1. < Autoimmune Diseases

Autoimmune Diseases and Fatigue

Posted by JohnWBurns @johnwburns, Jul 13, 2016

Fatigue is probably intertwined with the definition of "illness", almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person's being and is a feature of their daily life. Such is the case with the highest profile disorders, cancer and cardiovascular disease, but it is just as true with at least some autoimmune diseases. I have a long history of dealing with autoimmunity and the complaint that kept bringing me back to doctors persisting in finding out what was going on was the dogged lack of energy, vitality. I got guess after guess after guess and when I got the "answer" it was basically that fatigue was part of the deal with the autoimmune disease that I have, Sjogren's, as well as I'm sure many others. So what I'm asking here is if you experience it, fatigue, how has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?

In my case its exercise, rest, and a fairly regulary low dose, around 50 mgs (usual recommended dose 200 mg) of modafinil, which I don't take for Sjogren's but rather for "Excessive Daytime Sleepiness" linked to Obstructive Sleep Apnea. I accidentally found out that it mitigated my general weariness. I've read some solid studies that found that American Ginseng can help cancer-related fatigue but apparently it doesn't work for Sjogren's, for me at least. Since fatigue impacts a person's total life experience in all domains, any information that might lead to dampening or controlling it would be very helpful to a lot of folks I'm sure.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

lioness | @lioness | Mar 11, 2018
In reply to @lioness "You have a sense of humor and it's a must for all our problems.Research shows our..." + (show)
@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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Forgot to tell you for pain I take Tramadol @night before bed if needed during day

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peach414144 | @peach414144 | Mar 11, 2018
In reply to @lioness "You have a sense of humor and it's a must for all our problems.Research shows our..." + (show)
@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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@LIONNESS: i love GARLIC DILL PICKLES AND EAT QUITE A BIT. bAtEMPTEE bRAND IS A VERY GOOD TASTE. tHANKS AGAIN i AM ON MY WAY TO THE REFRIGERATOR. (MOUTH WATERING Peach

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peach414144 | @peach414144 | Mar 11, 2018
In reply to @lioness "You have a sense of humor and it's a must for all our problems.Research shows our..." + (show)
@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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move over pickles so i can drink the juice and buy another jar tomorrow. peach

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johnjames | @johnjames | Mar 12, 2018

Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months- I can barley move at times, my immune system was really low last year and I had a few IV bottles of Iron- which helped a little. What is your thoughts and experience with this? Thanks John James

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3 replies
Mentor
John, Volunteer Mentor | @johnbishop | Mar 12, 2018

Hello @johnjames -- I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

-- https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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25 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Mar 12, 2018
In reply to @johnjames "Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months-..." + (show)
@johnjames

Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months- I can barley move at times, my immune system was really low last year and I had a few IV bottles of Iron- which helped a little. What is your thoughts and experience with this? Thanks John James

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@johnjames

Nice to hear from you John! I'm glad that you have experienced some help with the iron infusions.

Teresa

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lioness | @lioness | Mar 12, 2018
In reply to @lioness "You have a sense of humor and it's a must for all our problems.Research shows our..." + (show)
@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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Haha I keep a jar in demand I love sauerkraut

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lioness | @lioness | Mar 12, 2018
In reply to @lioness "You have a sense of humor and it's a must for all our problems.Research shows our..." + (show)
@lioness

You have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach

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Good for you

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 12, 2018
In reply to @johnjames "Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months-..." + (show)
@johnjames

Mentor- I have had Parkinson's for about 5 years now- my fatigued the past 6 months- I can barley move at times, my immune system was really low last year and I had a few IV bottles of Iron- which helped a little. What is your thoughts and experience with this? Thanks John James

Jump to this post

So good to hear from you @johnjames. It's been a while. I noticed that you're not following the Parkinson's Disease group. Might I suggest that you follow the group so that you don't miss any posts? Here's how:
1. Go to the Parkinson's Disease group https://connect.mayoclinic.org/group/parkinsons-disease/
2. Click +FOLLOW just below the description.
3. Select "Email me when new pots appear and include in my email digest"
4. Click UPDATE.

You might be interested in this discussion:
- Ferrlecit Infusions for Ferritin Iron Deficiency https://connect.mayoclinic.org/discussion/ferrlecit-infusions-for-ferritin-iron-deficiency/

John, how have the iron infusions helped you?

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lioness | @lioness | Mar 12, 2018
In reply to @johnbishop "Hello @johnjames -- I have no experience with iron iv treatments other than knowing it's for..." + (show)
@johnbishop

Hello @johnjames -- I have no experience with iron iv treatments other than knowing it's for treatment when your body doesn't have enough iron which can cause anemia. I did find a good overview on the Cleveland Clinic's website here:

-- https://my.clevelandclinic.org/health/treatments/14571-iron-intravenous-iv-infusion-as-anemia-treatment

Were you diagnosed with low iron?

John

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I never heard of low iron ,won't taking iron pills help?My brother had to much iron and had to f be blood everytime the blood bank was in town

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