I am finding that they are very expensive and not all are covered. At $1-2k a month, my medicare with additional drug coverage with the doctors valudation forvuse is still $600 for one injection.

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