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Loss of taste after liver transplant

Posted by kaegee @kaegee, Dec 9, 2018

Hi everyone, my husband is 14 days post liver transplant. He has completely lost his sense of taste and even worse, nearly all food and drink (besides water) taste awful to him. Has anyone else experienced this? Do you know what medication causes it? Does it go away? What did you find you could tolerate the taste of to eat or drink?

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jackie421blfdgurl | @jackie421blfdgurl | May 17 9:09pm
In reply to @rosemarya "@jackie421blfdgurl, Hey, I'm happy to hear your voice! I hope that you are doing well and..." + (show)
@rosemarya

@jackie421blfdgurl, Hey, I'm happy to hear your voice! I hope that you are doing well and that you are enjoying some new adventures in your life.

I think that your suggestion to make chicken soup and put it in a blender so that you can drink it through a straw is a great idea! I think the warmth of the chicken soup would be a welcomed variation from the shakes. Thanks for sharing it.

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Rosey...Rosey....so good to know you received my message...miss u...hope u have a great summer...so far in NJ has been rain! Mayb only summer with no tan....nooooooo! We have had so much rain...go away....no control over weather... feeling ok still take meds...keep up with my MRI and CT and blood just had them a month ago,,,,all good. Take care...hugs. To you😍

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 23 7:48am
In reply to @123sandy "hello, @rosemarya Thank you so much for your reply. My transplant was 1yr ago yesterday. I’ve..." + (show)
@123sandy

hello, @rosemarya
Thank you so much for your reply. My transplant was 1yr ago yesterday. I’ve had so many of the same reactions that you’ve described. The weight loss, worrying about a g-tube, the smell of meat. I can’t watch fast food commercials without having a gag reflex. Also, whatever I’m eating is dry and makes it harder to get down. Your reply made me feel much better. That it’s not in my head. I don’t remember telling the team about these reactions but my 1 yr visit is in 2 weeks and I will bring them up after getting your reply. Thank you again. I did pursue the problem with my hearing loss but it kind of felt like they thought I was a little crazy. However the tests did show loss which was sort of a two edge reaction. I felt better that I was validated but not that much better because I would be wearing hearing aids from then on. Life.
Have a very pleasant day @rosemarya. I was thrilled to see your reply.

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Good Morning, @123sandy. I want to let you now that I am thinking about your upcoming appointment. I rememeber my 1st annual visit to be a mixture of emotions as I had a difficult pre transplant period and it was frightening to be faced with those unccomfortable memories. I did shed some tears, but quickly recovered and my mood turned to joy and happoiness! I learned so much about my condition and how to continue forward with maintaining my health. I hope that you will have a good experience, and that you will come away with new knowledge and confidence as you progress forward.

If I might add a suggestion: Make a list of your questions so that you can ask your transplant team while you are there. Do you have to travel a distance with overnight lodging? Have you received a schedule of appointments/tests yet? Will you be at Mayo?

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