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Camzyos Side Effects

Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 14 9:50am | Replies (16)

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@holly1275

Hi
Thank you for the information, I will look into this on Monday, and hope to get a appointment.
I am see a cardiologist at a teaching hospital that supposedly, he is a expertise in the field of heart transplant and Hypertrophic Cardiomyopathy.
But he won't listen to what I have to say it's basically he refer me to other patients.
When I asked him about the side effects of Camzyos, he said none of his patients have had any reactions from it. I thought to myself I am not his other patients I guess I was so shocked I couldn't say anything ..
Then he told me if I was having side effects then stop taking the Camzyos, then he said well what do you want me to do.
Every side effect he said was not related to Hypertrophic Cardiomyopathy it must be something else.
I was dizzy headaches trouble breathing sharp pain in my chest joint pain.
I basically was trying to ask about the side effects.
So mad and disgusted I thought he was better than that.
I was referred to the hospital by my original cardiologist I saw at the hospital and his office when I was originally diagnosed in Dec.
He was the one who said he couldn't do anything more for me .
Thank you again for your kind word.
I will surely look into Mayo Clinic On Monday
God Bless And Thank You

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Replies to "Hi Thank you for the information, I will look into this on Monday, and hope to..."

Don't forget!
Monday is Memorial Day...when we honor those who died serving our Country.
It is never a bad thing to get another opinion. Especially from the world's leading authorities in HOCM at Mayo Clinic. It really sounds like your cardiologist is not listening to you. That can be so frustrating! I had to see three cardiologists before I was diagnosed correctly, so don't think you are doing anything wrong by seeking more information. Especially if you feel brushed aside and unheard...