Autoimmune Diseases and Fatigue

Thank you! Please let me know if Balance of Nature supplements help you combat fatigue! Also where do you get them? I suffer with many of your symptoms also. I have PBC and fibromyalgia.

I used D-ribose & couldn’t take very long because I’d get severe hypoglycemic attacks. Has anyone had that happen? My blood sugar & A1C are normal.

I have sleepiness every so often where I have to lie down and sleep or I'll fall down! It usually only lasts the one day. I have fatigue most days but I handle it by doing a little then resting a little. You can't over do it!
Be kind to yourself. The housework will still be there tomorrow so just plan your week by doing doing a little each day. If I over do it then I have rest for one or more days!

Hi @mijosmom19, Welcome to Mayo Clinic Connect. Thank you for sharing your experience with fatique. May I ask how you found Mayo Clinic Connect?

John, thankfully the worst of my autoimmune stuff did not really set in until late in life. My Fukuyama limb girdle muscular dystrophy had a brief shot at me shortly after birth, when it took the strength out of my legs and back for about 3 years. But it mostly left me alone until after age 30. Same with the RyR2. Then the Gelsolin waited until after age 60. Anyway, for most of my life I was tired for no reason. Fortunately, I forced myself to work hard and exercise hard until age 50 when my heart took a nose dive. Football was most of my life until age 50, along with running and hard labor. Bucking hay bales, construction, etc. I ran marathons and half marathons, backpacked 50 mile trails carrying 80 pound packs in wilderness areas, until age 50. But all that time I constantly fought being tired. I just refused to use that as an excuse for anything. But I was tired all the time. Now I know why. But the fatigue from the diseases that ran through my mind every day, from morning to night, just may have been the thing that saved my life.

I am 55 and pretty much feel the same. I am tired more than 98% of the time and on those rare occasions I usually over do. I pay the price! But what do you do? I tell people my mind does not work and I can't remember, even the things I did just yesterday.

I have to push myself to do anything, and depression and weakness plays a big part for me. People say to exercise, and I get short of breath taking a shower, sweeping the floor, or washing the dishes. Not sure how I would exercise and what about the next day or so?

Extreme heat and cold are horrible for me, I hurt all over or want to pass out. I would like to live where the weather is more tolerable for my body. I also forgot to mention I have Sjogren's, Fibromyalgia, Osteoarthritis, and a few more problems.

Trying to finish up working till January 31st, 2022 so I can retire. Sure seems like a long was off sometimes.

@deannweir oh, my gosh, you sound just like me! I, too, am always tired. How do you work around it? I’m taking a break right now from my sewing—it wore me out. This week I’m trying a new drug that the neurologist gave me. We’ll see.
Maybe you’ll have to join our virtual walking group!
i tried pasting the link for you, but no luck. Will try again!

thank you so much i will do just that I didn't think it Was for me sps

Hopefully your new medication will work for you. I don’t have much on endurance for walking, I usually run out of energy really quick and then I have days to recoup.

What about you? How did you start?

@deannweir I honestly don’t think the medicine is working. Darn, darn. I have an autoimmune disease that caused lesions on my brain. After high dose steroids, most of the lesions are gone, but they left their mark. 😥. I’m slowly tapering off the prednisone (now that I get twice yearly infusions of a chemo drug). The neurologist thinks the prednisone could be causing the fatigue. We’ll see. Tomorrow’s another day!