Colleen Young, Connect Director | @colleenyoung | Jan 13, 2017
Hey @katethegreat,
I thought I'd check in and see how you're doing. You asked what is NED? NED is short for "no evidence of disease". Have you heard of Dr. Rob Rutledge in Halifax? He is a radiation oncologist who started a Healing and Cancer program. You can read more about it here: http://healingandcancer.org/the-healing-program/ and watch videos. Another great resource for mindfulness work is Mayo Clinic's Dr. Sood. He also has a guided program online here: http://stressfree.org/happiness/ Several other members of Connect have recommended these types of programs to help living better with cancer.
Talk to you later.
Hey @katethegreat,
I thought I'd check in and see how you're doing. You asked what is NED? NED is short for "no evidence of disease". Have you heard of Dr. Rob Rutledge in Halifax? He is a radiation oncologist who started a Healing and Cancer program. You can read more about it here: http://healingandcancer.org/the-healing-program/ and watch videos. Another great resource for mindfulness work is Mayo Clinic's Dr. Sood. He also has a guided program online here: http://stressfree.org/happiness/ Several other members of Connect have recommended these types of programs to help living better with cancer.
Talk to you later.
I had the ovarian scare at age 42. The surgery pain was as if a Mack truck hit me and rolled over me. Not to mention the hormonal changes that follow.I only wish I would have had the mind & body training I had with the many surgeries in my 20's-30'sIn 2008 after I had lung cancer surgery (I am a never smoker) I was ...the Healing Cancer physicians are earth angels. The mind body soul connection is a blessing in more ways than I could have ever imagined. The practice had given me great strength, compassion, resilience traduced to The PacedBreathing Research Study at Mayo that put me on a great track for living!Having lung cancer was shocking!But the Stigma, shame and blame was unfair and horrible. It can bring you down! Integrative medicine works for me!Most importantly, I can accept living like never before! It's a wonderful life.I am grateful "Stress Free Living" teachings by Dr Amit Sood and the amazing care at Mayo Clinic with the "healing support" they make available...it should be an insurance requirement ! Because I now say Lung Cancer became my blessing.Mayo teams respectfully keep an eye on us and lookAt the great sharing opportunity we have with Mayo connect. Truly amazing! Thank you Colleen ❤I am so grateful, Linda Wortman
While we wait for others to return to the discussion, we look forward to getting to know more about you. Are you looking for information about ovarian cancer for yourself or for someone you care for?
While we wait for others to return to the discussion, we look forward to getting to know more about you. Are you looking for information about ovarian cancer for yourself or for someone you care for?
I am 2 years out from ovarian cancer Stage 3c-had a big surgery and chemo therapy. Still feel exhausted, partly because of so many checkups and Blood Tests! But my cancer dr. Just mentioned at my last visit that it could come back ( some of the contamination could have been missed) and since I had some very small breast lumps (lumpectomy) and a recent colonoscopy taking out 4 precancerous polyps I am bracing but don’t know either how common recurrence is.I am about to be 77. Would like to hear some others’ experience with this.
I am 2 years out from ovarian cancer Stage 3c-had a big surgery and chemo therapy. Still feel exhausted, partly because of so many checkups and Blood Tests! But my cancer dr. Just mentioned at my last visit that it could come back ( some of the contamination could have been missed) and since I had some very small breast lumps (lumpectomy) and a recent colonoscopy taking out 4 precancerous polyps I am bracing but don’t know either how common recurrence is.I am about to be 77. Would like to hear some others’ experience with this.
Brca neg. two year NED ovarian cancer survivor just diagnosed with stage two breast cancer. I have severe neuropathy following chemo which may be worse due to my autoimmune diseases. Is there anyone in a similar situation who can give advise me on expectations with Aromatase inhibitors?
Brca neg. two year NED ovarian cancer survivor just diagnosed with stage two breast cancer. I have severe neuropathy following chemo which may be worse due to my autoimmune diseases. Is there anyone in a similar situation who can give advise me on expectations with Aromatase inhibitors?
I recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
I recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
@susu2, I'd like to introduce you to @chowmama2 who is an ovarian cancer survivor and just recently was also diagnosed with breast cancer. As an ovarian and breast cancer survivor yourself, I thought it would be good for you to meet.
Susu, you mention staying away from letrazole. Has your primary cancer doctor suggested using another aromatase inhibitor (AI) or is the risk of side effects higher than the treatment benefit of all AIs in your case?
