Are there any effective ways to deal with shadowing behavior?

Posted by chris20 @chris20, May 24 7:35am

I wonder if there are any effective ways to deal with shadowing. My wife's short term memory is down to a few seconds so it would do no good to attempt a conversation about it. I can't go anywhere in the house or outside in the yard without her being so close that if I back up I bump into her. Her medications help the paranoia and panic attacks somewhat, but she is hardly ever more than an arm's length away from me. It drives me nuts.

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@tsc

Hi @chris20
I'm glad you found the article helpful!
My husband was diagnosed with Alzheimer's 5 years ago, although I noticed signs two years prior to that. He doesn't shadow me and I can leave him for a few hours at a time. He still does dishes, sweeps outside, puts his clothes away. I can get him to work on a puzzle once in a while or keep score when I play Scrabble solitaire.
For a while, he was not accepting of visitors. I didn't realize he had a cataract and was blind in one eye. He had surgery and is much more sociable. Still, our home is his castle, where he feels safe, and after a while visitors are "invaders" to him.
The geriatrician told me to tell him, if I do get help from outside, that the help is for me, not him. Do you think that would work with your wife? (I just saw that @IndianaScott made a similar suggestion below).
If you need to rest, read or watch tv, will your wife sit beside you quietly? Maybe you could sneak in some rests or "me" time that way?
If you have to do a chore, can you give her a little job she can do beside you?
How do you manage groceries, etc.?
I've been toying with the idea of getting a companion dog for us. I was feeding a neighborhood stray for years. He started to accompany me on walks to feed her and he just loved her. Long story short, she was taken by Animal Control on Valentine's Day. She was too much dog, indepependent, with trust issues, for me to take on, but he's lost so much motivation since she's gone.
Meanwhile, my husband's had chronic sinusitis and one sinus is completely blocked so he'll need some kind of procedure. I'm going to delay moving forward on the dog for a while.
We're pretty much on our own here, with no family nearby. It must hurt when they are near and don't step up.
Do take care and post how it goes.

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To answer your question about groceries, sometimes I order online from Walmart and just drive over and pick them up. As for shopping in the store, it's a matter of profound wonder, as Abe Lincoln used to tactfully say when talking about his marriage.
She wants to help, but has no idea what we need, and puts things in the cart that we have plenty of at home. If there's not much cost involved, I just go ahead and buy it, otherwise I discreetly take things from the cart and put them on any shelf before we check out . She never once has asked what happened to ____? I stopped trying to surprise with anniversary cards, flowers and gifts, I just let her watch me pick them out and check them out.

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@carbry

Like you say. Almost funny. My husband is so eager to dry the dishes that he will (when I’m not looking) start drying the dirty dishes before I can start washing. Spaghetti sauce all over a white dish towel, etc. I suppose there are worse things, and sometimes you just have to laugh. 😊

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You know what's really ironic? She has always said she hates surprises. Now everything is a surprise, even if I told her something 5 seconds ago. She will say, "Oh!! Why didn't you tell me that?" And sometimes I just say, "Sorry, I must have forgot!" Other times I just don't answer.

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@chris20

You know what's really ironic? She has always said she hates surprises. Now everything is a surprise, even if I told her something 5 seconds ago. She will say, "Oh!! Why didn't you tell me that?" And sometimes I just say, "Sorry, I must have forgot!" Other times I just don't answer.

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I think of my husband as wandering through a foreign land with no navigation tools. I am his guide.

I love this quote - I think it's Teepa Snow:
"You may only be one person in the world, but to one person, you may be the world."

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@tsc

I think of my husband as wandering through a foreign land with no navigation tools. I am his guide.

I love this quote - I think it's Teepa Snow:
"You may only be one person in the world, but to one person, you may be the world."

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Yes, which does explain the shadowing. An understandable fear of losing her world is present every waking moment.

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@chris20

Yes, which does explain the shadowing. An understandable fear of losing her world is present every waking moment.

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It must be so scary for her.

I remember my absolute panic as a child when I was separated from my mother in a department store and couldn't find her.

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@tsc

It must be so scary for her.

I remember my absolute panic as a child when I was separated from my mother in a department store and couldn't find her.

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Same thing. Horrible fear that you couldn't get back what you so desperately needed to survive.

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This is such a great question.
I’d really like to read more responses to this.
I get up early so I have an hour to myself. If my husband hears me (veerrryy quietly) making a cup of coffee, he will be directly by my side. I have tripped over him, and spilled things, because he is always ‘right there’. I have asked him to please not hover and to keep one arm length between us for safety.
If we visit others, when he answers a question by a friend, he will look right at me as he answers.
He needs my constant attention.
At this point, I can ask him to do small tasks around the house and that gives me some reprieve, unless he starts asking me for input on every step of the task. I try to make a deal with him, that we will do something he would enjoy, then I get some time to do the finances, appointment making, etc.
Right now I am writing this in the bathroom with the door closed - so my ideas only work for so long. 😄

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I have a similar situation. My husband doesn't shadow me but wants me next to him at all times. He suffers from chronic pain so mobility is compromised. If I walk away, even a few feet from living room to kitchen, he calls out to me. I'm only a few feet away (small condo) and we can see/hear each other but he wants me to walk over to him to talk to me. Often, he's forgotten why he called or he repeats some nonsensical thought.

He doesn't want visits from friends or family, just me. The occasional days where he sleeps all day are what saves my sanity. Not sure how long this is manageable. 😞

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