Welcome @josettecedo, as you probably already read or been told, mycosis fungoides is a type of cutaneous T-cell lymphoma (CTCL). CTCL is a group of rare blood cancers that cause changes in your skin, like itchiness, rashes, plaques or tumors. Although mycosis fungoides affects your skin, it's not a form of skin cancer because your T-cells — not skin cells — become cancerous.

In addition to the helpful post from @beeclee, I'm tagging other members like @shari715 @dws1968 @sherriesalinas @mkmann @bradders @kbirt who was also have Mycosis Fungoides.

While we wait for others to chime in, you might also be interested in this related discussion:
- Anyone have Cutaneous T Cell Lymphoma? https://connect.mayoclinic.org/discussion/cutaneous-t-cell-lymphoma/

Jose, you're asking good questions about what to expect. Many treatments are available to treat cutaneous T-cell lymphoma. Which treatments are best for you depends on your particular situation, including the extent or stage of your lymphoma.

Do you know the stage of your lymphoma? Do you have a treatment plan already?