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Hey @katethegreat,
I thought I'd check in and see how you're doing. You asked what is NED? NED is short for "no evidence of disease". Have you heard of Dr. Rob Rutledge in Halifax? He is a radiation oncologist who started a Healing and Cancer program. You can read more about it here: http://healingandcancer.org/the-healing-program/ and watch videos. Another great resource for mindfulness work is Mayo Clinic's Dr. Sood. He also has a guided program online here: http://stressfree.org/happiness/ Several other members of Connect have recommended these types of programs to help living better with cancer.
Talk to you later.
I had the ovarian scare at age 42. The surgery pain was as if a Mack truck hit me and rolled over me. Not to mention the hormonal changes that follow.I only wish I would have had the mind & body training I had with the many surgeries in my 20's-30'sIn 2008 after I had lung cancer surgery (I am a never smoker) I was ...the Healing Cancer physicians are earth angels. The mind body soul connection is a blessing in more ways than I could have ever imagined. The practice had given me great strength, compassion, resilience traduced to The PacedBreathing Research Study at Mayo that put me on a great track for living!Having lung cancer was shocking!But the Stigma, shame and blame was unfair and horrible. It can bring you down! Integrative medicine works for me!Most importantly, I can accept living like never before! It's a wonderful life.I am grateful "Stress Free Living" teachings by Dr Amit Sood and the amazing care at Mayo Clinic with the "healing support" they make available...it should be an insurance requirement ! Because I now say Lung Cancer became my blessing.Mayo teams respectfully keep an eye on us and lookAt the great sharing opportunity we have with Mayo connect. Truly amazing! Thank you Colleen ❤I am so grateful, Linda Wortman
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1 ReactionInterested in knowing more about ovarian Cancer recurrence or ovarian Cancer matastasising
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2 ReactionsWelcome to Connect, @colfordconnors
You'll notice that I moved your message asking about ovarian cancer and metastatic ovarian cancer to an existing discussion group. I did this so you could meet others talking about ovarian cancer, like @joannedb @katethegreat @caf132 @rena42 @pauldale4 @laurieann789 @pat417 and @seansfather
Colford, you might also be interested in this discussion:
- Ovarian Cancer Stage 1 borderline progressed to high grade Stage 4 https://connect.mayoclinic.org/discussion/ovarian-cancer-stage-1-borderline-progressed-to-high-grade-stage-4/
While we wait for others to return to the discussion, we look forward to getting to know more about you. Are you looking for information about ovarian cancer for yourself or for someone you care for?
-
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Helpful -
Hug
1 ReactionI am 2 years out from ovarian cancer Stage 3c-had a big surgery and chemo therapy. Still feel exhausted, partly because of so many checkups and Blood Tests! But my cancer dr. Just mentioned at my last visit that it could come back ( some of the contamination could have been missed) and since I had some very small breast lumps (lumpectomy) and a recent colonoscopy taking out 4 precancerous polyps I am bracing but don’t know either how common recurrence is.I am about to be 77. Would like to hear some others’ experience with this.
-
Like -
Helpful -
Hug
1 ReactionBrca neg. two year NED ovarian cancer survivor just diagnosed with stage two breast cancer. I have severe neuropathy following chemo which may be worse due to my autoimmune diseases. Is there anyone in a similar situation who can give advise me on expectations with Aromatase inhibitors?
Hi @chowmama2 and welcome to Connect.
What a blow to be diagnosed with a second type of cancer after being 2 years without evidence of disease (NED) of ovarian cancer. I'd like to direct you to a couple of discussions in the Breast Cancer group (https://connect.mayoclinic.org/group/breast-cancer/)
- Breast Cancer and Neuropathy https://connect.mayoclinic.org/discussion/just-to-say-hello/
- Concerned about the side effects of anastrozole https://connect.mayoclinic.org/discussion/i-completed-all-treatments-for-breast-cancer-but-now-i-am-supposed/
Have you had surgery and chemo for both cancers?
I recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
-
Like -
Helpful -
Hug
3 ReactionsSept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
-
Like -
Helpful -
Hug
1 Reaction@susu2, I'd like to introduce you to @chowmama2 who is an ovarian cancer survivor and just recently was also diagnosed with breast cancer. As an ovarian and breast cancer survivor yourself, I thought it would be good for you to meet.
Susu, you mention staying away from letrazole. Has your primary cancer doctor suggested using another aromatase inhibitor (AI) or is the risk of side effects higher than the treatment benefit of all AIs in your case?