Autoimmune Diseases and Fatigue

Posted by JohnWBurns @johnwburns, Jul 13, 2016

Fatigue is probably intertwined with the definition of “illness”, almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person’s being and is a feature of their daily life. Such is the case with the highest profile disorders, cancer and cardiovascular disease, but it is just as true with at least some autoimmune diseases. I have a long history of dealing with autoimmunity and the complaint that kept bringing me back to doctors persisting in finding out what was going on was the dogged lack of energy, vitality. I got guess after guess after guess and when I got the “answer” it was basically that fatigue was part of the deal with the autoimmune disease that I have, Sjogren’s, as well as I’m sure many others. So what I’m asking here is if you experience it, fatigue, how has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?

In my case its exercise, rest, and a fairly regulary low dose, around 50 mgs (usual recommended dose 200 mg) of modafinil, which I don’t take for Sjogren’s but rather for “Excessive Daytime Sleepiness” linked to Obstructive Sleep Apnea. I accidentally found out that it mitigated my general weariness. I’ve read some solid studies that found that American Ginseng can help cancer-related fatigue but apparently it doesn’t work for Sjogren’s, for me at least. Since fatigue impacts a person’s total life experience in all domains, any information that might lead to dampening or controlling it would be very helpful to a lot of folks I’m sure.

No rash & i have been checked many times for it. Thanks for asking.

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No, fax seed oil & black seed oil are 2 different items. I am also to get "white tiger balm from Korea. I ordered from Amamzon last night so not sure how well it will work either. My dr. says it works well.

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I have CBD & CBC oil but have been having bad reactions to any hemp products so can not use right now. I am glad it is working for you. Black seed oil is really for my brain function (not sure about pain) but rubbing flax seed oil on my spine is helping a bit. I also have to eat 3 teaspoons a day of ground up flax seed oil. This is to help with dry eyes, mouth, etc.

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@ginjax28

No rash & i have been checked many times for it. Thanks for asking.

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@ginjax28 hope you find a diagnosis

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@ginjax28

I have CBD & CBC oil but have been having bad reactions to any hemp products so can not use right now. I am glad it is working for you. Black seed oil is really for my brain function (not sure about pain) but rubbing flax seed oil on my spine is helping a bit. I also have to eat 3 teaspoons a day of ground up flax seed oil. This is to help with dry eyes, mouth, etc.

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@ginjax28 The more I've investigated Essential Oils and spices I believe they are more helpful then alot of perscriptions I love ginger @tumeric together for inflammation for one As I said I use a combo of lavender, peppermint rub in for pain. On the essential oil website I printed out what helps with how you feel

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@ginjax28

No, fax seed oil & black seed oil are 2 different items. I am also to get "white tiger balm from Korea. I ordered from Amamzon last night so not sure how well it will work either. My dr. says it works well.

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@ginjax28 My son does exercises everyday and uses Tiger Balm he likes it

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@ginjax28

I have CBD & CBC oil but have been having bad reactions to any hemp products so can not use right now. I am glad it is working for you. Black seed oil is really for my brain function (not sure about pain) but rubbing flax seed oil on my spine is helping a bit. I also have to eat 3 teaspoons a day of ground up flax seed oil. This is to help with dry eyes, mouth, etc.

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@ginjax28 I use to take a combo Evening Primrose oil,Flax oil and Borage didn't notice any difference then but after that I became allergic to shellfish Going to look at it again without shellfish

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The white tiger balm from Thailand is the best – tell your son!

Liked by lioness

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Thank you so much!

Liked by lioness

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@lioness

@ginjax28 hope you find a diagnosis

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Thank you – dr says it is most likely Sjogren’s. I am so not happy about this but I am so happy to be alive still!

Liked by lioness

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@lioness

@ginjax28 I use to take a combo Evening Primrose oil,Flax oil and Borage didn't notice any difference then but after that I became allergic to shellfish Going to look at it again without shellfish

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Shellfish is so bad for us all & I to became very reactive to it also. Good luck on finding what works best. I will write again if I find anything that works really well for pain.

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@ginjax28

Shellfish is so bad for us all & I to became very reactive to it also. Good luck on finding what works best. I will write again if I find anything that works really well for pain.

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@ginjax28 Thanks I will tell him

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No I have not been tested for EBS I get skin lesions on arms and legs

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@soteloli

No I have not been tested for EBS I get skin lesions on arms and legs

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@soteloli Talk to your Dr about viruses EBV and H S virus this one gives you coldsores and chickenpox

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@lioness

@suecreader I just started having hip/sciatica pain I,ll have to try Past tense is this a blend?

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@lioness: It is a blend yes….. smells a bit like wintergreen….I hope it helps

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