Living with Neuropathy - Welcome to the group

I have chemotherapy-induced peripheral neuropathy in my hands and feet. Last year it was so severe that I ended up in a nursing home/rehab facility for 3 months. I've been working with physical therapists since then and am getting stronger. I can put up with the pain easier than the bilateral foot drop which affects my balance. I wear large AFOS on both feet to keep me from tripping over my toes. Would love to hear from people with similar issues and successful treatments.

Welcome @gramma206, Sorry to hear you are struggling with chemo induced neuropathy. You might find reading through the following discussion helpful:
--- Chemotherapy-induced neuropathy: What helps get rid of it?
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/

Hi Roger,
Is the Lumbar stenosis /neuropathy coming from your Mitral replacement, is that what you are saying ? I am looking at Open Heart someday, they are keeping ECHO'S , it was every 3 months now it went to 6 months, actually looked a little better this time if that is possible, I had RF as a child. How would you say you surgery went and you did in fact have a replacement ? Mechanical or tissue. I sure hope you got to the bottom of your issue. I just got on this site and now noticed that your post was from a few years ago.

I have axonal peripheral neuropathy. I’ll be interested to read what others who have have it have to say.

Hi I’m Bud and i have peripheral neuropathy that’s what the doctor says. I was burned when I was seven years old up to midcalf. I’ve always had neuropathy in my legs that I can remember as I’ve gotten older. The neuropathy has gone to my hands and fingers. People don’t have it and never experience it, have the slightest idea what pain is burning and tingling all day long all night long keeping you awake yeah it gets to be rough anyway I’m Bud and thank you for allowing me to be here

I found Naturmade Super B complex lessened my pain and zinging

Thanks for your thoughtfulness. I take super B complex and also 2400 mg daily of alpha lipoic acid, which my neurologist said was the only substance that had shown any possibility of lessening PN. Our body needs the B vitamins to metabolize it.

You hit the nail on the head exactly.
Hoping for at least one day pain free!

Welcome Bud @mrbud, You are right about folks that have not experienced the pain and other symptoms of neuropathy have no idea of the daily struggles it presents for many of us. There are many other discussions in the Neuropathy Support Group that you might like to scan through to learn what others have shared. Here is a link to the list of neuropathy discussions - https://connect.mayoclinic.org/group/neuropathy/.

Another site you might find helpful for neuropathy is the Foundation for Peripheral Neuropathy and their Living Well with Neuropathy page here - https://www.foundationforpn.org/living-well/.

I posted my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. It's good to hear that you have found some relief for the pain and zinging using Nature Made B Complex Super.

Have you tried any other complementary or alternative treatments?

Welcome @boho44, You might want to scan through the following discussion to learn what others have shared:
--- Axonal peripheral neuropathy: Finally, a diagnosis!: https://connect.mayoclinic.org/discussion/axonal-peripheral-neuropathy-finally-a-diagnosis/

Are you able to share a little more about your symptoms and any treatments you have tried?